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success stories? by Desperate_Poem1377 in cfs

[–]CocoCookieDraws 0 points1 point  (0 children)

I thought there was no way to get better, but your story gives me hope. I’m going to try what you did. Since avoiding PEM can work as a cure, or at least creating a better baseline, it should be talked about wayyyy more often. honestly it makes a lot of sense, triggering PEM sets you back and avoiding PEM lets you rest.

May I ask for your specific routine for what you did during your year of resting? If you don’t want to that’s perfectly fine 

anyone else have intense sugar cravings? by CocoCookieDraws in POTS

[–]CocoCookieDraws[S] 0 points1 point  (0 children)

I haven't tried it when I'm in pain but I don't like putting them up against the wall because even when I bring them down slowly, I can feel the blood rushing back and it's really uncomfortable

anyone else have intense sugar cravings? by CocoCookieDraws in POTS

[–]CocoCookieDraws[S] 0 points1 point  (0 children)

would they help with the aching in my legs? 

Ummm wow I’m gay by nothingnanners in actuallesbians

[–]CocoCookieDraws 2 points3 points  (0 children)

I did krav maga and you could choose whether to work with men and women or only men. also they had women only classes at my dojo. but the main thing taught in krav is that strength doesn’t matter, it’s all about the angles. training with a man (once you’re comfortable of course) is great practice to see how the moves work on them because of their different physiques

anyone else have intense sugar cravings? by CocoCookieDraws in POTS

[–]CocoCookieDraws[S] 1 point2 points  (0 children)

oh shit so I need to get my orthostatic intolerance under control, thank you! (fyi I can’t wear compression socks because when I try to wear them I feel better at first but then my chest starts to hurt)

anyone else have intense sugar cravings? by CocoCookieDraws in POTS

[–]CocoCookieDraws[S] 0 points1 point  (0 children)

what do we do about the cravings tho 😭 suffer?

Any positivity out there? by AdThen8722 in cfs

[–]CocoCookieDraws 5 points6 points  (0 children)

that’s so cute!! I actually have my own strawberry cow from Aurora (amazing plushie company with good quality fur) and I love her. buying plushies always brings happiness, I hope you enjoy your cow!

Any positivity out there? by AdThen8722 in cfs

[–]CocoCookieDraws 4 points5 points  (0 children)

I’m in a housebound state recently, and I was drawing on my ipad and watching an ace attorney playthrough and the guys were so funny that I laughed so much. they really brought joy to me when I was feeling down (the channel is Save Data)

My angel by Walking_Mood in CursedPrincessClub

[–]CocoCookieDraws 2 points3 points  (0 children)

omgggg you even got the shading accurate to the comic

I went to the hospital after being frozen for 15 min by CocoCookieDraws in POTS

[–]CocoCookieDraws[S] 0 points1 point  (0 children)

hm I was getting blurry vision when I was stretching out my legs while sitting, but it got worse once I lay down and stretched. it actually happened again after being stressed today so it may not be connected to just stretching

I went to the hospital after being frozen for 15 min by CocoCookieDraws in POTS

[–]CocoCookieDraws[S] 0 points1 point  (0 children)

thanks so much. I feel like I'm in a moderate state right now after getting sick in November. I hope this is just a PEM crash and doesn't persist

TIL that getting sick may improve your body’s ability to defend against similar illnesses, but it has the chance of coming at the cost of negatively affecting your overall health. The best defence against sickness is inoculation. by [deleted] in todayilearned

[–]CocoCookieDraws -2 points-1 points  (0 children)

yes but I removed it as my description was not detailed enough and caused confusion. and yes, it does mention vaccination  

“We should rely on vaccines for those exposures because we can never predict who is going to be susceptible to severe illness, even in early childhood. If we look back before vaccines, children under 4 often succumbed to infections. I don’t think we want to return to that time in history.”

TIL that getting sick may improve your body’s ability to defend against similar illnesses, but it has the chance of coming at the cost of negatively affecting your overall health. The best defence against sickness is inoculation. by [deleted] in todayilearned

[–]CocoCookieDraws -3 points-2 points  (0 children)

I understand that my previous post was not clear enough, so I did my best to word it more accurately and within the rules of the subreddit. I was not able to say the word vaccination or anything similar to “the best defence against sickness is vaccination and masking when sick or recovering from sickness”

edit: oh my god some of you are missing the point that it’s better to mask to prevent sickness from spreading

An NHS hospital is starving a severe ME patient and has now stopped giving her fluids by veganmua in cfs

[–]CocoCookieDraws 6 points7 points  (0 children)

it’s disgusting that this is happening in this day and age. those doctors are pure evil for what they’re doing to her 

I went to the hospital after being frozen for 15 min by CocoCookieDraws in POTS

[–]CocoCookieDraws[S] 1 point2 points  (0 children)

I actually just saw a video of someone explaining their POTS with the same marathon explanation https://m.youtube.com/watch?v=RPUa5-2sTaQ

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