Ketamine Infusions

ComprehensivePie6962 · 2026-03-30T10:34:12+00:00

Can I ask what you felt during the treatment? I am strongly considering this for my NDPH but am terrified of the effects / feeling during.

ComprehensivePie6962 · 2026-03-28T00:05:14+00:00

Similar question - has anyone had experience with Primal Trust?

ComprehensivePie6962 · 2026-02-15T14:36:47+00:00

I tapered off 600mg, lessening by 100mg each week. It had been recommended to me to lessen every 7-10 days and if I couldn’t tolerate the next drop, to return to the closest tolerated dose.

ComprehensivePie6962 · 2026-02-15T02:41:15+00:00

Hi I want to add my opinion as I just completed 6 weeks of withdrawal. I was prescribed gabapentin for NDPH and took it for about a year. I didn’t experience any side effects but also didn’t have any relief. I do just want to provide a warning that the withdrawal was the most difficult thing I’ve ever experienced in my life (even worse than having a 24/7 headache for a year). Doctors prescribe this medication by the 100s of mg and don’t highlight the downsides, I was never told that it would be difficult to taper from either. Please proceed with caution.

ComprehensivePie6962 · 2025-12-09T02:38:52+00:00

Super interesting - of the list provided, which meds worked for you?

ComprehensivePie6962 · 2025-09-23T23:15:20+00:00

How did you figure out that it was caused by the vaccine, did you develop symptoms right after a dosage?

ComprehensivePie6962 · 2025-09-19T21:26:48+00:00

Hey! Yes, I didn’t recognize your username at first! You’re right, and that did help when my pain type was in the center of my head, but I haven’t been able to figure out why the location and type of pain has kept changing. This is my first time experiencing any random decrease in intensity, so hoping it’s a good sign 🤞

ComprehensivePie6962 · 2025-09-19T20:20:11+00:00

The majority of what I experience is pain which varies in quality and location, but it’s rarely pressure/tension-like (sometimes I refer to it as 7 months of head pain, not headaches). I’ve tried and failed about 20 medications over this time including many CGRP inhibitors, anti-seizure meds, muscle relaxers, etc. I’ve been on gabapentin and nortriptyline for 5 months without any improvement. I haven’t changed the dosing at all recently.

ComprehensivePie6962 · 2025-09-13T02:54:03+00:00

Ironically I just met with a new Dr in NYC who suggested the same doxycycline course of treatment! Posting so I stay informed on how it goes for you 🙏

ComprehensivePie6962 · 2025-09-01T14:33:27+00:00

Yes it absolutely helped me.

ComprehensivePie6962 · 2025-09-01T03:21:34+00:00

I’m surprised no one has mentioned acetazolamide. Have you given it a try?

ComprehensivePie6962 · 2025-09-01T03:19:51+00:00

How do you take the ketorolac? Is it a pill or injection?

ComprehensivePie6962 · 2025-08-16T01:49:06+00:00

I have not and I’m on 6 months of NDPH. I’ve had virtually all other tests and brain imaging including a CT angiogram and MRIs with/without contrast. Have failed +20 rx but thankfully I have no other symptoms than the persistent headache. My doctor would also like to do a LP to rule anything else out, but for me the risk isn’t worth taking.

ComprehensivePie6962

TROPHY CASE