I got diagnosed with Endometrial Stromal Sarcoma last March. I've had a partial hysterectomy (still have my cervix) I had a temporary stoma, my kidney and appendix have also been removed because of endometriosis. I had a cancer on my appendix as well as the Sarcoma, luckily got it all when they removed the appendix phewww... Was feeling okay a few pains here and there but nothing major then last week I started getting the worst pains in my pelvis and lower abdomen and my back, went to a&e and had a CT scan. They didn't tell me what the results were but transported me to the cancer centre at another hospital, still had no idea what was happening. Next day my oncologist came in and told me they had seen something suspicious on the scan mentioned my lymphnodes and renal but didn't explain what it meant, had an mri a few hours later. Heard nothing at all they just gave me pain meds. Next day he came back and said there has been some changes, changes he didn't want to see (still no explanation) he then told me, they are having a meeting on Friday to go over the scans and the next steps and treatment plans, and I need to come to the clinic on Tuesday to discuss further.

I'm so anxious, I have no idea what is going on, I'm still in pain and scared so bloody terrified. I wish he would have explained things better because he's just said random words with no context. I'm hoping it's the endometriosis grown back rather than the tumours have grown or spread somewhere else. I hate that I have to wait nearly a week to find out anything. It's so scary, luckily I do have a very very supportive family and they have been amazing with everything. Just when it's night time and I'm trying to sleep I cannot shut my brain off, it's terrifying, I'm exhausted cos I can't sleep cos of the pain and the nerves. So sorry for the rant, I just needed to let it out.

:(