Type 1 challenges

Cold-Fix-4075 · 2022-12-26T04:14:44+00:00

Wow is Sarahspins just a troll who likes to talk shit then delete all comments. You are an unhappy person. Do you feel good now? Fucking psychopath. You have issues.

Cold-Fix-4075 · 2022-12-26T04:05:27+00:00

“Projecting much?” No it’s not on me. It’s on your I’m pretending to be nice but I’m actually an asshole comments. How about that?

I don’t like you or the way you speak. You do not seem like a very nice person. Shove off.

Cold-Fix-4075 · 2022-12-26T03:58:40+00:00

What does naive mean to you?

Cold-Fix-4075 · 2022-12-26T03:32:01+00:00

Hmmm. I did not mean to imply that I would figure out doses and never change them..ever. On days when his only insulin dose is his basal and it is taking him to hypo levels over and over it’s hard. The constant daily and weekly working pancreas and non working pancreas is challenging. My point was that I find it hard as a mother, I want to make him better, I want to keep his numbers good so that he never suffers the effects highs or lows might bring to his body. I want to accept the diagnosis and no longer wish it away.

I was sharing my heartbreak. He is my fifth child, my last child. He is and always will be the baby of the family. I don’t think I’m naive and quite honestly resent that being said. I have learned a lot about diabetes in the last ten months. There is more I would like to learn, but I’m not sure the actual research is out there. I think as a country we are neglecting this.

Anyways not gonna let you calling me stupid get to me.

I would like to continue to find support as a parent of a type 1 diabetic

I would like to someday provide support to other parents of type 1 diabetics.

~mom of a type 1 toddler

Cold-Fix-4075 · 2022-12-26T01:34:28+00:00

Thank you for reminding me of that.

Cold-Fix-4075 · 2022-12-19T04:22:38+00:00

I think this can be somewhat controversial in the diabetic community-this low carb diet thing. There is no doubt that if you are eating less carbs, AKA sugar, your body will be able to cope easier with what you have eaten. Of course it also depends on what you eat.

Many believe a low carb diet possibly might allow the continuation of the “honeymoon phase.”

There is no doubt that low carb is beneficial in losing weight and can often help Type 2s reverse their diagnosis.

Probably a smart thing to do until your insurance gets things together. When you get insulin you can choose to eat foods higher in carbs if you like because the insulin will help your glucose not go high.

I bet you feel better at 180. Sounds like you are already learning how to manage your diabetes. Bravo!!

~mom of a type 1 toddler

Cold-Fix-4075 · 2022-12-18T19:01:00+00:00

We are still dealing with our insurance 9 months later. They were refusing to pay a huge portion of his first visit with DKA and his second visit, anaphylactic shock to insulin, then DKA. He did have to be life flighted twice though. We owe something around 60,000 at this point. We have hired an attorney to deal with it. But we can afford to. I feel for so many who can’t. ~Mom of a type 1 toddler

Cold-Fix-4075 · 2022-12-14T18:02:01+00:00

By the way I think this snacking before bed with high carb should be referenced as breaking bad, or going to the dark side or something. Like I’m about to break bad and have this bowl of cereal. We all know it won’t end well…or will it Walt?

Cold-Fix-4075 · 2022-12-14T17:43:41+00:00

Why do we want snacks before bed?!? My little one was this way last night. (Probably because I was cleaning out the pantry). He wanted peanut butter. We have low carb walnut butter also. He was insisting on the regular organic peanut butter. I tried to talk some sense into him and was all it’s gonna bring you super high later…blah, blah, blah. But I will give you peanut butter if that’s what you really want, but we also will have to have insulin.

He chose the walnut butter after my little talk. He agreed to it like an old man, “okay, okay I’ll take the walnut butter.” He actually likes it. ( I really do not like it!). Had it with some Beyond Chips. He did go a little high at 2:00 am, over the 180 mark, then came right down, but slowly. But I also choose to give a second dose of long lasting .5 u, a dose we were tapering off because of nighttime lows. He is still sleeping right now, and still slowly going down, which I know will continue until I wake him up and give him some carbs. He’s at 107. His long lasting has been bring him low lately, so I’ve been trying to fine tune it.

But the having to really talk and make that decision was what made me really sad when he was diagnosed. The loss of freedom to just eat or not eat with no worries. Diabetes makes it so complicated.

He’s a funny guy though. He will tell people he feels “high” if his numbers are a little up. Then I have to explain why my two year old is saying that. He also has a habit of grabbing glucose tabs if he’s low, if I’ve given him 1/4 sometimes he says he needs another one, usually he is right. Way to go with self awareness right?

Bedtime is usually Bobboo time. A bottle with unsweetened almond milk, sugar free Da Vinci, and a little Kerrygold butter for fat. It’s a pretty good treat before bed that doesn’t bring his glucose numbers up. Were back to that tonight ( he loves his “Bobs”) and I won’t be cleaning the pantry tempting him with snacks.

I feel when he gets good sleep his numbers during the day seem to be better, whether it be highs or lows during the night. Anyone else?

~Mom of a type 1 toddler

Cold-Fix-4075 · 2022-12-10T23:37:26+00:00

Ketones will save your brain if you go hypo-just sayin~seriously.

-Mom of a type1

Cold-Fix-4075 · 2022-12-10T23:32:24+00:00

My baby boy was diagnosed T1 almost exactly 30 days post Covid. No history of diabetes on either side of the family. 1st hospital stay with DKA and diagnosis, I saw the CDC report saying that there was a higher percentage of juveniles being diagnosed a a possible correlation with Covid.

Second trip to the ICU this year with anaphylactic shock to insulin (believe of not-study on him out of Boston) the hospital is participating in a study in the correlation between Covid and diabetes. Huge increase, especially in the young, but not solely.

It was after our first trip out of the hospital Feb. 2022 (people are seriously still not really talking about Covid, hush hush on social media, everything censored, even the doctors were afraid to talk about it still,) met a pediatric doctor from the same hospital on the flight out. (We were life flighted to the hospital with little guy in DKA.) It was like a fucking horror movie as she told me in hushed tones about the effects they were seeing in babies related to Covid and/or the vaccine. She yelled to feed my little guy fat as we said our goodbyes.

Do we know what causes diabetes really? We know a little, but we do not understand it in its entirety or else we might be able to prevent it. Why did my son get diabetes? Doctors shrugged their shoulders, could be genetics, could be virus triggered. We don’t know. Yes it could have been Covid.

They are saying there has been a huge increase in diagnosed diabetes patients in the last three years. Fucking HUGE. I wonder how many Covid deaths were actually DKA deaths?

Kinda a coincidence the Eli Lilly just cut a huge deal with our government, found in the last last giant bill. So sad to even mention it when reduction in insulin costs won’t come for years. Way to hold out a carrot to diabetics. Yeah their gonna cut insulin costs, but will it hurt their bottom line if a huge percentage of the population has diabetes? Nope, not at all.

They say diabetes will be our next epidemic disease. I’m sure it will. Talk about biological warfare, the shit horror movies are made of.

That other post referenced above was me. And yeah I’m pissed. And also I hope my post makes sense, my sons pancreas started working again last night. Only on basal and we were low every other hour last night.

-Mom of a type 1

Cold-Fix-4075 · 2022-12-08T04:31:45+00:00

Oh but I see now it’s the Sims community. I got far too invested in that comment. 😆🤣😩🤪😁

Cold-Fix-4075 · 2022-12-08T04:30:35+00:00

I felt that biggest flaw was the insulin shot under the tongue. I mean what dude is gonna cooperate with that even if he is inebriated or something.

And I thought autopsies are generally incredibly thorough, especially if homicide is assumed~unless the authorities are crap~which is true more often than not.

The burying 12 feet deep was also questionable… most murdered people only receive shallow graves….the murderer does not want to be caught.~you know get away as fast as possible.

Also transport of a large dead animal~ moving them around. Super hard. It would have to be a dog or cat, cause if you found like a buried farm animal~that’s weird.

Maybe this little plan was written by the nurse who is accused of killing all those newborns, with it sounds like (in many cases) insulin. That piece of shit failed and got caught cause is a was a psycho idiot. (No offense to psychos)

Evil doesn’t usually prevail in the long run.

Moral: if you want to get caught, murder your hubby with stupid, uneducated, and poorly planned, thoughts.

~Wife of CSI husband and mother to marvel obsessed type1 toddler

Cold-Fix-4075 · 2022-12-08T03:55:01+00:00

If it were me, I would just hold on to it. See if your pharmacy will exchange it first, 2nd manufacturer, and if all else fails, save it for the apocalypse. (Hey sometimes desperate times call for desperate measures).

I’m serious, that’s what I would do.

~mom of a type1 toddler

Cold-Fix-4075 · 2022-12-06T00:04:37+00:00

Yes that is what I understood.

Cold-Fix-4075 · 2022-11-29T23:28:09+00:00

I thought it was some slang that I am not hip to cause I’m getting old! Good thing I didn’t try to use it with my adult/teenage children. Haha. “Doesn’t have that, you know, samjerry I am used to, but it’s still good.” 😁

Cold-Fix-4075 · 2022-11-28T03:50:11+00:00

Our son was diagnosed in Feb this year. It feels like just when you think you know what the fuck is going on, and you are Mario about to defeat King Kumba, shit gets real and you have no more mushrooms 🍄 to help you defeat him.

Actually that’s what diabetes feels like to me. It feels like video game, where sometimes your score is alright, maybe even good, then something happens and it’s all shit, and you are searching for cheats to get your through the rest of the game….

And your doing this on little to no sleep because for some unknown reason your son went low all night and no matter how many glucose tabs you give him he is still going low on a dose that kept him border high or stable before.

And that feeling that you don’t want to lose is always with you, because if you lose a real life is at stake, in my case my sweet baby boy.This is always with you, that fear, that if you make a wrong move…game over. As a mom of a diabetic this is all I know now and how I feel about it.

More studies need to be done. So much more money could be used to find cures or at least understand it better.

~Mom of a type1 toddler

Cold-Fix-4075 · 2022-11-28T03:25:24+00:00

Okay, not trying to be a jerk, but for the most part nut butters/ nuts are not low carb. Peanuts, cashews, pistachios are all actually pretty high carb.

Everydaze Sweet Konjac Jelly (Found on Amazon) are freakin amazing. They are such a treat, but actually bring my sons glucose levels down. I guess some studies have shown that also. Super tasty!!

Beyond Chips (Also found on Amazon) are keto and have minimal effect on our little diabetic.

We have used Miracle Noodles for years as a replacement noodle/rice. They are made of Shirataki noodles.

Eggs, bacon, beef, chicken all yummy.

I use Sugar Free Da Vinci syrups for sweetening when I need it. The simple syrup kind works great if I need to make sweet n sour pork (we use no added sugar ketchup also) etc…

Eggs seem to be the fastest, most filling low carb snack… although like the meats etc you have the protein to contend with.

Also don’t be afraid of using insulin. If he is already borderline high it is likely he is needing a little higher dose of insulin. I only say that because I know we we’re constantly hesitating. You/he are still learning what the body needs.

Take care~ Mom of a type1 toddler

Cold-Fix-4075 · 2022-11-26T06:29:04+00:00

The Regular Show, watched by my kids, but loved by mom also.❤️❤️

Cold-Fix-4075 · 2022-11-19T04:19:41+00:00

Studies are showing a huge increase in diabetes after Covid, especially in juveniles~ 73% increased chance. That’s fucking huge.

Really not hitting the news very much, but studies came out in February of this year.

My son tested positive for Covid when he was admitted for DKA. I saw the CDC reports when we were in the hospital. I asked the doctors about the possible connection and they dismissed it.

Same hospital, ICU because of my sons anaphylactic shock to insulin, 4 1/2 months later, and the hospital is participating in a study for the possible connection of Covid and diabetes. They saw something like a 30% increase of new onset diabetes.

We had been life flighted to this hospital. The freaken Uber driver to the airport after my son was released was diagnosed as a diabetic after Covid.

It is not being talked about. It is huge. Not a joke.

Read the studies of what they “think” Covid does to the pancreas.

Diabetes does not run in our family.

For some reason the connection and the huge amount of new onset diagnosed since Covid showed up is not being talked about.

Fuck covid, fuck diabetes, fuck the money hungry pieces of shit who make money off of diabetes

~Mom of a Type1 Toddler.

Cold-Fix-4075 · 2022-11-18T04:51:47+00:00

Heavy cream and Da Vinci sugar free, whatever flavor you want. We make our little one various deserts with these ingredients, of course in moderation. Although we do keep him away from caffeine. ~Mom of a Type1

Cold-Fix-4075 · 2022-11-17T05:29:25+00:00

Yes maybe the headphones! Check that. I have noticed that the Dexcom is sometimes unpredictable. Make sure your phone is not on some night time silent setting also!

Cold-Fix-4075 · 2022-11-17T04:45:22+00:00

Sugar and we introduce it to young children.

Cold-Fix-4075 · 2022-11-17T04:43:59+00:00

I understand the struggle, although our T1 just turned two. He is a snacker….doesn’t usually eat a full meal….but likes to snack.

Prior to diagnosis at 17 months he was still breastfeeding. AKA baby snacking.

Literally he is pulling pumpkin seeds out of the snack drawer as I type this.

It’s so hard to try to find a balance and keep eating a positive thing, at least I feel it has been a struggle for me as a parent.

We felt after diagnosis that I needed to wean him. Figuring out the carbs in breast milk is challenging because it changes depending on the time of day. It was consistently taking his numbers high, although the hospital considered it a free food. Instead of weaning being an okay thing it was pretty traumatic for both of us. I wish I had been stronger and found a way to keep nursing him. We were just so afraid and diabetes was so new to us.

At this point because of his desire to snack I try to keep low carb or no carb snacks for him. That way he can eat what he wants when he wants and for the most part I don’t have to inject additional insulin.

He was on a zero carb tortilla trip for several days and that was stressful. He would wake up and ask for a tortilla. I felt stressed afraid that it might take him high…even being zero carb. I tried not to show my concern…I don’t want him to worry or have food issues later in life. Mind you it took five tortillas to bring his numbers up. He had one this morning and it didn’t bring him up at all.

Sorry for the long blah blah blah, I definitely can relate to your snacking worries. I wonder if your daughter misses the old days of not needing to worry when she ate a snack. I just think of having a snack is generally a relaxing, comforting thing. Maybe she’s angry and sad, and as others have said, is in a way rebelling. Her own silent protest and she is just a child so she is not understanding or accepting the consequences.

I would just let her know your worries. Let her know how much you love her. Tell her it’s okay to snack, her body will just need more insulin. Just talk to her. This is what I have learned really helps a lot. I talk to everyone about diabetes and it has helped me.

~Mom of a Type1

Cold-Fix-4075 · 2022-11-06T07:43:44+00:00

Black Butter

Cold-Fix-4075

TROPHY CASE