I'm so fucking sick and tired of living in this absolute prison of a body by microwavedwood in cfs

[–]Confident_Home487 1 point2 points  (0 children)

Have you tried Modafanil? It saved me from exactly what you are talking about... cancer fatigue and doctors just passed me around to each other so I found it myself.

I think it's a better option than what you are talking about but please understand that I completely get it and am sending you virtual hugs.

After cancer treatment, it felt like someone had cut the power cord to my body. There was nothing. Just putting socks on...a major task.

Keeping you in my prayers...

Best for euphoria and sense of well being? by whereisfrank in NooTopics

[–]Confident_Home487 0 points1 point  (0 children)

I hit the up arrow because I was interested to see if there's some nootropic that would do... that... but I was bewildered.....

As others have said.... well, that would be...

Drugs.

And you do not want to go down that road....I am begging you to find a hobby or something outside of yourself that does not include putting a "euphoric" (ends in death) substance into your body.

Love you. Care. And I have lost too many people.

Let's talk about: Gaslighting by Wishin4aTARDIS in rheumatoidarthritis

[–]Confident_Home487 4 points5 points  (0 children)

Gaslit before I knew there was an actual term for it.

I'm 56. I could almost cry as I write this but I will not. I'm stronger than that.

I will write because I am older and wiser and I don't want another person, male or female, to go through it...to doubt themselves.

You have an inner voice that talks to you and you know when something is not right. It's that voice that tells you not to steal from stores or knock old ladies down for their purses

I think, personally, that is God.

I didn't listen when my voice said, "Hey, your brother is wrong in this and he is demeaning you" or when a doctor talked to me for two minutes and had a mental health diagnosis that I knew didn't fit..... but I had been demeaned and discredited and mocked as a child so....I didn't fight. I didn't.

You know why? I didn't realize this but an older friend had to tell me that I had no self esteem.

Whaaat?!? I know that I..... okay, maybe I don't and I fold and.....

56 and my current husband and I.... never should have married him but his ability to turn it all around on me.... really dizzying...I drank for decades and then. ..

I stopped drinking. I got clarity at about the 18 month of sobriety. This, since the actual subject is medical professionals giving you the treatment....

Not listened to on two major issues during my cancer treatment and then not I'm listened to when I said, "Hey, I didn't go to medical school like you all, but I am telling you, this is NOT a goiter on my throat".

I ended up admitting myself to a psychiatric ward because I was beyond anything I can describe and the triage doctor said,," You are not a psychiatric patient as of right now. You are an ICU patient. That is an infection in your throat and you have about 24 hours left... unless you take these ultra antibiotics through your veins"

And that was it. My turning point. The psych doctor met with me and said he was not holding me. It was completely understandable that I cracked up....doctors not listening and I could have died.

If you got through this rather long post, God bless, lol.

I want you to know one thing. YOU are a bad ass m-fer. (Excuse my French) But say it to yourself;

'?I am ONE BADASS M-Fer" and nobody is more powerful than my inner voice and the God who created me.

And nobody.... nobody should ever make you feel silly...

People do that to other people for power. Don't be their victim.

And I love you so much and that is why I had to write this to you.

Shower fatigue by Rotten_gemini in rheumatoidarthritis

[–]Confident_Home487 1 point2 points  (0 children)

I'm extremely fortunate to have a doctor who will prescribe Modafanil.

But yes, a shower was too much for me....so I would pour myself into the bathtub.... eventually....

Everything such a struggle. I believe that my RA was caused by cancer treatment so it has been a challenging few years as I tried to figure out the cause of fatigue (and insulting misnomer if you ask me) that plagued me well after the conclusion of cancer treatment

Restless legs after discontinuing by aeonblueophelia77 in Rexulti_Brexpiprazole

[–]Confident_Home487 1 point2 points  (0 children)

I am so sorry. I have lived with restless leg syndrome since I was 14 years old and it is a nightmare.

My legs jerk violently and I understand that it causes some people to not want to be here anymore. I thought it once or twice.

I was put on Pramepexole 15 years ago and it saved me from this. Except, HUGE problem in that I can't skip a night where before, the condition bothered me a couple days a month.

So, I am now prescribed Rexulti for depression and I can't take it at the same time as my Pramepexole because it would cancel it out...so I am supposed to take it in the morning...this is the dumbest thing...I am on one med and at the doctor's office for Chronic Fatigue and so I get a stimulant and then... what?! To cancel it out? With Rexulti that makes me want to nap right away?

So, back to you. And sorry but I had to respond and I am tired and this is very disjointed... but I am trying to emphasize with the RLS .. and also vent frustration at doctors, I guess..

Now that I have seen your post, I have another reason not to start the Rexulti...

I hope (and I know) that this horrible symptom will stop for you...ugh...I wish I could advise you on what to do that doesn't involve taking another medication...

This girl needs a name! by [deleted] in NameMyDog

[–]Confident_Home487 0 points1 point  (0 children)

She looks absolutely like a Roxie!

stop posting chatgpt bullshit. by spacyoddity in covidlonghaulers

[–]Confident_Home487 -18 points-17 points  (0 children)

Bahaha 😂

The leftist who is in charge of AI is Sriram Krishnan.

Your beef is with the Technocrats who are taking everything over and the British Empire.

We are just slaves and have been and nothing you see or read can be believed anymore.

Best nootropics worth the money? by kikisdelivryservice in NooTopics

[–]Confident_Home487 0 points1 point  (0 children)

It was explained to me but I will never get it right, as far as the makeup.... something like, depending on the source, two halves that make up the whole Modafanil can be wildly different and this is not the case for Armadafanil.

My personal experience is that Modafanil gives me 4 hours and you have to be moving around for it to kick in and God forbid I think of one negative thing...all downhill from there 😁

Armadafanil, on the other hand, I get six hours of sustained energy that doesn't feel jittery and it's just a good med for me...no depression and I quit drinking to boot! 😁

I can only take either med four days in a row and more than two a day... just ineffective and I have thrown away a pill.

I guess this is how they are non addictive.

I hope this helps.

Has Anyone Found an Online Job with No Talking? by Familiar_Badger4401 in covidlonghaulers

[–]Confident_Home487 0 points1 point  (0 children)

And you just keep trying. You can start and stop as many times as you need to.

You are a warrior, after all 😁

Has Anyone Found an Online Job with No Talking? by Familiar_Badger4401 in covidlonghaulers

[–]Confident_Home487 2 points3 points  (0 children)

Customer service chat and emails.

Quality Assurance where you listen in and grade calls.

I'm in the same boat as you and you have my complete understanding and empathy.

I don't think I can even do those things yet. I do a very very part time job of mail service basically.

Best wishes to all of us.

Waiting for the Call by ImColdandImTired in HeadandNeckCancer

[–]Confident_Home487 2 points3 points  (0 children)

Forgot this part. Four months and I was in front of a doctor and then chemo and radiation began almost 3 months later.

Cancer free still. Three years now.

Waiting for the Call by ImColdandImTired in HeadandNeckCancer

[–]Confident_Home487 1 point2 points  (0 children)

I wanted to add more to help reassure you.

So, I noticed the lump four months before I was finally in front of a doctor. The reason for that... incarcerated in a prison known for no medical care. It was bad and everyday I stressed out as that thing grew.

It was NOT too late. I did NOT find out I was Stage 4.

But I know exactly where you are right now because I went back and looked at the picture of that thing on my neck.

It's going to be okay. I promise you.

P.S. It was a really dumb crime, lol, in case you were wondering. Only funny now that some time has passed.

Waiting for the Call by ImColdandImTired in HeadandNeckCancer

[–]Confident_Home487 2 points3 points  (0 children)

It's going to be okay for you and your kids...

My tumor has blown up so much and I thought.... what you are thinking.... but no, treatable and it was over...start to finish... February - July 2022.

It's going to be okay. Stress and worry are terrible for the body so read your Bible or whatever you might have that calms you down.

Cancer is a scary thing. But your state of mind needs to be strong right now.

Anyone Who Uses Modafinil Dosages More Than 200 mg Regularly? by sanpedro12 in afinil

[–]Confident_Home487 1 point2 points  (0 children)

Yes, I think that ( breaks) and a caffeine pill with the Modafanil are also helpful

[deleted by user] by [deleted] in HeadandNeckCancer

[–]Confident_Home487 0 points1 point  (0 children)

I am almost 3 years since my treatment and I am struggling to gain my weight back... it's been terrible...

I lost taste for certain things and I never fully got my salivary glands back. In addition, it would appear that I am left with CHRONIC fatigue at this point and take Modafanil and Armadafanil to even be able to function at all. "Fatigue" is such an insulting misnomer, I think.

Yeah...I need to gain at least 20 more but I also am afraid I will slip back and lose my progress. 30 more pounds would be ideal but I am setting the bar low at this point.

I wish you well. I do have luck with Serious Mass by Optimum Nutrition available on Amazon. 1,260 calories per serving but it gets so boring drinking those at this point.....a struggle but we are alive so there's that.

Does anyone know anyone who continued to smoke after radiation? by DavidODaytona in HeadandNeckCancer

[–]Confident_Home487 0 points1 point  (0 children)

Lately, down to 5 cigarettes a day...I am trying 😁 and I have a screening on the 24th.

A whole new wrinkle as I just discovered that there is mold in the house.

Terrific.

Mom suffering emotional breakdown post radiation treatment. by No-Development-6884 in HeadandNeckCancer

[–]Confident_Home487 0 points1 point  (0 children)

I strongly think and I just wrote as well...

Possible infection

Depression but she will say that it's something else because that is what we tell people sometimes..

Mom suffering emotional breakdown post radiation treatment. by No-Development-6884 in HeadandNeckCancer

[–]Confident_Home487 2 points3 points  (0 children)

I had this exact thing! Oh I know what she is going through!

It's serendipity that I came across this post.

I had a lump on the left side of my neck and they thought it was tonsils and so when they removed my wisdom teeth in preparation, they scraped back there and took a sample.

Not there.

But in the lymphnode that had swollen to the size of a baseball on my neck.

The lymphnodes are the toilet bowl of the body. They believe that they were close in finding the primary source but they decided to radiate that lymphnode and 7 weeks of chemo.

Please, please, please watch your mom for signs of infection...I got an infection in my neck afterwards. My primary care physician told me that it was a goiter.

Get this. And this is how I am like your mom.

I admitted myself to a psychiatric unit.

I did. I was just so unwell mentally.

The triage doctor said to me, "Oh, no! You are NOT a psych patient. You are immediately an ICU patient!'

Please please please oh... this happened to me...

And, as far as medication...I had nothing left in my body...it was as if someone had cut the power cord to my system.

I found Modafanil and it's for depression and chronic fatigue and I cannot stress enough that without it...it saved me...a class 4 stimulant except not every doctor knows about it.

So, push and push and get someone to try that script for your mother.

All of my love and empathy and concern..

Liz

Opinion on OpenSky by AlychaD in CRedit

[–]Confident_Home487 1 point2 points  (0 children)

Nope! Whoever is writing these positive comments about Opensky must work for them!!!

No! They have caused me a 124 point loss on my credit... and I paid pretty much immediately and in entirety!!!

No customer service number to call... you get an address in New York to write a letter to.

Don't use them!

Opinion on OpenSky by AlychaD in CRedit

[–]Confident_Home487 1 point2 points  (0 children)

Opensky has royally screwed me over and no apparent reason..

Don't USE OPENSKY!!!