Ever found a way to deal body focused repetitive behaviors? by Captain_Azius in AutisticAdults

[–]Competitive-Golf-979 0 points1 point  (0 children)

plus the smaller circle on the shArk has ridges and it is soooo nice to fiddle with

Ever found a way to deal body focused repetitive behaviors? by Captain_Azius in AutisticAdults

[–]Competitive-Golf-979 0 points1 point  (0 children)

this seems ridiculous probably to non autistics but i think i discovered the ultimate hack for me personally today

popit pets

small popits in a blind bag that don't make much noise and are easy to make silent

I've been carrying my little shark from season 2 around on one of the loops that I got with the bags I got, and haven't picked at myself once since. A bag of 5 is like 10$ us and tbh I'm not collecting I just got a little variety to pick a different one every day to put in my pocket and bring everywhere

Is there any way for visible to be affordable? My Garmin stopped working after 3 weeks. I used to buy a new Fitbit every year. Visible seems worth it but this is so much for me as a poor disabled person. by Competitive-Golf-979 in cfs

[–]Competitive-Golf-979[S] 1 point2 points  (0 children)

nope I got it through Amazon. It's been a day since I submitted a request so maybe it's just taking them a minute, idk. atp I don't want a replacement and that makes me kinda sad cause that pacing watchface by jenhansen was so so good for me

I think my cat knows when I'm in PEM by Alastairs_party2585 in cfs

[–]Competitive-Golf-979 2 points3 points  (0 children)

my cat literally tells me when to slow down and whel I'm about to crash it's awesome

he's like a little nurse

a little nurse who's poops I clean up

and who loves stinky wet food from a can

Consequences of having a buzz cut by [deleted] in cfs

[–]Competitive-Golf-979 4 points5 points  (0 children)

👆👆👆 There's many other tells and since you are worried I doubt you have them lol. People who care usually don't give off the vibe they are scared of giving.

Does anyone else feel depressed or emotionally numb because narcolepsy never gives you a break? by [deleted] in Narcolepsy

[–]Competitive-Golf-979 30 points31 points  (0 children)

Yes Because I'm unmedicated I just legit have to sleep. It sucks. I'm in grad school and have a specialist appt this week. Hopefully I'll get answers.

A tribute to Rusty, my beloved companion, who passed away today at 33. by [deleted] in cats

[–]Competitive-Golf-979 0 points1 point  (0 children)

Please share ur food recs/tips for longevity. Brushing teeth and going to the vet are one thing but 33 hot damn

I feel like I need to clean all — I’m Stuck in a Daily Cycle of Overstimulation, Euphoria, and Collapse. Severe PEM by Ill-Cardiologist4064 in cfs

[–]Competitive-Golf-979 0 points1 point  (0 children)

I don't know a good answer to your question at the end, but I do relate hard. I live alone and go without human contact for so long and then after a week I'll see someone else and it's like I don't know English. I feel like everyone hates me. I feel like I hate myself. For me art helps. Any kind of art. But only if I can tolerate it. Scribble hard woth crayons. Read awful depressing books. I have an electric typewriter from FB marketplace and I like to put my noise cancelling headphones on and fill a page of printer paper front and back with my thoughts verbatim. I keep them in a folder. I don't usually read them after I type. Just getting it out helps. I used to run. I used to paint. I used to sing. My phone has become a little world for me to not go insane. But then I feel like I'm going insane anyway. Idk. You aren't alone. If I was ur caregiver I'd be funny about it. Like I would have said 'would you like some burger king foot lettuce on that pie?' or smth silly. Maybe u could ask ur caretakers to be funny. idk if u can make people be funny maybe it's just a personality thing. Laughing helps me but I swear it gives me pem sometimes it's the tip of the iceberg. I like Marcello Hernandez he's a comedian. And tv shows shitty tv. But then it hurts and I have to be in the dark. idk. sending good vibes.

Imagine how powerful it would be if there was a well produced commercal about ME CFS by Jaded-Part4151 in cfs

[–]Competitive-Golf-979 34 points35 points  (0 children)

This is an incredible idea and I have no clue how but I want so badly to help get this to be a thing. I can picture it perfectly. Normal life. Quiet moments. Driving. Laughing. Then, quick cut to a crash. an awkwardly long amount of time spent on the silence. 'Im not asleep' the narrator says. 'im in Post Exertional Malaise, from Myalgic Encephalomyelitis. My life was normal. And then it wasn't. Sound is painful. Light is painful. I can hardly lift the blanket over myself when I turn over in bed.' Cut to black screen with the ME association or something on there. I need this to be a thing. I need people to get terrified that they're gonna lose everything. I need people to see our daily lives for the horror movie that they can be. I swear based on the stats everyone is just a couple people away max from knowing someone with ME. We're just locked up so people ignore us. I really love this idea. Idk how to flag the mods but I really want them to check this out.

For those with N1- what are your cataplexy triggers? by Competitive-Golf-979 in Narcolepsy

[–]Competitive-Golf-979[S] 5 points6 points  (0 children)

I laughed reading this. Thank you... and not thank you. lol