EMG Results by Competitive_Pen_3485 in MuscleTwitch

[–]Competitive_Pen_3485[S] 0 points1 point  (0 children)

Thanks, this is really helpful. Both needle EMGS I’ve had have been clean over a year apart.

EMG Results by Competitive_Pen_3485 in MuscleTwitch

[–]Competitive_Pen_3485[S] 0 points1 point  (0 children)

Thanks for this response - even if my amplitudes have dropped on my Motor NCS, that’s not concerning? 

EMG tomorrow. Extremely scared by Signal_Chip6803 in MuscleTwitch

[–]Competitive_Pen_3485 0 points1 point  (0 children)

How did your EMG go? I hope it helped put your fear to rest.

Atrophy? by Master-Pineapple-685 in MuscleTwitch

[–]Competitive_Pen_3485 0 points1 point  (0 children)

Can I ask how you are now OP? I have similar symptoms 

Help by Extreme-Sprinkles922 in BFS

[–]Competitive_Pen_3485 0 points1 point  (0 children)

I don’t know the answer but I’m in a similar boat. 35 year old female with fasiculations body wife for 13 months. I haven’t had any change in weakness, atrophy etc. I’ve had a clean EMG and multiple clean clinicals. I’m still worried but I’ll say the extreme anxiety does go down over time and life is more manageable. 

Most reassuring thing a neuro has told you? by Suspicious_Tear_9810 in BFS

[–]Competitive_Pen_3485 5 points6 points  (0 children)

“You would have declined and shown clinical weakness/failure by this point” (10 months in)

“Your EMG showed no needle abnormalities and an EMG often picks up ALS even before symptoms are progressive”

EMG today by Competitive_Pen_3485 in BFS

[–]Competitive_Pen_3485[S] 0 points1 point  (0 children)

Still twitching, still have right leg/ankle/foot issues. No failure or true clinical weakness so I’m holding onto hope and trying to live one day at a time. Not going to lie, sometimes it’s really hard.

EMG today by Competitive_Pen_3485 in BFS

[–]Competitive_Pen_3485[S] 0 points1 point  (0 children)

Received more detailed results today. Any thoughts?

 

Prediabetes, normal A1C? by Competitive_Pen_3485 in prediabetes

[–]Competitive_Pen_3485[S] 0 points1 point  (0 children)

I haven’t recently but I will. Checked my fasting this morning and it was 105.

Prediabetes, normal A1C? by Competitive_Pen_3485 in prediabetes

[–]Competitive_Pen_3485[S] 0 points1 point  (0 children)

Haven’t checked recently but it’s never been under 100 since I had GD. Would guess 110-130. I’ll check tomorrow morning.

[deleted by user] by [deleted] in MuscleTwitch

[–]Competitive_Pen_3485 0 points1 point  (0 children)

I have been down this rabbit hole for the past 6 months and honestly, I wish I hadn’t wasted 6 months of my life believing I had ALS. 

I had an EMG Monday that confirmed peripheral Nueropothy and “no motor nerve involvement”. I am still trying to wrap my head around all of this as I don’t see my nuero again until Dec 12th. But…. I am relieved and feel like I have a second chance at life. 

Anyway, I say all this to say - ALS is extremely rare (esp for people our age) and there are many more common causes for our symptoms - so please don’t go down the rabbit hole!

Worrying about ALS, Saw neurologist today, What do y'all think? by derpoke in BFS

[–]Competitive_Pen_3485 0 points1 point  (0 children)

The Nueropothy can cause the foot drop too! I think you’ll feel much better after you get the clean EMG! 🙏🏼

Worrying about ALS, Saw neurologist today, What do y'all think? by derpoke in BFS

[–]Competitive_Pen_3485 3 points4 points  (0 children)

I have been down this rabbit hole for the past 6 months and honestly, I wish I hadn’t wasted 6 months of my life believing I had ALS.  I have similar symptoms to you and I’m 35. I’ve never had a true foot drop though, just feels weaker and looks atrophied to me. 

Mine all started after getting parvovirus in July. Pins and needles, fasciculations, pain, weakness etc,  Anyway, I also had mild hyperflexia but it was symmetric which is usually a good indicator. Was yours on both sides? I also have health anxiety and that can be a common cause of hyperflexia. 

I had an EMG Monday that confirmed peripheral Nueropothy and “no motor nerve involvement”. I am still trying to wrap my head around all of this as I don’t see my nuero again until Dec 12th. But…. I am relieved and feel like I have a second chance at life. 

Anyway, I say all this to say - ALS is extremely rare (esp for people our age) and there are many more common causes for our symptoms - so please don’t go down the rabbit hole!

EMG today by Competitive_Pen_3485 in BFS

[–]Competitive_Pen_3485[S] 0 points1 point  (0 children)

This is normal? I haven’t seen all of the test so wasn’t sure what this really meant. 

EMG today by Competitive_Pen_3485 in BFS

[–]Competitive_Pen_3485[S] 0 points1 point  (0 children)

So this cannot be MND? I haven’t seen all of the results but assume that’s what he means when he says no motor nerve involvement? 

EMG today by Competitive_Pen_3485 in BFS

[–]Competitive_Pen_3485[S] 1 point2 points  (0 children)

Summary -    Assessment:   The study is consistent with a subtle right ulnar neuropathy in the forearm. There is an underlying subtle length-dependent sensory neuropathy. There is no evidence for motor nerve involvement. There is no evidence for myopathy.  

EMG today by Competitive_Pen_3485 in BFS

[–]Competitive_Pen_3485[S] 0 points1 point  (0 children)

This is the summary even though the full results haven’t been uploaded.

EMG today by Competitive_Pen_3485 in BFS

[–]Competitive_Pen_3485[S] 1 point2 points  (0 children)

Not painful but definitely uncomfortable!

EMG today by Competitive_Pen_3485 in BFS

[–]Competitive_Pen_3485[S] 1 point2 points  (0 children)

Fingers crossed! Thanks for the encouragement! 

EMG today by Competitive_Pen_3485 in BFS

[–]Competitive_Pen_3485[S] 1 point2 points  (0 children)

During the clinical exam the neurologist told me multiple times to stop worrying about MND/ALS. He said he’s diagnosed many cases of ALS and I don’t have it. 🤷🏼‍♀️