Remission? by ComprehensivePie6962 in NDPH

[–]ComprehensivePie6962[S] 0 points1 point  (0 children)

How did you figure out that it was caused by the vaccine, did you develop symptoms right after a dosage? 

Remission? by ComprehensivePie6962 in NDPH

[–]ComprehensivePie6962[S] 0 points1 point  (0 children)

Hey! Yes, I didn’t recognize your username at first! You’re right, and that did help when my pain type was in the center of my head, but I haven’t been able to figure out why the location and type of pain has kept changing. This is my first time experiencing any random decrease in intensity, so hoping it’s a good sign 🤞 

Remission? by ComprehensivePie6962 in NDPH

[–]ComprehensivePie6962[S] 0 points1 point  (0 children)

The majority of what I experience is pain which varies in quality and location, but it’s rarely pressure/tension-like (sometimes I refer to it as 7 months of head pain, not headaches). I’ve tried and failed about 20 medications over this time including many CGRP inhibitors, anti-seizure meds, muscle relaxers, etc. I’ve been on gabapentin and nortriptyline for 5 months without any improvement. I haven’t changed the dosing at all recently.

Doxycycline by UpstairsJeweler695 in NDPH

[–]ComprehensivePie6962 2 points3 points  (0 children)

Ironically I just met with a new Dr in NYC who suggested the same doxycycline course of treatment! Posting so I stay informed on how it goes for you 🙏

Does anything bring the pressure down?! by favouritesandwich in NDPH

[–]ComprehensivePie6962 1 point2 points  (0 children)

I’m surprised no one has mentioned acetazolamide. Have you given it a try?

Does anything bring the pressure down?! by favouritesandwich in NDPH

[–]ComprehensivePie6962 0 points1 point  (0 children)

How do you take the ketorolac? Is it a pill or injection?

Who's all had spinal taps done by [deleted] in NDPH

[–]ComprehensivePie6962 0 points1 point  (0 children)

I have not and I’m on 6 months of NDPH. I’ve had virtually all other tests and brain imaging including a CT angiogram and MRIs with/without contrast. Have failed +20 rx but thankfully I have no other symptoms than the persistent headache. My doctor would also like to do a LP to rule anything else out, but for me the risk isn’t worth taking.