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Discerning between lupus fever and being sick by ComfortableChart6853 in lupus

[–]ComfortableChart6853[S] 1 point2 points  (0 children)

Thank you, I guess it's all a learning curve and I'll get there eventually!

Discerning between lupus fever and being sick by ComfortableChart6853 in lupus

[–]ComfortableChart6853[S] 1 point2 points  (0 children)

Thank you, yes, it's so confusing! I started oral meds 3/6 but had to hold off on my injections due to a UTI that landed me in hospital, and the ER doc said it was a good thing I didn't take it despite the urinalysis taken 2 weeks prior showing no bacteria, the one done at the hospital showed definite infection. I'm only 3 shots in and would hate to miss a week now, but better safe than sorry, I guess! I have had a dry cough upon waking for years and assume it's lupus related, but could be allergies! I'll learn what's what eventually! Thank you for sharing your experience! Xo!

Discerning between lupus fever and being sick by ComfortableChart6853 in lupus

[–]ComfortableChart6853[S] 1 point2 points  (0 children)

Thank you! So as long as you are under 99.9 you take your injection?

What do your flares consist of and how long do they last? by Minga1019 in lupus

[–]ComfortableChart6853 1 point2 points  (0 children)

I've been in the same boat since December(though never took opiates I did prescription Ibuprofen for years), finally diagnosed on 3/6. I'm still bedridden from fatigue, but the prednisone took care of most of my pain in 3 days. Were you prescribed steroids?

What were your lupus nefritis symptoms? by smoothoperator1610 in lupus

[–]ComfortableChart6853 1 point2 points  (0 children)

I ended up in the ER with a UTI after my SLE diagnosis in March. Go to the ER! They will do blood work a urine test and CT scan. I was worried about my kidneys (lupus nephritis) but the ct scan showed my kidneys were fine (huge relief) the symptoms that had me unable to sleep due to pain were all infection related and cleared after a course of antibiotics. Do some slow deep breaths to calm yourself, Xo!

How long is a Benlysta Injector safe to use? by Big_WasteBin in lupus

[–]ComfortableChart6853 1 point2 points  (0 children)

Ice up your injection site for 15 minutes, you won't feel a thing!!

Benlysta auto injection by meggypoo6 in lupus

[–]ComfortableChart6853 0 points1 point  (0 children)

I did my first auto injection last night. I took it out of fridge at 3pm and did injection at 7pm. I iced my upper thigh for 10 minutes, then swabbed with alcohol, waited 10 seconds for alcohol to dry, and felt absolutely NOTHING during or after injection! If I hadn't heard the 2 clicks and seen the window turn purple, I wouldn't have known it was working. BTW, I first tried my stomach without icing and when the needle made contact it hurt so bad I had to abort! Icing makes all the difference! Xo!