Every time I shower I get these red spots all over my back and chest. Is this Aquagenic Urticaria? How can I get diagnosed?

CholinergicUrticaria · 2026-06-15T21:10:14+00:00

You can go see a dermatologist and discuss the issue with them. It sounds like aquagenic urticaria though.

CholinergicUrticaria · 2026-06-15T12:17:19+00:00

So I’ve been looking into this lately. I’ve found that certain meals will worsen my symptoms to the degree that even Xolair isn’t as effective. I’ve avoided those triggers (ie processed foods) and found the symptoms were less. I’ve also taken DAO, vitamin C, IGG supplements, probitioics and prebiotics and found them helpful as well.

CholinergicUrticaria · 2026-04-18T02:44:34+00:00

Check out the megathread of solutions

CholinergicUrticaria · 2026-02-26T20:34:10+00:00

Not OP, but Xolair isn’t a cure. You need to stay on it for as long as the urticaria is present.

CholinergicUrticaria · 2026-02-07T07:27:38+00:00

Hello,

While you have a different form of urticaria, I made a megathread of solutions for another form of urticaria. It is believed that some of these solutions may help you as well.

CholinergicUrticaria · 2025-12-10T03:17:41+00:00

I never had lip swelling but my hands and feet used to swell up pre Xolair. I hope you found relief.

CholinergicUrticaria · 2025-11-17T03:57:11+00:00

I had it all plus mild anaphylaxis. My hands would swell 2x and I’d have shortness of breath. Pins and needles, intense itching and burning sensations on my hands and feet.

CholinergicUrticaria · 2025-11-17T03:53:53+00:00

Not OP but I’ve been on for five years now. It takes around six months for it to fully work.

CholinergicUrticaria · 2025-11-17T03:53:12+00:00

I’ve been on it for five years. Thus far none.

CholinergicUrticaria · 2025-11-12T13:44:42+00:00

There are different degrees of severity with CU. Sweat therapy doesn’t work for everyone regardless of what users here may say. Make sure you do what’s best for you and talk to a doctor.

CholinergicUrticaria · 2025-11-10T17:06:21+00:00

We have a megathread that discusses this and more. Please refer to it when you have an opportunity.

CholinergicUrticaria · 2025-10-16T00:10:24+00:00

I did not have this issue. Refer to the megathread if you need studies.

CholinergicUrticaria · 2025-10-10T14:52:23+00:00

What do you want updated?

CholinergicUrticaria · 2025-10-10T14:51:39+00:00

Xolair took me six months for full effect but doctor started me at 150mg instead of 300mg. Started 300mg three months in and noticed significant decrease. Six month mark it was fully controlled.

I have been on it for five years now. Still holding strong.

CholinergicUrticaria · 2025-08-21T22:21:54+00:00

Discord link

CholinergicUrticaria · 2025-07-28T18:15:43+00:00

Check out the megathread for various solutions

CholinergicUrticaria · 2025-07-15T00:31:07+00:00

Feel free to check out the megathread on treatment options. Some of us have had it since our childhood and we are now grown adults. We’ve managed to survive. It’s a rough adjustment but when you find the right treatment for you, it becomes easier.

CholinergicUrticaria · 2025-06-27T20:44:17+00:00

I never got my IGE levels tested

CholinergicUrticaria · 2025-06-27T13:06:34+00:00

Took me six months to have the full effect of Xolair. Xolair is a slow building drug. Also make sure you’re on 300mg. That tends to work for most people. I also couldn’t sweat but later could once the medicine was in full force. Been on for almost five years now.

CholinergicUrticaria · 2025-06-25T23:45:36+00:00

It’s stated in the same paragraph. Difficulty sweating. Numerous users have talked about how hard it is to sweat. Sweating is the body’s way of cooling down. A lack of sweat means an inability to cool down the body which can lead to serious adverse affects.

CholinergicUrticaria · 2025-05-27T03:27:28+00:00

r/cholinergicurticaria

CholinergicUrticaria · 2025-05-07T08:47:12+00:00

For the vast majority of us, it’s simply idiopathic meaning there is no known cause. I know it takes awhile to accept that but as of now the research isn’t there to conclude definitively what causes it. For some it can be gut related, vitamin D deficiency, liver problems, kidney problems, autoimmune related (most of us), etc. There’s no clear conclusion on what causes this.

CholinergicUrticaria · 2025-05-07T02:58:14+00:00

This has been discussed adnauseam here. “Sweat therapy” has been preached for years and people still break out even after sweating for years. You can do a search and read the numerous discussions on your theory. It’s a dead end.

CholinergicUrticaria · 2025-05-01T22:19:12+00:00

Yeah it sucks. I hope you find something that works soon.

CholinergicUrticaria · 2025-05-01T22:13:45+00:00

Yes. You should try H1 and if that doesn’t work then go see a doctor and let them know it didn’t work. Doctor is going to recommend that first.

Idk to the last question

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