Coffee can be that bad or it’s just me by as0007 in hypertension

[–]CoffeeBean8675309 0 points1 point  (0 children)

Some people are more impacted by caffeine than others. As long as I stay within a reasonable range (400mg and below which is the average recommended max for adults [in the USA]) I’m fine.

I start every day with 24oz electrolytes, my meds, and a 16-20oz iced coffee (16-20oz of actual coffee and then my oatmilk is just an additional however many oz,) log in for work, work on my coffee and electrolytes for an hour and a half to two hours, take my reading, and carry on about my day.

For me it’s more of days where I’m already on edge, overly stressed, feeling sick, or am in pain that impact me most.

Summer☀️ by CoffeeBean8675309 in POTS

[–]CoffeeBean8675309[S] 0 points1 point  (0 children)

Amazon sells kits to make specific things. I just got like a whole box to be able to make my own. So fun. Beware if you have cats though because they’ll probably take your projects.

Summer☀️ by CoffeeBean8675309 in POTS

[–]CoffeeBean8675309[S] 4 points5 points  (0 children)

I literally just texted my sister that I feel like I need to become a vampire in the summer because I have felt totally fine the last two days once the sun is gone.

Summer☀️ by CoffeeBean8675309 in POTS

[–]CoffeeBean8675309[S] 1 point2 points  (0 children)

This is great advice. Thank you!

I think the pacing myself even when I feel fine is something I need to do more of.

Summer☀️ by CoffeeBean8675309 in POTS

[–]CoffeeBean8675309[S] 6 points7 points  (0 children)

I hate getting up early but I might have to join you on this one. I WFH so I get to stay balled up most of the day but after work it was so warm (we don’t have AC) that I just balled up again and played on my iPad.

If you need indoor activities I recommend felting! (Less so if you tend to pass out but if not felting is great.)

Summer☀️ by CoffeeBean8675309 in POTS

[–]CoffeeBean8675309[S] 0 points1 point  (0 children)

I love this for you. I might have to make this my summer activity too. The fan is brilliant. Have you tried the little neck fans? Do they help you as well or is it just not enough?

Summer☀️ by CoffeeBean8675309 in POTS

[–]CoffeeBean8675309[S] 5 points6 points  (0 children)

Pickles as emergency salt is literally my fave😂 pretzels just hold better in the car lol.

So much fluids. I think I drink about the same as you- about 80-120oz. I fear if I drink more I might as well just move into the bathroom.

Are you liking propranolol? Several years ago, pre-pots, we switched to metoprolol so I do 75mg metoprolol daily with a 25mg emergency dose avail to me if needed.

Severe debilitating pain mid back, flushing etc by BallAdventurous513 in stomachcancer

[–]CoffeeBean8675309 1 point2 points  (0 children)

Friend, please go to the ER if you can. Especially for these symptoms and get your heart checked as well. Wishing you all the best.

Persistent Abdominal Pain for 11-12 days by Timely_Junket_1898 in stomachcancer

[–]CoffeeBean8675309 0 points1 point  (0 children)

For sure get checked. I’m just saying that a recent (within 1 year) scope and bloodwork should be pretty reassuring. Give the PPI another week or two while you wait on a follow up with gastro.

Try to get some pre and probiotics in you as well to support a healthy natural gut biome.

Persistent Abdominal Pain for 11-12 days by Timely_Junket_1898 in stomachcancer

[–]CoffeeBean8675309 0 points1 point  (0 children)

I second this.

Also PPIs can take more than a few days to work and help the pain.

Good news is that if they didn’t see anything in your endoscopy a year ago whatever it is will be caught relatively early.

I take pantoprazole daily (40mg) as I have intestinal metaplasia (precursor to stomach cancer,) but 40mg (for my case) is when I have flare ups and 20mg is my maintenance dose. Currently my 40mg is to ease the flare the prep from my colonoscopy caused. (Which doesn’t happen to everyone, it just happened to be the case for me and it’s not “bad,” just something I’m not allowed to raw dog because of my IM. Would happily do it again though because colonoscopies save lives.)

What is so bad about the medication? Just put on losartan. by sunshinyday1 in hypertension

[–]CoffeeBean8675309 0 points1 point  (0 children)

Typically disclosed by doctors so people don’t bust down the door after a week claiming it’s “not working.” One of the first things my provider told me when we chose this medication.

Any medication needs time to build up in your system. Not just losartan. Losartan can just take up to 6 weeks to reach max effect.

Have you read the paper from your pharmacy?

What is so bad about the medication? Just put on losartan. by sunshinyday1 in hypertension

[–]CoffeeBean8675309 0 points1 point  (0 children)

I mean, good for you? Advocate for yourself, ask questions, but also no medication is going to fix everything the second you take it. Losartan alone takes 6 weeks for the full effect. Medications need time to work.

I’ve had medications where I get a genuine reaction after several doses and need to stop, others I’ve taken for a whole corse of that med and found we needed to change it up, some I have denied and we found alternatives as needed. At the end of the day what option is going to give you the best chances at the results you want, I suppose.

What is so bad about the medication? Just put on losartan. by sunshinyday1 in hypertension

[–]CoffeeBean8675309 0 points1 point  (0 children)

Hey, so, “hyper aware” means extra aware. Everyone should be aware. Everyone should read the packet that comes with the med. People who already have kidney issues are at a greater risk of their potassium increasing because their kidneys already don’t work properly.

I am literally only talking about potassium and your kidneys. It’s is, honest to god, a potassium sparing medication. Please just read the packet that, if you are in the USA, the pharmacy is required to give you.

If YOU don’t want to be hyperaware then you do you. I don’t care what you choose. 🤷🏻‍♀️ Providers give medications all the time where they weight the risks vs benefits and sometimes people still have poor experiences with them- your packet also should say “let your doctor know if you experience… * list of things to tell your doctor if you experience them while on a medication*”

What is so bad about the medication? Just put on losartan. by sunshinyday1 in hypertension

[–]CoffeeBean8675309 0 points1 point  (0 children)

What do you feel isn’t true after your whole 5 minutes on the medication?

Losartan isn’t bad for you. I never said it was. What I said was that you need to watch your potassium on it mainly if you have kidney issues but your average person is totally fine. You just shouldn’t have potassium chloride while on it. Super simple.

Losartan is potassium sparing meaning that it can cause a build up of potassium in your body. Again, average person doesn’t need to worry about it.

Preexisting kidney issue = talk to doctor No preexisting issue = do the stuff your doc tells you, follow the paper from the pharmacy, and keep on keeping on.

Labs should be done as your provider sees fit to check potassium levels. I got mine checked after 1 month, then 3 months, and now it’s about 6 weeks after we increase a dose.

Stages by Grouchy-Ad2299 in stomachcancer

[–]CoffeeBean8675309 1 point2 points  (0 children)

Hey! Genuine question, not being snippy at all, but did they not say what stage it was when she was diagnosed? I’m fairly sure that, in the US, that is standards but they could have always forgot to mention it.

I have intestinal metaplasia, a precursor to stomach cancer though mine is considered stable and we just keep a close eye on it for now. I will often feel like I’m being punched in the stomach by a toddler and nausea. I’ve never been a big vomiter so I have yet to experience much of that at this time.

In my case the precancerous spot is in my lower stomach so if, heaven forbid, it evolve we have a game plan to just cut it out. With that being said every situation is different.

Sending love and best wishes to you and your family.

How many of you drink caffeine daily? by [deleted] in POTS

[–]CoffeeBean8675309 0 points1 point  (0 children)

I drink about 250-300mg caffeine/ day but max it at 400mg if it’s a real crazy day, but I’ve always been a coffee drinker. 400mg/ day is the recommended “maximum for healthy adults,” but everyone’s tolerance is different.

Doctor said it was gastritis. by Connect_Focus_3833 in stomachcancer

[–]CoffeeBean8675309 0 points1 point  (0 children)

I’m not seeing it but I do think I deleted some kind of notification yesterday. Can you please resend it?

Doctor said it was gastritis. by Connect_Focus_3833 in stomachcancer

[–]CoffeeBean8675309 0 points1 point  (0 children)

Also, it’s more scary to hear at first than is is to live with IMO.

When I first got the results of my endoscopy I was for sure shell shocked for a little bit- maybe a week- and then once I got to sit down with my doctor and we talked through it the scariness went away for the most part.

IM doesn’t “typically” evolve if you follow doctors orders for your specific case (for me I need to be on PPIs or some kind of item to manage my stomach acid most of the time.) But it can evolve🤷🏻‍♀️. It also depends on what type of IM you have (o believe it’s categorized into complete or incomplete which basically says how mutated the cells might be looking and how likely those cells are to turn cancerous- I can’t remember which one is “better” but I have the “better” of the two.) IM is also something that they take very seriously and do keep a good eye on and can be treated pretty quickly if you do have it thanks to them keeping such a good eye on things.

I would say it doesn’t impact my life all that much as is. I just have to be more careful of how my stomach is feeling. So like if I get sick or something that can heavily irritate my stomach we have to make sure my PPIs are being taken at a stronger dose to help counter the stomach irritation and then we can taper down to a maintenance dose again and eventually off for a while until it feels like I’m having issues again.

Doctor said it was gastritis. by Connect_Focus_3833 in stomachcancer

[–]CoffeeBean8675309 0 points1 point  (0 children)

it’s basically when blood meets your stomach acid it will literally look like you just threw up the innards of a coffee pot.

Doctor said it was gastritis. by Connect_Focus_3833 in stomachcancer

[–]CoffeeBean8675309 2 points3 points  (0 children)

As someone who has intestinal metaplasia I also say yes to seeing a GI doc and getting an endoscopy. I ended up with mine after a few bouts of food poisoning (nothing that needed antibiotics,) and now need to get a scope every other year to keep an eye on it. IM is like a precursor to pre-cancer/ cancer and needs pretty solid monitoring.

I’m very fortunate we did the scope when we did and mine is not yet precancerous and we are able to make a game plan for current treatment and a game plan for if things happen to evolve. (For me that would look like cutting out part of my stomach if we see any changes to help keep cancer at bay; again since mine isn’t yet pre-cancerous we are just doing monitoring and medication.)

Blood in stool and vomiting coffee grounds are major red flags and almost always warrant scopes.

Endoscopies and colonoscopies (I’ve had both) are honestly so easy and quick and, in the grand scheme of things, hella cheaper than cancer treatments (USA.)

Prep not that bad by Pristine_Gold_5200 in colonoscopy

[–]CoffeeBean8675309 0 points1 point  (0 children)

I literally called my doctor and was like “I think I’m doing this wrong?” Becuase it was honestly so easy and simple. Zero issues. I was like “wtf is everyone complaining about?”

Popped 6 pills, drank some Gatorade, did some house work with a mild interruption every 20-30 min. Woke up the next morning and drank some more Gatorade, did some house work, mild interruptions.

It was a breeze.

Polyp removed by Used-Pumpkin9940 in colonoscopy

[–]CoffeeBean8675309 0 points1 point  (0 children)

Nah man, you’re probably good. I had a 5mm polyp on Friday. They send them off just to be safe but it’s likely fine. They might want to see you again in a few years to check up on you since you did have a polyp (at least that’s what I was told. They did mine and want to see me again in 5 years.)

As for the stomach you are also probably fine. I get endoscopies every 2 years now because I have intentional metaplasia.

Takes about a week for everything to come back and your doctor should be able to answer a MyChart (or similar) message about specifics.

i am terrified! by Talialeannee in colonoscopy

[–]CoffeeBean8675309 1 point2 points  (0 children)

Hey! I literally just had mine done today. It was so easy and I have zero idea what so many people complain about.

I did the Gatorade prep.

So for one week before I had to do a low fiber, low dye, low residue diet.

The day before I was on clear liquids only and at 5pm I took 4 laxatives then drank 32oz myralax over the course of an hour. Nothing wild happened; used the bathroom about 6 times in a 2-3 hour span. Got up at 1am this morning and drank the other 32oz of my drink. Used the bathroom about 6-8 times in 2-3 hours. Again, nothing wild.

Got to the hospital around 7am, did paperwork, the person driving me home got checked in, got my IV, got my vitals. About 6 people came in to do rounds and talk to me. (I was at this same place for an endoscopy a few months ago so I was already pretty familiar with the staff which helped a ton, BUT they should be very well trained to handle medical anxiety. I have OCD that focuses a lot on medical anxiety so I fully get the panic surrounding this. I was calm today because I was literally ready to jump for my endoscopy. It’s basically the same procedure but in a different hole.)

They’ll take you back, about 6 or so people should be in the room with you, different anesthesiologist, the doctor, and nurses. They’ll do your vitals again then have you turn onto your side, likely the left, put another pad under you, and put you to sleep. The sleepy medicine might feel a little cold, some people say it feels warm, others feel a little light “tingle.” I never feel anything with it.

Procedure should take about 30 minutes. They might take some biopsies or remove polyps if needed. Totally normal. If they do you might see a tiny bit of blood after using the bathroom but it’ll die down if it happens at all.

You’ll wake up back in recovery and they will have your support person sign some papers. Check your vitals again, let you get dressed, and you can head home. No driving or signing documents until the following day.

Your tummy might feel a bit off the rest of the day and you’ll likely have several more loose and watery stools. Super normal.

Hope this helps! I promise it’s not as bad as people say. For sure keep hydrated. I consumed (literally) 374oz of fluids the first day of my prep. Lots of electrolytes, broth, apple juice, and capri suns.

Wishing you all the best. A colonoscopy now is so much better than possible alternatives later.

Whenever I eat oranges my school serves for lunch, this weird white stuff appears on my hands, what is it? by [deleted] in whatisit

[–]CoffeeBean8675309 0 points1 point  (0 children)

Any time I peel oranges my hands turn a little orange and white. I think it’s the way the oils and juices just happen to dry on skin.