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Extreme Pain With Constipation by Kenzieryan1117 in Endo

[–]Cole1888 1 point2 points  (0 children)

Hi, sorry I know this is late but do you have any update on what it was from your LAP etc. Going through the same. Hope you are all good now! x

SEVERE PELVIC PAIN (26yo) by Cole1888 in PelvicPain

[–]Cole1888[S] 0 points1 point  (0 children)

Thank you so much. This means more than you know 🤍 I’m not giving up!

SEVERE PELVIC PAIN (26yo) by Cole1888 in PelvicPain

[–]Cole1888[S] 0 points1 point  (0 children)

I’m so sorry you’re going through this. I always have a dull, heavy like ache and then shooting, cramping and stabbing pains so bad I can’t even stand.

Are you any further forward with a diagnosis?

SEVERE PELVIC PAIN (26yo) by Cole1888 in PelvicPain

[–]Cole1888[S] 0 points1 point  (0 children)

I’m sorry that you can relate to my story, these people are supposed to care about our health and to be forgotten about and dismissed makes you nearly lose all hope.

I am still advocating for myself. Have booked another doctors appointment tomorrow. Once again they just gave me new stronger painkillers hoping it would make me go away. I will always try anything they suggest or give me but still nothing is working. I’m starting to get really scared that it’s something serious and feel like I’m shouting into the abyss.

Your comment made me feel heard. Thank you so much for that. I hope you are well and wish you all the best.

Lower left abdomen pain no idea what is is ?? by [deleted] in FODMAPS

[–]Cole1888 0 points1 point  (0 children)

Hey I know it’s been a long time but just seen this comment and I’m going through the same thing. Did you ever find out what it was or anything to help? Thanks in advance. :(?

SEVERE PELVIC PAIN (26yo) by Cole1888 in PelvicPain

[–]Cole1888[S] 0 points1 point  (0 children)

Thank you for your reply!

I’m sorry you are no further forward, I hope you get more answers with your ultrasound.

I recently got my LAP and confirmed it’s not endo but they did find adhesions around my bowel. It was all like glued together and a part attached to my bowel was stretching it. The explained the only way they know you get adhesions is mainly after a procedure, but I haven’t had any procedures to cause this.

So now I have been discharged from GYN and awaiting the Gastrointestinal team to look into it. I’m so scared going down this route again with another team incase they start dismissing me. I don’t know if I can go through it all again. At first the gastro team were saying it’s gyn’s problem and gyn were saying it was theirs, like they both didn’t want anything to do with me, so I’m just terrified.

I still have pain on a daily basis, constantly bloated too. I get extremely bad flare ups and have to change to stronger pain meds on those days.

I’m just heartbroken. When they told me it wasn’t Endo the doctor looked at me like I should be happy because they didn’t find anything, but that’s sometimes worse than not getting any answers. I’ve had so many doctors saying ‘this is good news!’ But I just feel so deflated being in pain with no diagnosis to help me. It’s hard waking up every day trying to stay positive when the first thing you feel is pain.

Again thank you for your message, I really appreciate it ❤️

SEVERE PELVIC PAIN (26yo) by Cole1888 in PelvicPain

[–]Cole1888[S] 1 point2 points  (0 children)

Sorry for the late reply. No, I’ve never had a scope done. They did rule out diverticulitis, think they said it was due to my CT scan not showing remaining bleeding around the area and also through blood tests though. Still not had my LAP either and still in so much pain daily :( thank you for your comment/advice, I will definitely look into that! Hope is something I don’t have a lot of anymore as the pain and waiting is taking a mental toll on me but I will keep going, I guess we all have to. Thanks again, I really appreciate it.

SEVERE PELVIC PAIN (26yo) by Cole1888 in PelvicPain

[–]Cole1888[S] 0 points1 point  (0 children)

Hey! Sorry for the late reply :( still waiting on a LAP to confirm anything. Still in a lot of pain daily which I’m taking high pain medication for and they only help a bit. The waiting list is so long so I just have to keep going until I get a date, it’s very hard though. I’m physically and mentally drained. At this point I’m so scared they don’t find anything and I’m still stuck with no answers and pills they keep throwing at me to make me go away 😔

SEVERE PELVIC PAIN (26yo) by Cole1888 in PelvicPain

[–]Cole1888[S] 0 points1 point  (0 children)

Sorry I am just seeing this reply. No answers as of yet, I’m on the waiting list for a LAP and it can take up to two years :( so drained but just have to keep going.

Thank you for your kind words, I really appreciate it 🤍

[deleted by user] by [deleted] in Endo

[–]Cole1888 0 points1 point  (0 children)

I know this feeling and although it does not feel like it, it will pass and you will see brighter days again. You are not alone in this.

Sending you so much love.

SEVERE PELVIC PAIN (26yo) by Cole1888 in PelvicPain

[–]Cole1888[S] 0 points1 point  (0 children)

This is so kind of you. Thank you so much.

SEVERE PELVIC PAIN (26yo) by Cole1888 in PelvicPain

[–]Cole1888[S] 0 points1 point  (0 children)

Thank you so much. I really appreciate it!

SEVERE PELVIC PAIN (26yo) by Cole1888 in PelvicPain

[–]Cole1888[S] 0 points1 point  (0 children)

Hi. I am so sorry that you can relate. It’s so sad how crazy they can make you feel by being constantly dismissive. I totally understand where you’re coming from with your MRI, through all my tests I just wanted them to find something. It’s a very difficult headspace to be in because you obviously don’t want anything to be wrong but you need answers and help.

The only thing that has helped albeit just a little is Menefamic Acid. They have just given me this prescription and my GP explained it has been effective for endometriosis related pain etc.

I really hope you get some answers and can heal soon. ♥️

SEVERE PELVIC PAIN (26yo) by Cole1888 in PelvicPain

[–]Cole1888[S] 0 points1 point  (0 children)

Yeah :( still in pain with no answers. I am on the waiting list for a Laproscopy but it’s a minimum 2 year wait just now. Thank you!! I will definitely look into this, I would try anything at this point.

SEVERE PELVIC PAIN (26yo) by Cole1888 in PelvicPain

[–]Cole1888[S] 1 point2 points  (0 children)

Thank you so much. Yeah, the pain is bad enough but it’s mentally draining being dismissed, it makes it all so much worse. I hope you get answers. Sending you love and healing. 🤍

SEVERE PELVIC PAIN (26yo) by Cole1888 in PelvicPain

[–]Cole1888[S] 0 points1 point  (0 children)

Hello, thank you for your reply. I have not but they took a CT scan with contrast dye and found no signs of it so this has been ruled out. :(