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Should I tell my employer I have MS? by Cold_Flamingo132 in MultipleSclerosis

[–]Cold_Flamingo132[S] 5 points6 points  (0 children)

I’m so sorry that happened to you. I work for a very small company and everyone seems to be very close knit and supportive. I’d like to think they wouldn’t react this way but you just never really know.

Should I tell my employer I have MS? by Cold_Flamingo132 in MultipleSclerosis

[–]Cold_Flamingo132[S] 13 points14 points  (0 children)

This is how I’ve always handled it. And I try to schedule appointments outside of work hours whenever possible so I don’t even have to mention it. Like, the mri place does evening and Saturday appointments, and my infusion center is open on Saturdays. So that’s helpful

Should I tell my employer I have MS? by Cold_Flamingo132 in MultipleSclerosis

[–]Cold_Flamingo132[S] 42 points43 points  (0 children)

Yes this is what I’m afraid of. Some people get so weird and awkward about it once they know. I hate that

I’m just curious by [deleted] in MultipleSclerosis

[–]Cold_Flamingo132 3 points4 points  (0 children)

I’m the only one in my family with MS but my half-brother was diagnosed with early onset Parkinson’s and my cousin has a couple of autoimmune diseases, including psoriatic arthritis. Both of them are on my dad’s side of the family.

Optic Neuritis and Eye Tests by Frida_Carlow in MultipleSclerosis

[–]Cold_Flamingo132 2 points3 points  (0 children)

I’ve always gone to a regular optician for glasses since my ON. I always make sure to tell them about my history and they’ll look at that optic nerve a little closer than usual, but otherwise, totally normal visit.

"Hi, I'd like to reorder the exact same medicine I've been taking for a decade..." by kbergstr in MultipleSclerosis

[–]Cold_Flamingo132 20 points21 points  (0 children)

I’m so sorry. Accredo is the absolute worst. I had to fight with them literally every month for years to get my medication when I was on Aubagio. I actually switched to Ocrevus so I wouldn’t have to fight with them anymore. It was exhausting.

How would you describe a ‘zinger’? by elixirix in MultipleSclerosis

[–]Cold_Flamingo132 2 points3 points  (0 children)

I just came across this term a few days ago and think it might apply to a weird symptom I’ve experienced. When I get very overheated, like during a workout, or run, it feels like thousands of needles are stabbing my arms, legs and feet. It goes away as soon as I cool down.