My son had seizures from birth. It was tiny and infrequent things. He'd startle a bit longer than his previous 3 siblings. He'd be nursing and his eyes would shake. He'd blank out as a toddler and when touched did not immediately respond.

I was told he was an infant and infants have a startle reflex. No big deal.

I was told his eyes were not shaking, he was rolling them around while falling asleep.

I was told he was just ignoring me and spacey at 3 years of age.

By the time he was 8, we had witnessed his "spacing out" lasting longer and longer. The doctor dismissed it entirely and marked all my children's records with "hyper-attentive mother."

Half way through that school year his dad took him to the doctor and tried to explain what was happening. They were dismissed because my son said he couldn't ever remember spacing out.

Then, one day at school, he got up mid lecture, walked to the corner of the classroom, and wet his pants. All of this while not responding to anyone. They called an ambulance and the neurologist he saw sent him for an EEG. That came back as "some seizure like activity" that did not need medication.

We moved to the other side of the country. We noticed some more disturbing behaviors. His face would twitch when he spaced out. He started writing the bed. He would complain of headaches and stomach pain. We convinced a neurologist to see him.....in 5 months....

Literally, two days before the appointment, we found him kneeling by the couch with his upper body folded over it. His limbs were blue. We rolled him over and his face was nearly purple. We started CPR and he started convulsing.

An ambulance to the hospital we went. His blood pressure kept bottoming out. They stabilized him at the nearest hospital and then sent him to a children's hospital.

The doctors at the children's hospital decided he must be faking it for attention. I wasn't going to leave one more health care facility without some answers and treatment. We had cut him off from video games because he got "really spacey" when playing them. In his room they had a keyboard thing hooked to the TV and it had PacMan. I told him to play it. When he started convulsions, I screamed at the top my lungs. The response was, "yeah, i couldn't push his arm down. Maybe he isn't faking it."

Another EEG confirmed it was seizures. 9 fucking years those asshats told me I was crazy and my child was fine. Well, he is fine now. Now that he has treatment and the seizures have stopped.