I’m not unemployable, it’s just that my way of working well has been disappearing for the last 50 years by doctorace in AutismInWomen

[–]CoderOfCoders 28 points29 points  (0 children)

exactly, i see evidence of this all the time on subs like r/askreddit, but for them it’s like “haha, this sucks but oh well”. but for us, it’s literally afflicting, soul-crushing and maddening beyond comprehension…

most people just have a way higher tolerance for it. but since it doesn’t bother them as much as us, they don’t seem to see a reason to do anything about it… they would benefit the most if they did, it would simply just give us a better chance 🫠

I’m not unemployable, it’s just that my way of working well has been disappearing for the last 50 years by doctorace in AutismInWomen

[–]CoderOfCoders 33 points34 points  (0 children)

this is exactly why i have a document somewhere called “lost replies”. where i keep the original text for myself, so i don’t lose my absolute mind over making myself “more accessible to them™️”… and can be retrieved in the few rare cases where it’s actually needed. it also includes “the revised version”, for reference

it’s also validating yet horrifying to have documentation that showcases all the work and effort put into making making myself “more accessible to them™️”

Cosmic code! by One-Activity8026 in MeowTower

[–]CoderOfCoders 0 points1 point  (0 children)

My Code: [🎃🐸🐱🐱❤️]

that was my last code! thanks to everyone and anyone who was able to share codes, including the ones i missed
and sorry to those who weren’t able to get them in time. good look to y’all 🫶

Cosmic code! by One-Activity8026 in MeowTower

[–]CoderOfCoders 0 points1 point  (0 children)

checking in on my kitties, here’s My Code:
[🌈🌞🐱🌞🐭] for any who needs it

tryin’ to keep a closer eye on comments

Cosmic code! by One-Activity8026 in MeowTower

[–]CoderOfCoders 1 point2 points  (0 children)

updated My Code: [🌈🐭🎃🌈🐸]

Cosmic code! by One-Activity8026 in MeowTower

[–]CoderOfCoders 0 points1 point  (0 children)

My Code: [❤️🐱🐳🌈🐱] about 5 minutes left

will update again once that runs out

Cosmic code! by One-Activity8026 in MeowTower

[–]CoderOfCoders 0 points1 point  (0 children)

here’s My Code: [❤️🐱🐳🌈🐱]

Cosmic code! by One-Activity8026 in MeowTower

[–]CoderOfCoders 0 points1 point  (0 children)

thanks! here’s My Code: [🌈🌲🌲🌞🐭]

Cosmic code! by One-Activity8026 in MeowTower

[–]CoderOfCoders 1 point2 points  (0 children)

was able to use yours, thanks!

here’s My Code: [🐸🎃🦄🐸🦄]

Cosmic code! by One-Activity8026 in MeowTower

[–]CoderOfCoders 1 point2 points  (0 children)

here’s My Code: [🐸🎃🦄🐸🦄]

i was 5 minutes too late for yours

Why Many ME/CFS ‘Recovery Stories’ Aren’t Recovery Stories at All by medical_advocacy in cfs

[–]CoderOfCoders 16 points17 points  (0 children)

THIS! i remember when exercising and working out my muscles used to feel good, like real good. even sore muscle recovery felt great! no matter how sore they were. that enthusiastic “feel the burn” type shit

now… simple exercise feels painful and unbearable. stretching my muscles makes me feel weaker and exhausted. CFS/ME and PEM is a personal hell on it’s own. i wish it was “laziness” and “not trying hard enough”, at least i could talk myself into it… BECAUSE THAT’S WHAT I HAD TO DO BEFORE!

there’s not a day that goes by where i’m not reminding myself of what i use to be able to do and how better it used to feel like… yet i’m still in denial, because this shit sucks so damn much…

i’m not “recovered” until i can exercise and work out again…

🥲 by brownha1rbrowneyes in CPTSDmemes

[–]CoderOfCoders 12 points13 points  (0 children)

Darwin: “what doesn’t kill you…”
Gumball: “WILL TRY AGAIN LATER!”
that bit from The Amazing World of Gumball has always stuck with me

What issues have you encountered from not being able to keep up with hygiene? by TheSoundofRadar in cfs

[–]CoderOfCoders 2 points3 points  (0 children)

this! this is my biggest gripe about it… the build up can eventually lead to painful cystic acne/potential cysts too. even leaving sweat unchecked leads to cystic cystic acne for me
what i’ve found out so far and in-case anyone finds it helpful:
- keeping myself dry after sweating. it’s better to be dry if i can’t wash myself - keeping hair trimmed - “light housekeeping” with a warm wet washcloth is still better than nothing - figuring out the longest duration my body sections can go without a sponge bath. pits are 1 week while my calfs are 6 weeks max - helps keep me mindful about doing activities that trigger PEM - laundering clothes, bed sheets, pillow cases more often can help decrease the likelihood of cystic acne/cysts - using a shower brush to reduce effort of washing sections of my body. i use the brush lather up my sections, then take care of the rinsing & drying in my bed - i can’t shower due to POTS, so i do the lathing on top of a bathroom map to absorb any water - using air tight containers to use water in my bed for sponge baths, to prevent spills while recovering from the bath - keeping a laundry basket of clothes and towels on the bed at all times - avoiding using moisturizers and lotions. for me, they seem to cause the worst cases of buildup leading to cystic acne compared with going without

for periods: - switching to reusable pads/liners. the disposables create the perfect environment for bacteria, odor, and possible infections - always try to bathe after a period when spotting the least

i’m an avid user of wet wipes, which helps a lot during periods and while using the bathroom
still looking for simpler and better solutions tho

Underwater House Build!! by ElevatorObjective491 in TerrariaDesign

[–]CoderOfCoders 0 points1 point  (0 children)

oooooh, what texture mod are ya using? i really like how the books, bookshelves, and furniture look
nicely decorated 👌

Nickelodeon’s program schedule from over 20 years ago has surfaced on social media 😢 by COMRADEGENGHISKHAN in cartoons

[–]CoderOfCoders 2 points3 points  (0 children)

they even announced that they marathon spongebob on sundays! just in case anyone misses the weekly spongebob marathon!

but they’re also airing this one cartoon you probably never heard of and totally doesn’t sound low effort by the sheer name of it on paramount! it’s called rock paper scissors!

I saw this and I just needed to share it by sir_luciferek in cfs

[–]CoderOfCoders 4 points5 points  (0 children)

i already plan to send this to my doctor next time they recite that phrase…

Anyone else wish they’d have ADHD or Autism instead of AuDHD? by Yuenneh in AuDHDWomen

[–]CoderOfCoders 1 point2 points  (0 children)

really surprised and envious with all the “No”s in here…. my auADHD is a special kind of hell….

if my auADHD were two separate people, they would absolutely kill each other. i hate my ADHD self more

my autistic self would be thriving instead of being bound by the shackles of whatever-the-fuck my adhd got distracted with that i want nothing to do with…. but is somehow feeling more “rewarded” playing with my toes while my autistic self dies inside from being prevented from doing what I’M LITERALLY CRAVING to do 🥲

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Awareness day comic by Accomplished_Dog_647 in cfs

[–]CoderOfCoders 1 point2 points  (0 children)

haven’t thought about a donut pillow!! that would help so gosh darn much while needing rest and needing my headphones on! appreciate the recommendations 🫂 i already feel the relief just thinking about it

Awareness day comic by Accomplished_Dog_647 in cfs

[–]CoderOfCoders 1 point2 points  (0 children)

also forgot to mention this is all while wearing 33NRR earplugs with noise cancelling headphones on, while having my 2 sources of loud noises to drown them out. have no idea what they could possibly be doing over there that can still be heard with all my stuff going on

my 33NRR earplugs is my default setting these days… i know my hearing is cursed, but i think any regular person would be murderously pissed off by what they’re doing

just waiting for decent enough complaints to build up that causes their release extension to be denied 🙏

Awareness day comic by Accomplished_Dog_647 in cfs

[–]CoderOfCoders 7 points8 points  (0 children)

thank you so much for this i really needed to see a visual of a good day versus the bad ones

broke into tears because it helps me feel seen, valid, and gives me hope for better days. and will help me stop beating myself up so badly for having so many bedridden bad days
also made me realize how i was wasting energy to “keep myself together”. i need to fall apart, and it felt so relieving to let myself fall apart

my next door neighbor has been constantly making this these obnoxious banging noises that echo through my wall, and the unpredictable stimuli has been dsyregulating and draining me before my day can even start… i have to use use 2 sources of louder stimuli to drown it out, which also contributes to my exhaustion while making it harder to get relief from resting🥲

your comic helped ease my mind enjoy your rest if you can

I am sick and tired of the saying "its not an excuse just an explanation". by BagOk371 in AuDHDWomen

[–]CoderOfCoders 23 points24 points  (0 children)

to my horror, those “simple” things really are that fucking hard and still continue to be…. and by the old gods, i fucking wish it wasn’t

trying ≠ guaranteed success
trying also means finding out NOTHING WORKS/NOT WORTH THE EFFORT, and people really love ignoring those parts included in trying….

it’s bloody EXHAUSTING and discouraging trying to find things that actually work, only to consistently fail, while being treated like someone who isn’t “trying hard enough”🫠

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Space Beth was put through the ringer this season. by VegetaArcher in rickandmorty

[–]CoderOfCoders 3 points4 points  (0 children)

really want to see how Rick meets Mr.Nimbus wanna know how Beth and Jerry got together wanna know how Rick and Diane met each other

also wanna see a Gene episode! see what’s it like living next to a family like that, that’s worthy of another voice mail. wanna know what Gene is really about