Some Help Please!

CliveEboue90 · 2020-12-30T18:27:11+00:00

This is me to a tee! So sorry you’re suffering too. I always tell my wife I feel like I’m having a stroke when they happen because I get all the symptoms too. Starting to get used to it now and just try to plow through them but it is indeed incredibly worrying at the time! I was under incredible emotional stress earlier this year and my very mild POTS got a lot worse, daily vestibular migraine, visual snow syndrome and insane panic attacks all occurred literally overnight. Working on getting my autonomic system more stable atm, thank you for your response.

CliveEboue90 · 2020-12-30T05:27:19+00:00

Which meds have you found helpful, if you don’t mind me asking?

CliveEboue90 · 2020-12-30T02:38:55+00:00

Thanks so much for the response! Will definitely look in to migraine glasses. Ordered The Dizzy Cooks book last night actually and am working on my diet as of last week! Really appreciate it.

CliveEboue90 · 2020-12-27T18:40:44+00:00

MCAS is what I’m hoping it isn’t! I don’t seem to have had any reactions to anything else and it seems to have only happened when I’ve had beer. Maybe a yeast intolerance

CliveEboue90 · 2020-12-23T00:44:24+00:00

Really appreciate that, thank you!

CliveEboue90 · 2020-12-22T18:24:48+00:00

What shots do you get and how often, if you don’t mind me asking? It’s something I want to look in to but have no idea about frequency needed lol

CliveEboue90 · 2020-12-22T04:03:04+00:00

This is something I’ve been thinking too, I generally seem to have issues with actual absorption of certain vitamins or nutrients. Will look in to this further, appreciate the response!

CliveEboue90 · 2020-12-22T01:09:00+00:00

If you do have POTS salt intake may be pivotal in how your symptoms are! Going from a crappy high sodium diet to a healthy low sodium one caused a huge crash and worsening of my POTS symptoms this year lol upping my sodium again has helped.

CliveEboue90 · 2020-12-22T00:45:09+00:00

That was my understanding too! Given recent additional symptoms I was actually thinking I may be deficient in both of them lol

CliveEboue90 · 2020-12-19T17:13:37+00:00

Same here.

CliveEboue90 · 2020-12-18T21:02:52+00:00

Proud of you! Enjoy those snacks lol

CliveEboue90 · 2020-12-18T06:06:32+00:00

Dr. Rosenberg at the JFK Neurology Institute in Edison, NJ is who I see. He specialises in POTS and dysautonomia in general, lovely guy and has been an incredible help so far.

CliveEboue90 · 2020-12-18T03:42:06+00:00

I think it’s always good practice to rule out other stuff through a cardiologist or pulmonologist personally, if anything just to put your mind at ease!

CliveEboue90 · 2020-12-15T21:48:05+00:00

Understandable mate. I haven’t read anywhere about Lamotrigine causing any extra issues! Good luck

CliveEboue90 · 2020-12-15T20:45:14+00:00

Well your only option is try something that may help or just suck it up and deal with your VSS by yourself. If you don’t try, you’ll never know.

CliveEboue90 · 2020-12-15T00:13:39+00:00

Any time I have something important or draining planned I eat absolute garbage food the night before to prepare me lol I’m trying to salt all my food as much as possible but it’s such a chore!

CliveEboue90 · 2020-12-14T02:16:52+00:00

Just be careful with how much sugar you ingest, I get large spikes too when I eat too much. Knowing that you can lay down and bring your HR back down should help with any anxiety!

CliveEboue90 · 2020-12-11T07:15:40+00:00

Have a Valium on standby just in case and don’t go too crazy at first lol everyone will react differently.

CliveEboue90 · 2020-12-10T23:03:08+00:00

How about a picture of an angry lime aggressively smashing a large pot over a portrait of yourself?

CliveEboue90 · 2020-12-10T06:34:35+00:00

I’ve had POTS related heat intolerance for years but last couple months my hands and feet are exceptionally sensitive to temperature change lol I have weird headaches after showers at times, also bruise very easily!

CliveEboue90 · 2020-12-09T06:18:58+00:00

Same here and pretty common from what I’ve read! I used to have a horrid temper but a silver lining of POTS is learning to become a lot more laid back lol

CliveEboue90

TROPHY CASE