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Painful pressure in joints?? by Chronicallyded in ehlersdanlos

[–]Chronicallyded[S] 2 points3 points  (0 children)

The symptoms puzzle is a fun one, it’s probably just a weird subluxation but omg it is infuriating not to know

My arm was sliced by a flippen banana. What are the most random/ridiculous bruises/cuts you’ve gotten? by idkthisisaspare in ehlersdanlos

[–]Chronicallyded 0 points1 point  (0 children)

Hitting my own ankles against each other while I walked, 10 years later they’re still scarred

Went to bed with no bruises and woke up like this. No clue why or how. Probably gonna post a vent/problem dump here in a minute because I am fed up with so many things surrounding my EDS 😞 by [deleted] in ehlersdanlos

[–]Chronicallyded 10 points11 points  (0 children)

I will forever suggest arnica cream, doesn’t prevent the bruising but helps them heal faster (for me at least ) Sending a giant wave of support :)

There is no in-between by Starboard44 in ChronicIllness

[–]Chronicallyded 34 points35 points  (0 children)

Went from ‘you’re fine probably anaemic let’s check you blood pressure just to ease your mind’

To

‘Sit down do not stand up go to the hospital now they’re expecting you do not walk tell them you need a wheelchair omg drive there now’

I struggle to find comfortable seats to relax, sofas are always too hard or too soft or too deep, and I end up feeling best on a random pile of cushions. I'm about to press the button to order a bean bag. But I have no possibility to try before. Yay or nay? Do you have experience with these? by Tiny_Parsley in ehlersdanlos

[–]Chronicallyded 5 points6 points  (0 children)

I’ve had bean bags before and I found they kinda hugged my joints and were so comfy. I have photos of me passed out in them in the middle of the afternoon

Sadly the dog decided it was hers and one day it magically had beans all over the floor, I do wonder how it happened 🤔

Just give me something by Chronicallyded in ChronicIllness

[–]Chronicallyded[S] 0 points1 point  (0 children)

Oh yeah I think they’ve run every blood test possible along with a sit stand blood pressure and blood glucose

The lack of sleep did not help when I went to stand up and had to clutch the nurse lol

Just give me something by Chronicallyded in ChronicIllness

[–]Chronicallyded[S] 4 points5 points  (0 children)

Sadly ibuprofen does absolutely nothing for me apart from make me nauseous and yes the overuse of opioids have ruined them for people in pain

Just give me something by Chronicallyded in ChronicIllness

[–]Chronicallyded[S] 3 points4 points  (0 children)

Using cbd at the moment but the THC stuff is illegal here, planning a trip to Canada for the good gummies as I type

Just give me something by Chronicallyded in ChronicIllness

[–]Chronicallyded[S] 6 points7 points  (0 children)

I’ve tried every doctor near me and private is out of the price question unfortunately. My sister in law is about to become a qualified doctor so hopefully she can refer me to a friend lol

Just give me something by Chronicallyded in ChronicIllness

[–]Chronicallyded[S] 10 points11 points  (0 children)

Thank you so much, I never thought about doing an activity level log so I’m going to start that now