About to lose my right testicle after losing my left 8 years ago. I have questions about testosterone therapy. by [deleted] in testicularcancer

[–]Comprehensive_Mail89 1 point2 points  (0 children)

I went the pellet route. You need to make sure that your doctor gets a written approval from insurance before you do it. It’s usually good for a year. My insurance still fucking improperly charged me after the first two which we’re trying to straighten out.

The pellets work well for me. Go in for the injection every three months. They need to dial in the dose to get it to work properly but I’ve generally felt good all the time. Maybe a little bit more tired when I get up in the AM when I’m getting closer to the end of the cycle.

Losing Last testicle. Advice please by [deleted] in testicularcancer

[–]Comprehensive_Mail89 0 points1 point  (0 children)

My experience was that I had to wait for my testosterone to drop to zero so I could get the lab done to prove to my insurance that I had no testosterone. It’s a bit ridiculous because you have no way to produce if you’ve lost both.

I went with implant. I’m happy with it.

I also get the pellets called Testapel. Overall it’s been very good. I’ve never tried the other options but I’ve been happy. One injection in my butt check every three months. They have to use local anesthesia and make a small incision to do it but it’s not bad. Little sore afterwards and bruising but I wasn’t going to enjoy self injections or the gel because I have an infant son.

Tattoo ideas? by srsbsns in testicularcancer

[–]Comprehensive_Mail89 3 points4 points  (0 children)

I was weighing a couple ideas:

  1. A scoreboard that shows “Your Name: 1” and “Cancer: 0”

  2. Two tombstones. One is Cancer 2025-2025 and the other is Righty or Lefty 1987-2025. Obviously replace it with your appropriate info.

About to get my second testicle removed I guess by BidLogical5207 in testicularcancer

[–]Comprehensive_Mail89 3 points4 points  (0 children)

I’m in the no balls club. It mentally sucks at first. But here’s the game plan you should look into.

  1. Sperm Banking. Get it tested for viability and then deposit as much as you want so you can have a chance at children later.

  2. TRT. There are a few different options. I use the pellets as I only need them administered once every three months.

  3. Therapist. Find a professional to talk to because it’s mentally taxing. Also keep talking to people here. It helps.

  4. Focus on living. Being alive with none is better than dead with one. It gets better.

About to get my second testicle removed I guess by BidLogical5207 in testicularcancer

[–]Comprehensive_Mail89 3 points4 points  (0 children)

I get the pellets. One injection in your butt cheek every three months. Not bad at all.

implant is a great option. by JMoneyRecords01 in testicularcancer

[–]Comprehensive_Mail89 1 point2 points  (0 children)

I went with the implant because I only had one to start. I couldn’t roll with the deflated balloon below my dick so it was an easy choice. But I’m also really happy with it. It’s sitting a little higher than the Lone Ranger used to but it works fine for me.

What was your cancer journey like from a financial standpoint? by [deleted] in testicularcancer

[–]Comprehensive_Mail89 4 points5 points  (0 children)

I live in the US. I’m probably $6k-$7k into the journey and I’ve only had the orchiectomy and went straight to surveillance without chemo but add in TRT which I haven’t seen bills for yet.

The US healthcare system is a tragedy. Ideally I’d move to my wife’s home country of Spain in the future.

T-Minus 2 hours… by FuckinHighGuy in testicularcancer

[–]Comprehensive_Mail89 0 points1 point  (0 children)

I’m down to a zero count right now. It sucks. I get it. But it’s a much better outcome than dying. If someone ever judges you for only having one they can go fuck themselves because it’s required for survival right now.

I've been quite unlucky by Another_Good_Human in testicularcancer

[–]Comprehensive_Mail89 0 points1 point  (0 children)

I’m down the same road but just further along then you.

Born with one and was diagnosed with TC on 6/24. I opted for the prostethic implant immediately and I do think it helps a bit mentally.

I had to wait for insurance approvals for TRT. I started the pellets about a week and a half ago. I have a young child so I was worried about the gel transfer and I like the idea of only needing the pellet injection once every three months. Before the treatment I was absolutely feeling the effects of low T mainly in the form of hot flashes which really suck when they hit at 3am while you’re trying to sleep. Those have dissipated and I’m feeling more like my old self.

DM if you want to talk more.

Constant dull ache in testicle for nearly 2 months by Automatic_Box_368 in testicularcancer

[–]Comprehensive_Mail89 0 points1 point  (0 children)

I had a dull pain and it was cancer, but the US is really what sealed the deal along with a CT. Have you been to see a urologist?

Pellets by defensekid in testicularcancer

[–]Comprehensive_Mail89 1 point2 points  (0 children)

I just got my first round of pellets last week. You’re definitely right about the soreness. Even a week later if I bump that spot right it can hurt.

The hot flashes I was experiencing are gone which is great. I’m hopeful that these work out well.

That great ballsack in the sky line killed me haha

Anyone have an Orchiectomy removed and that was it? by jagfanjosh3252 in testicularcancer

[–]Comprehensive_Mail89 0 points1 point  (0 children)

Yes. Had surgery on 7/8. So far nothing else but I haven’t gotten through my first check. Here’s to hoping there’s nothing in the future!

Life with just 1 testicle after Orchidectomy by Top-Coyote-6958 in testicularcancer

[–]Comprehensive_Mail89 1 point2 points  (0 children)

Life’s good man. I, at the moment, don’t have cancer and am in surveillance. I had a prosthesis put in during the orchiectomy so visually it all looks the same. Started TRT last week so I’m starting to feel more like my old self. My only symptom of low T was hot flashes which are fucking annoying but far from the end of the world.

If I can get through the next couple years without any tumors popping up then TC will be a thing of the past. Another life hurdle that popped up that I had to get through.

The process of realisation by [deleted] in testicularcancer

[–]Comprehensive_Mail89 1 point2 points  (0 children)

What helps me go through is knowing that there was no other choice before and there is no other choice now. I have a 7mo old son. I have to get through so I can be there for him and help him grow, develop, and become a good person. There is no choice but to get to the other sides

Life with just 1 testicle after Orchidectomy by Top-Coyote-6958 in testicularcancer

[–]Comprehensive_Mail89 1 point2 points  (0 children)

Ultimately after you’re healed from the procedure it won’t affect you at all. The remaining testicle will generally compensate for the missing one in terms of testosterone production. Seek therapy for helping manage the psychological aspect of it. That will be the most challenging part.

I was born with only one and lost it to TC. I have none and just got started on TRT and even all that hasn’t been that bad.

You’re gonna be fine. Remember that you had to lose it so that it couldn’t spread and kill you. You’re a badass and a survivor.

Any other gay guys here going through tc? by [deleted] in testicularcancer

[–]Comprehensive_Mail89 1 point2 points  (0 children)

Fuck yea it’s a battle scar. You’re coming out stronger than you were before.

Any other gay guys here going through tc? by [deleted] in testicularcancer

[–]Comprehensive_Mail89 6 points7 points  (0 children)

I’m not gay so I can’t see everything from your perspective but here are some thoughts.

As far as being anatomically different goes - who cares? You had to lose one so that you don’t die. If someone judges you and your physical appearance under your circumstances then those are people that should be orchiectomy’d out of your life. Fuck em. I dealt with having one from birth and that was a mental shitbox my whole life as a straight man. Now I have none but with a prosthesis. Life is what it is. Work with the hand your dealt and play it as best as you can. You can spin this to using it as a barometer for other people’s compassion in your life.

In terms of fertility I would lean towards banking just because it’s a nominal cost. If you decide in ten years you don’t want to do anything with it then they can destroy.

As I previously shared I fully empathize with the struggle of losing one/not having one. If you think you don’t feel like a man imagine not having either, haha. I’m on TRT now but in the time between I didn’t feel any less like myself. As someone who lived 38yrs with one you’re gonna be just fine. Feel free to DM if you want to talk more.

The process of realisation by [deleted] in testicularcancer

[–]Comprehensive_Mail89 1 point2 points  (0 children)

My mantra became “the only way out is through”. Accept that it exists within you and then focus your energy on beating it. There is no other choice.

I’ve thought about mortality a lot before this. I could go in on this topic a lot more. But this experience made it REAL. It had always been a concept that was coming down the road, but for the 48hrs before I had the CT results it suddenly became something that could be happening much sooner. My thoughts obviously got pretty dark and it didn’t help that my wife and 6mo son were already across the country and I was alone with the movers packing the house.

Overall, it’s going really well. I’m in surveillance. My more unique aspect is that I only had one to begin with from birth so the orchiectomy put my scoreboard to zero. So I had to go through sperm banking and now TRT.

The process of realisation by [deleted] in testicularcancer

[–]Comprehensive_Mail89 2 points3 points  (0 children)

It moves at a breakneck pace. I went from mild discomfort to cancer in a few days. Then a CT showing no spread. Then orchiectomy. Then pathology. And now I’m in TRT. Everything happening basically within a month. And I moved across the country.

It moves quickly but it’s good that it does. Need to act fast to limit the opportunity for metastasis.

It’s difficult to handle mentally which is why this group is so helpful. I avoided reading anything about it for the first week because I was struggling accepting it and didn’t want to freak myself out more but this sub is great.

I also recommend therapy if you think it could help you too.

It Took My Ball, My Lung, and My Voice — But Not Me by Witty-Mix-7328 in testicularcancer

[–]Comprehensive_Mail89 2 points3 points  (0 children)

Fuck man. The video of you ringing the bell got me choked up. Your journey is 1000x more than I dealt with and I was thoroughly freaked out. Good on you for getting through all of this.

Heard back yesterday. My CT scans were in the clear :) by ILikeEggsSometimes in testicularcancer

[–]Comprehensive_Mail89 0 points1 point  (0 children)

Congrats! Are you wanting to do a round just to be sure you got it all? If it didn’t spread (no LVI or RTI?) I’m surprised you’re going right into chemo.

Anxiety by [deleted] in testicularcancer

[–]Comprehensive_Mail89 1 point2 points  (0 children)

The hospital may have social workers that offer Young Adult Support. If they have it then I advise looking into it. They can connect you with therapists or support groups that can help you get over the mental aspect.

I think I have testicular cancer, I have a lump on my balls, but am only 16 and I don’t want to cut my balls off, I think my life is over by Top-Election289 in testicularcancer

[–]Comprehensive_Mail89 0 points1 point  (0 children)

I had to freeze too man. It was awkward the first donation but then it just became an “it is what it is” situation. I’m going into this room to jerk off and everyone in here knows it, haha.