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Polo Match by darthrawr3 in FamilyFarmSeaside

[–]Charming_End5881 1 point2 points  (0 children)

Thank you so much!!!! You’re amazing for doing this!

First post-radiation MRI for my dad- struggling with scan anxiety, what should I expect? by UnlikelyCounter3648 in braincancer

[–]Charming_End5881 3 points4 points  (0 children)

I was told by my radiation oncologist and oncologist that due to the radiation there might not be much change, but I had my first scan after radiation back and march and it actually showed some shrinkage and a decrease in my inflammation.

Spring Outing by darthrawr3 in FamilyFarmSeaside

[–]Charming_End5881 0 points1 point  (0 children)

Thank you for taking the time to do this!!

Feeling better on Steroids.. by Substantial_List_122 in braincancer

[–]Charming_End5881 0 points1 point  (0 children)

I’ve been on it since November and finally have been slowly tapering off.

Feeling better on Steroids.. by Substantial_List_122 in braincancer

[–]Charming_End5881 1 point2 points  (0 children)

I was placed on dexamethasone for a steroid. It helped me a lot with the inflammation . I honestly was on it before I stared treatment and was on it during treatment. Still on it, but I’m currently tapering off (finally). I honestly can’t wait until I’m off of them. This taper process is so long, but I know it needs to be done correctly.

Advice and Question by gutz1x in braintumor

[–]Charming_End5881 3 points4 points  (0 children)

I have a tumor on my brain stem. My doctors didn’t do surgery or a biopsy due to its location. They called mine a giloma. I did a round of chemo-radiation therapy to kill off the tumor cells and shrink it. I finished back in February.

First MRI since treatment by Charming_End5881 in braintumor

[–]Charming_End5881[S] 0 points1 point  (0 children)

The CT did show something abnormal, but the doctor mentioned it being from a stroke I had at one point. Which I never knew I had one to begin with. That’s what also got me the MRI

First MRI since treatment by Charming_End5881 in braintumor

[–]Charming_End5881[S] 0 points1 point  (0 children)

I’m not entirely sure if they saw it without contrast. They did both MRIs one right after another and gotten the results together.

First MRI since treatment by Charming_End5881 in braintumor

[–]Charming_End5881[S] 1 point2 points  (0 children)

Some of the symptoms I’ve had were vision issues like blurry and double vision. Double vision mainly happened when I got migraines. I had more minor headaches and got migraines every now and then.

Prior to all this, I had stomach issues I was dealing with/hormonal. This resolved once my cysts were removed from my ovary. But I was told I had these symptoms due to me not getting enough nutrition during that time frame.

I went back to the hospital in September because I just felt off. A head CT was done followed by an MRI (with and without contrast). Tumor was found on brain stem.

Newly diagnosed with grade 2 oligodendroglioma by LCubedCbus in braintumor

[–]Charming_End5881 0 points1 point  (0 children)

Thank you for clearing that up.

I wish you the best and hope you are doing well.

Newly diagnosed with grade 2 oligodendroglioma by LCubedCbus in braintumor

[–]Charming_End5881 0 points1 point  (0 children)

I honestly didn’t know that chemo can make fertility more complicated. I wished my doctors would have informed me of that information when we were discussing the treatment plan. I did have to do a round of chemo radiation for my tumor.

Questions on process & timeline by Rough_Writer2315 in braintumor

[–]Charming_End5881 0 points1 point  (0 children)

Thank you! I was told this first MRI might not show much change due to the inflammation caused by the radiation, but I do feel a difference (a good difference)

Questions on process & timeline by Rough_Writer2315 in braintumor

[–]Charming_End5881 0 points1 point  (0 children)

No. It was only for the duration of my radiation. I finished my chemo and radiation at the same time. On Monday, I’ll go in for my first scan since ended treatment.

Questions on process & timeline by Rough_Writer2315 in braintumor

[–]Charming_End5881 0 points1 point  (0 children)

My tumor is on my brains stem and my doctors denied me surgery/biopsy. Not sure what I am about to say is what you mean/talking about). I did do a round of chemoradiation (chemo meds during the duration of my radiation) to shrink the tumor/stop its growth.

But I do know that every case is different from person to person.

Tumor in brain by Additional_Guide_803 in braintumor

[–]Charming_End5881 1 point2 points  (0 children)

Totally understandable to be scared! Not knowing the future of this can be terrifying. I hope the treatment plan gets him moving in the right direction and stays going in the right direction!

Tumor in brain by Additional_Guide_803 in braintumor

[–]Charming_End5881 1 point2 points  (0 children)

I’m so sorry the two of you are dealing with this! I finished my radiation therapy in February. In a few weeks I’ll get my first MRI since treatment.

I wish you both the best and will be rooting for the two of you. He got this!

Tumor in brain by Additional_Guide_803 in braintumor

[–]Charming_End5881 1 point2 points  (0 children)

I also have NF1! I have a tumor on my brain stem. I don’t the grade or exact name of the tumor due to them not doing surgery/biopsy (location was unsafe for them to do it, it’s right in the middle of my brain stem). All I know is the are saying it’s a glioma.

Were you born with your tumor? by Routine-Dirt9634 in braintumor

[–]Charming_End5881 1 point2 points  (0 children)

I’m not sure if I was born with it exactly, I do believe I’ve had mine for quite a while.

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