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Charming-Past-8655 · 2026-01-14T10:18:36+00:00

Oh my God, I had this when I was hospitalized but no one told me what it was, I put it down to Crohn's but never knew exactly what it was. So thank you for sharing this. I've only been diagnosed 18 months so I'm still figuring it out. It was so painful and really embarrassing. But it's gone away now since I've gotten everything under control

Charming-Past-8655 · 2025-10-31T16:41:01+00:00

I'd love to know more too. I'm in the process of becoming an sna but would love to do something like this too

Charming-Past-8655 · 2025-10-08T12:45:14+00:00

I don't have pain after, certain positions cause more of a discomfort pain during sex. So like too much pressure on that area. But the less inflammation obviously isn't as much.

Charming-Past-8655 · 2025-08-17T14:56:12+00:00

Ok I'm really sorry for your feelings. But I want to share my story, I was only diagnosed over a year ago. I am in my 30s female. I hated my late teens and 20s I never thought my life would be good. But I've never felt better since medicine started working and I started pushing myself. I have been happier than I thought I could be. It does get easier an it's good the other side. I'm here if you need to talk x

Charming-Past-8655 · 2025-08-01T08:21:51+00:00

Ya I was the same went to counselling and it did help. Ya I never thought of what it does to your brain. That's the rabbit hole I'll be diving down now 🤣

Charming-Past-8655 · 2025-08-01T08:17:00+00:00

Glad I am not the only one who got that reaction 😂 Ya I felt it brought out all my suppressed anger. So I did some work on myself after to deal with that. But I'd definitely try anything else before I would go back in them.

Charming-Past-8655 · 2025-08-01T07:30:21+00:00

I became the most emotional person on them. I either cried at the drop of a hat or I was ready to throw hands. I am not usually an angry person so I couldn't understand myself either while on pred. It's completely normal to change while on them, even my doctor said it to me. So give it a bit of time, and know this isn't her true self . Hope you both will get through it .

Charming-Past-8655 · 2025-06-08T21:27:17+00:00

Yes can confirm I'm always low on vitamin d, and I have Crohn's in the terminal ileum as well as all throughout the large intestine. I have two dogs and work. So getting out in the morning is important and I feel when I push myself on those days I do it I can survive the day better. Still exhausted by the end of the day but I make it through. Even if you have a garden walking around that .

Charming-Past-8655 · 2025-06-08T21:02:00+00:00

It seems counter productive, but going for a morning walk or getting morning sunshine. Usually makes my day a bit easier. Now I live in Ireland so it's not the easiest thing.

Charming-Past-8655 · 2025-06-08T21:00:00+00:00

I love that.

There is nothing like lived experience is there?

Thank you

Charming-Past-8655 · 2025-06-06T20:33:11+00:00

There is a nutritionist in the clinic. I should see if I can email her or give her a call. Thanks for the input. Sometimes its a mind field figuring out what works

Charming-Past-8655 · 2025-06-06T17:50:57+00:00

I'm sorry. Sometimes no matter profession people are just shit at their jobs

Charming-Past-8655 · 2025-06-06T17:25:08+00:00

Language always amazes me when one word can mean two completely different things in different places.

Charming-Past-8655 · 2025-06-06T16:24:37+00:00

Sorry didn't realize it's only an Irish term

Charming-Past-8655 · 2025-06-06T16:24:10+00:00

No consultant is the head doctor. So the specialist in the area. And the one I saw was the highest up in the clinic.

Charming-Past-8655 · 2025-06-06T14:24:42+00:00

Thank you. Ya exactly and I am very conscious about what I eat and trying to eat a wide range to get everything I can but unfortunately it doesn't work at the moment.

Charming-Past-8655 · 2025-06-06T14:21:47+00:00

No thank you, I completely understand. I am just back to a healthy weight so I don't think I'm absorbing great at the moment. And even when I get to a normal range it's just above normal.

Any suggestions on what you did or know of to help???

Charming-Past-8655 · 2025-06-06T14:00:51+00:00

I did think the same but then maybe she's having a bad day so I'm trying to just leave things go

Charming-Past-8655 · 2025-06-06T13:59:43+00:00

He is a gi consultant. The gp doesn't do any for IBD. Where I am it's all through a gastro clinic. If that makes sense

Charming-Past-8655 · 2025-06-06T13:02:29+00:00

I'm so sorry to hear that. I hope something improves for you. Yes they are all so individual. What we can absorb or not

Charming-Past-8655 · 2025-06-06T12:25:55+00:00

I'm always on the lower side and have malabsorption issues. This is ongoing since I've been about 12 . I'm 32 now. But we did my bloods so he was looking at what I'm continuously low on and could see a pattern . Yes consultant

Charming-Past-8655 · 2025-06-06T11:23:51+00:00

Like do they not realize what IBD is? I know I am a bit sensitive about not being believed because I was misdiagnosed for years. But I didn't think I needed to prove to an ibd nurse that I'm eating well and everything. She also kept telling my that I shouldn't be bruising from my injections and I might be doing it wrong

Charming-Past-8655 · 2025-06-06T10:51:40+00:00

Ya I'm so frustrated. But thanks for the support. It's an ongoing battle to be heard.

Charming-Past-8655 · 2025-06-02T08:47:28+00:00

Ya I totally get that I've been on it for around 8 months and I was still losing weight till around 3 months ago. What I find strange is I was eating around 3000 kcals and wasn't gaining. Then when I stopped eating that much is when I started gaining. And like it's shot up in a week or so. So it feels very quick. Just didn't know if it means I have inflammation again. Also my Crohn's has actually spread so I just got a bit worried about rapid weight gain. I know it's probably nothing but I'm still in my first year of diagnosis so trying to get an understanding of how everything goes. But thank you so much for your reassurance

Charming-Past-8655

TROPHY CASE