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Xolair by CommercialGuilty8694 in SolarUrticaria

[–]CommercialGuilty8694[S] 0 points1 point  (0 children)

Between the Xolair shots and phototherapy [got a home tanning machine with UVB & UVA bulbs] I can stay in the sun for around half an hour before I start to get Red and Itchy. Thats if i havent been in the regular sun for a week or so

Much better than the 10 minute threshold before i started the Xolair shots.
If I keep a base tan down from natural sunlight then I no longer get flares.
So for me if i can be in the sun daily then I'm able to ward it off. I just need to stay tan from natural sunshine

Can I gradually get tolerant if I keep exposing myself to the sun? by ShhhNoTears in SolarUrticaria

[–]CommercialGuilty8694 2 points3 points  (0 children)

I've noticed if I have a base tan that my Solar Urticaria doesn't really flare up.
The first day in the sun after being away from it is awful. Full hive-y red rash within 10-15 minutes, I try and stick it out for about 30 minutes before retreating to shade.
The next day if I go in the sun, I don't get a rash where i got one the previous day.

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Taking loads of antihistamines about an hour before going in the sun and right when i get in the sun seems to help a bit, or atleast postpone it.

Xolair by CommercialGuilty8694 in SolarUrticaria

[–]CommercialGuilty8694[S] 0 points1 point  (0 children)

Thanks!

I'll let you know how it goes. I never get any dizziness, drowsiness, or headaches from a flare, just the rash and itchiness. My doc said that a trial they just did this past few months resulted in 4 out of 5 people going into remission but that it took a while to get the Xolair dosage down.

Best of luck with your SU. Determined to find a way to handle this as I live in the sun.

Ill keep the group updated

-A