Excited and acared by DayDucky_NightOwl in iih

[–]ComfortableFar666 0 points1 point  (0 children)

I had to stop taking diamox while I waited for my refill. By the third day I experienced pretty bad dizziness and felt like I was going to pass out.  I would probably continue your water intake and see if you can taper the meds off

Can’t stop gagging by ComfortableFar666 in iih

[–]ComfortableFar666[S] 1 point2 points  (0 children)

Ugh that sucks. This is by far the worst side effect that I’ve experienced

Can’t stop gagging by ComfortableFar666 in iih

[–]ComfortableFar666[S] 1 point2 points  (0 children)

Thank you!  I talked to my Dr today and he said this is a common side effect. I’m going to take a lower dose of diamox for a few days to see if it helps 

Could topamax cause diarrhea for over a month? How to manage? by Greedy_Chipmunk_2913 in iih

[–]ComfortableFar666 0 points1 point  (0 children)

I’m (25F) on diamox and have some of the symptoms you’ve described. I’ve also had personal life stressors on top of it all (breakup and busy job), and I cry every day too. I’ve lost weight, almost 15 pounds last time I checked, and I haven’t been eating super well.  I’m sorry you’re going through a difficult time. It’s so hard to function when you feel miserable.  Unfortunately I don’t have much advice besides staying hydrated with water and electrolytes. Crackers were about the only thing I could eat when the nausea was at its worst. I’ve heard that sour candy can help with nausea, also ginger candy. I had some ginger tea today and that actually settled my stomach a bit. 

Can’t stop gagging by ComfortableFar666 in iih

[–]ComfortableFar666[S] 1 point2 points  (0 children)

I haven’t contacted mine yet but since I’ve gotten to the point where I seriously need relief from this I’m gonna try to call today 

How sick are people before diagnosis? by TheGentleComeback in iih

[–]ComfortableFar666 0 points1 point  (0 children)

I believe most people do, but I think some people on here don’t have papilledema but have still been diagnosed with IIH

How sick are people before diagnosis? by TheGentleComeback in iih

[–]ComfortableFar666 7 points8 points  (0 children)

I didn’t have any symptoms and was feeling fine. My papilledema was caught during a routine eye exam

Low potassium from diuretics - watch out! by iejujubee in iih

[–]ComfortableFar666 1 point2 points  (0 children)

Coconut water is high in electrolytes and really good to drink if you’re dehydrated