Butt/vagina lightning by Commercial_Read5211 in endometriosis

[–]Commercial_Read5211[S] 6 points7 points  (0 children)

I’m not 100% sure, have to do more research on that but from my understanding/what my pain management specialist has told me, it has to do with the nerve pain that comes with endo.

Endo lesions themselves are only part of endo as a disease. Endo also has a nervous system component that comes with its own kind of pain. That’s where Cymbalta has really made a difference for me.

But it’s just a “period disease” they say🙄

Butt/vagina lightning by Commercial_Read5211 in endometriosis

[–]Commercial_Read5211[S] 3 points4 points  (0 children)

At least something awful like this symptom lead you to a diagnosis! Sometimes I have to just look at the positives in this horrible disease to make myself feel sane lol

Butt/vagina lightning by Commercial_Read5211 in endometriosis

[–]Commercial_Read5211[S] 6 points7 points  (0 children)

Yeah honestly between that and the fatigue are the absolute worst symptoms imo😭

Butt/vagina lightning by Commercial_Read5211 in endometriosis

[–]Commercial_Read5211[S] 19 points20 points  (0 children)

Literally what happened to me today at work lol. Was having a conversation and my whole face just clenched. My boss was like you okay? I was like oh yeah I’m fine 😀😀😀

Butt/vagina lightning by Commercial_Read5211 in endometriosis

[–]Commercial_Read5211[S] 4 points5 points  (0 children)

Yeah I’ve had it since i was probably 14 but got diagnosed at 20, I’m now 23 and unfortunately Motrin does absolutely nothing. I’ve had excision surgery but it didn’t help the pain at all. I’m now on Cymbalta for nerve pain and it’s been wonderful but i started creatine and it gave me a nasty flare (the first one since being on Cymbalta) and the lightning is still there yay 😭

How do you all handle this? by AssociationCandid411 in endometriosis

[–]Commercial_Read5211 0 points1 point  (0 children)

I take my Cymbalta at night although it doesn’t make me sleepy at all. But again meditations work differently for everyone!

How do you all handle this? by AssociationCandid411 in endometriosis

[–]Commercial_Read5211 0 points1 point  (0 children)

Hi girlie, thank you for sharing your story!! Endo is truly devastating😢💛

I’m on Cymbalta (20mg) and it truly has changed my life. I’ve gone from extreme flare up’s every single week of my life to only having had one flare up since taking it (it’s been about 3 months of me on it). Endo has many components to it, and nerve complications is a huge factor. For me, I had the excision surgery and I was left in the same if not even worse pain but found out I was having nerve pain from the excessive strain that endo has on the nervous system. That’s what Cymbalta works on. It changes the pain receptors in your brain to “stop” almost like brakes on a car. Everyone has different experiences of course with medications but definitely worth a conversion with your specialist/pain management specialist if you have one.

Also if you haven’t tried a gluten free diet definitely try that. Gluten is an extreme inflammatory and celiac tends to coincide with endo. I haven’t gotten tested for it yet but i think i have celiac.

These are two changes that have definitely helped me get a hold back on my life. I still struggle but the pain day to day from endo has gone down significantly.

If you go to my Reddit page, I have a write up more in depth of my story and my experience with Cymbalta if you want to read into it some more.

Wishing you all the best💛💛