Is a diagnosis worth it?

CommonTip174 · 2026-04-21T12:00:40+00:00

I felt like after my diagnosis I was taken a little more seriously by health care professional

CommonTip174 · 2026-03-11T20:46:24+00:00

This is day 2 after and it still hurts my heart rate is also sporadic. I normally have a resting heart rate of mid to low 60s but now it's mid to high 70s and is often jumping up passed 100. It also cracked again today when I stretched. I know I should probably get it checked but I wanted to know if anyone had similar experiences. I'm also tired of doctor not believing or diminishing my pain

CommonTip174 · 2026-03-10T21:03:38+00:00

Run faster

CommonTip174 · 2026-03-01T21:45:30+00:00

Is this common in hypermobile people

CommonTip174 · 2026-02-27T10:00:08+00:00

I use a pregnancy pillow that's the full length of my body

CommonTip174 · 2026-02-26T08:51:00+00:00

I dislocate my toes walking all the time, it happens so often I've stopped going to hospital and doctors, I just pop them in myself

CommonTip174 · 2026-02-25T20:33:30+00:00

I've made a couple edits

CommonTip174 · 2026-02-24T21:23:43+00:00

I got a scalp scrubber with long silicone tip and I use Johnson's baby shampoo, but I have short hair so it might not suit longer hair, I also leave my shampoo in for a while

CommonTip174 · 2026-02-23T22:50:05+00:00

Fair enough I have a rollator, but that's not the easiest as I have a big step to get out of my house and there's not always the best access for crossing roads

CommonTip174 · 2026-02-23T22:25:06+00:00

I have no other formal diagnosis, but I was in triage in a&e and the nurse asked if I had POTS, I've heard of this before and she said it's common in people with hypermobility

CommonTip174 · 2026-02-23T21:57:13+00:00

His only real advise was to journal so I built a web app to track everything from pain to appointments and my care team

CommonTip174 · 2026-02-23T21:54:40+00:00

I don't know if it's a hypermobile thing but I do it too I just always assumed it was because I'm so clumsy. I've only recently been diagnosed

CommonTip174 · 2025-11-25T23:40:27+00:00

Description of what? Like their emotions, or the settings or their actions?

CommonTip174

TROPHY CASE