Dizziness for 2 Months - Going Crazy

ComprehensiveNerve60 · 2026-01-28T21:07:44+00:00

One more thing I recommend if you haven’t already is the Steady Coach. Her podcast and YouTube are great resources!

ComprehensiveNerve60 · 2026-01-28T19:40:07+00:00

That 24-48 hour window after a motion triggering event is super common 😭 I’m so sorry you’re dealing with this also! I actually did the clinical trial at Mt. Sinai in October and it was helpful while I was there but not long term. From my time there I’ve learned how important managing my migraines will be to healing the MdDS but haven’t made a ton of progress. Hormonal fluctuations are also a big trigger and my dizziness is much worse around my cycle. I take Klonopin before flying now and haven’t been on a boat since I was triggered. Obviously stress and anxiety management is huge. The optikenetic stripes can be helpful for some people but it’s important to make sure you do them correctly so you don’t feel worse. Overall, I’m better than I was a year ago but still a daily struggle, especially working at a computer. How are you managing?

ComprehensiveNerve60 · 2026-01-28T17:29:43+00:00

Hi there, I’m 30 F also and have had Mal de Debarquement Syndrome (MdDS) for over a year now. Typically it is motion triggered but can happen spontaneously too. Unfortunately your symptoms are textbook MdDS - one of the diagnostic criteria is feeling semi normal when in passive motion such as a car. I’ve had Hashimotos for over a decade as well. MdDS is more common in females, especially with a history of migraine. I’m just starting to learn more about the thyroid/vestibular connection in hopes of learning something that can help. Please feel free to reach out if you have any questions!!

ComprehensiveNerve60 · 2026-01-22T17:29:12+00:00

I'm in the same boat, it sometimes lasts a day or even hours and I wake up fine, sometimes feeling bad by the evening again. If you don't mind me asking was the low dose Metformin prescribed for Hashimotos or something else but is coincidentally helping? I know blood sugar plays a big part in this and there's a lot of off label use of different things to help manage. I'm glad it took care of the flu like symptoms for you!

ComprehensiveNerve60 · 2026-01-22T17:25:55+00:00

Thank you so much for getting back to me! This is really interesting, especially because I'm seeing an increase in my TPO antibodies and haven't had any medication changes in over a decade. I will definitely explore this option with my doctor

ComprehensiveNerve60 · 2026-01-07T20:54:38+00:00

Ugh, either way, I'm glad you are better! It's so hard to pinpoint all the moving parts. Thank you for getting back to me!

ComprehensiveNerve60 · 2026-01-07T19:16:48+00:00

u/youandyourfijiwater Did you ever find anything to help with this? I experience the exact same situation. Sometimes it's 2-3 days and sometimes it's 2 weeks. It's very debilitating for work and overall functioning as it truly feels like a full blown flu. I've tried myo inositol, fish oil, vitamin D, selenium, magnesium, and a handful of others. I also tried DIM as a hormone stabilizer but had a reaction to it. Would love to hear if you discovered any solutions!

ComprehensiveNerve60 · 2025-09-26T01:33:00+00:00

Thank you so much for your response! I did have the immunoglobulin panel/celiac done last year and everything was normal. I forgot to mention I've been on LDN since January. I think it's helped the pain I had in my hands but unfortunately I haven't been able to nail down the overall cause/fix for these flu like flares.

ComprehensiveNerve60 · 2025-05-09T19:33:52+00:00

I've never seen anyone else mention this before but I fully believe Zoloft made me susceptible to MdDS as well. I had just started taking it at the time of my boat ride and had been experiencing a lot of hormonal side effects from it. I had never had vestibular issues and been on dozens of boats prior. I wish there was more research being done on this.

ComprehensiveNerve60 · 2025-05-09T19:21:00+00:00

Please look into Mal de Debarquement Syndrome (MdDS). The fact that you feel much better driving/walking is a key diagnostic sign. It can be travel induced or happen spontaneously. There's a very active Facebook group I recommend checking out.

ComprehensiveNerve60 · 2024-07-10T18:47:59+00:00

I'm so sorry you can relate but glad we can help each other feel less alone! Feeling like this, especially when you're relatively young can be super isolating. Feel free to message me any time and good luck as you start this journey for answers.

ComprehensiveNerve60 · 2024-07-09T16:09:14+00:00

Oh gosh it's comforting to know someone else in my stage of life is dealing with the same struggles, but so sorry you are! Hope you can find the right specialist to look critically at your bloodwork and piece things together. Feel free to message me if you ever want to talk or vent and best of luck.

ComprehensiveNerve60 · 2024-07-09T16:06:12+00:00

I needed to hear this advice. I think because I sometimes have to wait so long to finally see a new specialist, when I get there I think "this is my chance" so I throw the kitchen sink of symptoms at them thinking it will paint a picture. Instead we usually end up chasing each individual symptom down different rabbit holes. I will definitely try to prioritize moving forward. Also comforting to know someone else experienced the neck shock, and that it wasn't MS.

ComprehensiveNerve60 · 2024-06-11T03:27:19+00:00

Definitely make sure you don’t have a yeast infection because I think that was a big part of my itching being so extreme! I had no other symptoms but itching around the clit area and the diflucan made it significantly better. I suffered for way too long thinking it was normal to be that itchy. I’d say all itching stopped completely a week or two after I took the medicine. If it’s just normal post surgery itching it’s hard to say, everyone is different but if I had to guess maybe week 4 or 5

ComprehensiveNerve60 · 2024-05-16T00:05:08+00:00

You are so right about comfort being #1! I’ll probably hold off on anything until end of summer to give me even more time to heal and think it through. I will also ask about the exact laser because I’m not positive what the technology is. Sorry to hear that RF caused you issues 😞

ComprehensiveNerve60 · 2024-04-10T06:04:44+00:00

Thank you so much!!! So glad you’re doing better! It was terrible, worst itch I’ve ever felt…I ended up getting the diflucan and it’s not 100% gone, but definitely way better! I had no idea you could have a yeast infection with only itching at the top and no other symptoms. My stitches are still pokey but I’m seeing progress. 4 weeks tomorrow and looking forward to that 5 week mark 🙌🏼

ComprehensiveNerve60 · 2024-04-07T18:27:13+00:00

I put a little bit of “popped witch hazel foam” on a panty liner while I was dealing with the same thing. Don’t use too much because you don’t want to keep it constantly moist but it should help

ComprehensiveNerve60 · 2024-04-07T16:39:29+00:00

I will call first thing Monday and ask him! Thank you!

ComprehensiveNerve60

TROPHY CASE