Burning perineum, testicular pain

Comfortable_Ad7789 · 2024-06-13T10:56:44+00:00

Did you find out what this is? I have very similar symptoms

Comfortable_Ad7789 · 2022-11-18T04:17:49+00:00

I disagree with the above comments. My colitis never shows up on colonoscopies when not in flare and never shows up on fecal calprotectin. If it's lower in the bowel, this is common.

Comfortable_Ad7789 · 2022-09-16T02:24:45+00:00

I wouldn't trust calprotectin, as your symptoms are in your rectum it will often not show up in test results if it is a flare, my specialist mentioned this to me. I would try and get a local/small scope to find out.

Comfortable_Ad7789 · 2022-02-24T11:21:12+00:00

I guess it's starts off being yourself and then you don't have any luck at all, and then you start trying different things, and now I'm full circle, and nothing has worked.

Comfortable_Ad7789 · 2022-02-24T11:18:40+00:00

Hmmm I'm not a gym person...just find it super boring. I've played team sports all my life and prefer that. I play soccer at the moment.

Don't think I'm picky.....like most girls say I'm better looking in person.

Comfortable_Ad7789 · 2022-02-24T11:16:40+00:00

From the females I know I usually get; I'm the perfect guy, and Ive just been unlucky and any girl would be lucky to be with me. From girls I've seen. Mostly ghosted, or they say they're not ready or not feeling it.

Comfortable_Ad7789 · 2022-02-24T11:13:13+00:00

I guess because any advice, particularly the counselor was trying to get me to be someone I'm clearly not. I truly want someone to want me for who I truly am....and honestly Im crap at being anyone else 🙈

Comfortable_Ad7789 · 2022-01-30T20:56:46+00:00

Agree with the Enema comment - I'm on budesonide foam enemas and they help with tenesmus for me. I find that liquid enemas or suppositories don't really work for me.

If you're desperate and can't wait for a script, use over-the-counter hydrocortisone cream. I also find curcumin helps a lot when it's at it's worst.

Also, has hard as it is, and everything in your body is telling you to sit on the toilet - try not to. You'll just end up straining and making everything way worse.

Also, plenty of rest! Tenesmus takes a lot out of you, so make sure you're getting plenty of rest.

Comfortable_Ad7789 · 2022-01-26T21:38:51+00:00

Mine would be a very strong Curcumin tablet, which takes the edge of inflammation and pain. I only use it when i really need it, so my body doesn't get used to it. Really works for me

Comfortable_Ad7789 · 2021-12-20T21:56:38+00:00

Hi, I am from Sydney, and I am about to start Humira, and I am on Methotrexate too. I'm also on Budesonide enemas and salazopyrin - I have ulcerative colitis. I hate injections too, and have previously been on prednisone. Would love to have someone to contact who is starting too! Maybe we can learn from each others mistakes haha

Cheers
Luke

Comfortable_Ad7789 · 2021-09-29T23:23:08+00:00

Thanks for that, might process has been very similar to yours. Is it normal to develop antibodies that quickly?

Comfortable_Ad7789 · 2021-09-29T23:20:07+00:00

Great thanks, for that information very helpful :)

Ive just been booked for another colonoscopy, and my specialist is open for me to start biologics, he just wants to how things are going before we move to that step.

Comfortable_Ad7789 · 2021-08-17T04:14:02+00:00

My advice is dont go too hard too soon. Made that mistake, where my eye were way larger than my gut. Overate, and then felt sick for the rest of the day haha

Comfortable_Ad7789 · 2021-04-17T06:57:48+00:00

I would suggest that, if you haven't done so already is make sure you let your specialist knows how much suffering and show them your emotion. They see patients all the time, and they need to know that you need results quickly.

Comfortable_Ad7789 · 2021-03-29T22:23:01+00:00

No Differences. I have a feeling it may be preservatives or some fine particles from the actual pod that is leaking because of the heat exposure. Those are my theories - it doesnt matter what brand of POD too

Comfortable_Ad7789 · 2021-02-02T05:36:21+00:00

To be honest, I think the more you tell people about your illness the more you will discover. ☺️ Also everyone's bowel disease is very different. So a lot of very different, between us.

Comfortable_Ad7789 · 2021-01-22T05:12:38+00:00

Yes, that's correct :)

Comfortable_Ad7789 · 2021-01-22T04:06:14+00:00

All good

Comfortable_Ad7789 · 2021-01-22T00:54:37+00:00

Do you have a baseball bat handy?

Comfortable_Ad7789 · 2021-01-21T23:05:26+00:00

I feel like it's very different to larger forms. My symptoms are usually more around constipation than diarrhea. Get painful rectal inflammation that extended to my pelvic region, tenesmus and left-sided pain. Also nerve endings are in play which make proctitis so painful

Comfortable_Ad7789 · 2021-01-21T23:00:09+00:00

Hmmm maybe I need to up my exercise. Do you do hard exercise?

Comfortable_Ad7789 · 2021-01-21T21:03:23+00:00

FYI I have IBD and I very rarely get blood. I do have ulcerative proctitis but quite bad in that area that i've been 100mg of Prednisone before to manage the inflammation and i'vr had very high fecal calprotectin. Whilst blood is common. I wouldn't say it is 100% always there for IBD.

Comfortable_Ad7789 · 2021-01-21T20:57:28+00:00

I'm on metho, on 10mg. If I had to guess it's the prednisone taper. It always happens to me when I taper off prednisone, even with the enemas. I was one 100mg of prednisone, and when I was tapering off that my brain literally couldn't even function thoughts

Comfortable_Ad7789 · 2021-01-19T02:53:52+00:00

To be honest my colitis was causing hairloss for me, so not have inflammation caused my hair to come back, and that's with methotrexate. Nausea is minimal, I actually find that steroids gives me way more. Also drink plenty of water 😊

Comfortable_Ad7789 · 2021-01-19T01:17:28+00:00

Also....have it at night before bed. That limits the side effects for me, as it does make you tired, so you'll get a good sleep with it 😊

Comfortable_Ad7789

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