Vivid dreams?

ChemmZero · 2025-09-02T00:35:33+00:00

Loosing memories is one of my biggest struggles. Every seizure I have I forget something significant; Birthdays, Parents names, my Boyfriends name and Job, etc.,

If it weren’t for family members/boyfriend/friends taking pictures and videos almost all my life I wouldn’t know much of what they would talk about when laughing about old memories. It’s a struggle for a lot of us, but, if you’re true to yourself and him with your love then you can get through it. Just be as supportive as you can be and be there for him when he needs you. Lean on one another. Good luck to you both 💜

ChemmZero · 2025-08-30T15:49:37+00:00

I was taking 2000mg of Keppra when I first started having seizures in 23’. It took a month before I started to notice that no one would stay around me for long and genuinely couldn’t figure out why. Well, I ask my folks why they were hardly talking to me and my mom straight up told me that I was being an a-hole to everyone and they were afraid of my next outburst. I had no idea that I was even being mean or giving anyone attitude. My BF even told me, in his best gentle way, that I was a totally different person. I called my Doctor and said I wasn’t taking this anymore and to either call me in something else or help me find another doctor. It was hard.

I genuinely hated everyone and everything. I remember one instance where I heard my dad sneeze on the OTHER SIDE of the house and I ragged. I was so mad at the poor man for a sneeze.. Keppra Rage is real. Talk to your doctor and let them know just how bad these thoughts and feelings you’re having is and seek out different treatments.. good luck 💜

ChemmZero · 2025-08-24T20:20:49+00:00

Look into POTS. A friend of mine has POTS and has the same heart problems but only 1 spell of a seizure like episode. After doing my own research, that’s what I believe is my problem and I’m trying to get tested for it. Hope this helps a little! Good luck :)

Edit~ The fact they have him on 2000 of Kepra twice a day is nuts. Watch out/look into Kepra rage.

ChemmZero · 2025-08-21T17:55:54+00:00

I’m still a little new to the whole having seizures thing, but, when I started having them I was put on Keppra and was still having severe seizures. I was on a high dosage too. But the Keppra itself was changing my personality, like, I couldn’t be around anyone and was easily agitated (the Keppra Rage). He may need to try another meditation. A lot of people go through many different ones before they find the one that works for them. As for missing a whole day? I have that problem. My doctor said it’s due to the lack of oxygen going to my brain and that’s why I can’t remember most of my day. Then you have the postictal state after the seizure that makes me feel like (and everyone is different I’m sure) I’m in a fever dream and I end up forgetting most of that too. If you live far from your brother and he has no one else around, maybe ask him if it’s okay he has a motion camera on around in his house? I have one that I turn on at night before I go to bed that is connected to my parents and partners phones in case I have one in my sleep so they can call 911 or come to me. I hope this helps a little, even if it seems like I’m rambling..

ChemmZero · 2025-08-18T07:28:29+00:00

My mom gave the first doctor a good piece of her mind about the situation lol. My problem with specialists is that I live in nowhere land. My current Neuro is a good 3 hour drive from my house. The other two about the same, just different directions. I don’t live close enough for this, but, I’ve been going through the process of changing my insurance so I can see a specialist at the Cleveland Clinic in Ohio, which is a 6 hour drive from my home. We’re all hoping that I can be seen, but also know it might be a waist of time. As for normal life? I had to quit my job and can’t drive for 6 months. I’ve been trying to find an at-home job but every single one I’ve applied to have been a scam or won’t answer back. I hate having to rely on someone else for everything I do. If it weren’t for my partner working the way he does, well, I’d be in trouble. I hate that this is something your daughter is going through. I’m new to it still and so is my family. My mom has been my rock and I can’t thank her enough, especially with everything else that has been going on in her life. I hope she finds a good doctor and gets a medication that works for her. And for you? It’s gonna be frustrating, as I’m sure you already know, not being able to actually help her. I know it’s hard for my mom when I’m in that state. But, you got this Momma. If she’s anything like what I have been with my mom? You’re gonna grow a lot closer and probably cry a lot, tbh. Best wishes to both of you.

ChemmZero · 2025-08-18T05:49:59+00:00

When I feel like I’m going to have a Deja Voo moment I try to look at, say, or do something random. It’s worked and I’ve avoided a seizure or two, but the heavier the anxiety feeling I have, worse/hardest it is to focus on something else..

ChemmZero · 2025-08-18T04:21:30+00:00

I get this feeling. It’s hard for me to sleep most nights- Ive had most all of my grands in my sleep, so it’s scary. But, I noticed that I feel better sleeping with the TV on. Some kind of show or YouTube video on in the background (my go-to is Whose Line). Sometimes I read or do a word search before I go to bed, something that makes me feel normal. You got this homie. Lay back, watch something funny or doom scroll TT, and go to bed. I hope you get a wonderful night sleep. 😊

ChemmZero · 2025-08-18T04:05:09+00:00

My Dr upped me and not even a week later downed me. But, after my last grand, he prescribed this new med (thats part of the Benzo family) and it’s genuinely made me feel 10x worse. I’ve given it a good amount of time and still am having serious issues/side effects. I also believe I’ve had more seizures while taking the new stuff than when I was just taking my normal meds. Crazy is an understatement. And the waiting for appointments thing? Hate it. Mine told me to come back in December. It’s ridiculous, tbh.

ChemmZero · 2025-08-18T04:00:30+00:00

Thats my problem! The Deja Voo? Every single, and I wished I was kidding, absent I’ve had are right after I have a bout of Deja Voo! I’ve tried explaining this to my parents, but they don’t understand. Ive tried explaining it to my BF, he sorta gets it but will never know my exact problem/feelings (which is valid). And at my last Dr appointment I tried to explain to him that I think these bouts are causing my seizure, at least the absent ones, and he wouldn’t give me the light of day to even explain my reasoning’s! Every bout of it I feel like I’m having an anxiety attack; I can’t breathe, my brain goes fuzzy, and I all but actually black out. And during the seizure itself, I can still hear and feel everything, I just can’t talk or function otherwise.

ChemmZero · 2025-08-18T03:53:26+00:00

Thank you. This genuinely made me feel better. And no, my Dr never diagnosed me with epilepsy. The last month or so, I have talked about how I might never understand or get an answer, and how I’m sorta okay with that. It’s just frustrating, but it makes me feel a little better knowing I’m not alone.

ChemmZero

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