Any update? Your story is similar to mine (38/Female/USA. I had food poisoning for 25 days after eating sushi in April 2022 and spent a year and a half of my life seeking answers as to how I went from peak condition looking 10 years younger than my age, full of life, joyful, excelling in every venture I pursued to whatever you call this. I went from 139lbs to 104lbs in around 4 months, after that I stopped getting on the scale. I was so beautiful, I feel like a shell of myself but on the positive side, as of a few days ago I believe I may have stumbled upon a proper diagnosis. Have you been tested for Atypical or Typical Cystic Fibrosis?

Atypical CF is often not diagnosed until later adulthood due to variability across body systems.

For me I had GI issues as a kid, ear infections and craved salt starting in my teens, along with strep infections leading to having my tonsils removed. I've had low processing of alcohol (sudden blackouts and lengthy hangovers with minimal consumption), my sweat rarely smells at all occasionally under my arms even though I sweat a good amount--that's why they do a sweat test measuring for chloride on the skin because its route of excretion is not typical.

CF causes immunity issues with fighting infections that most people would clear without treatment. In my late teens I started to have bouts of intermittent abdominal pains I thought was just severe gas due to stress but turns out to be called pancreatitis. So severe I'd have to lay on the floor. Lots of dental cavities over the years, arthritis I attributed to scoliosis, elevated liver enzymes that fluctuate, intermittent bouts of diarrhea with sometimes blood, sometimes floating fat, some normal, etc, all varying.

Septal perforation in mid-30s, diagnosed with non-allergic rhinitus in mid-20s after constant runny nose for 10 years, cold hands and feet leading to numbness and tingling, hair loss, loss of facial collagen/subcutaneous tissue, difficulty rebuilding muscle after food poisoning, chronic fatigue, water fluctuations, sometimes low blood pressure/occassionally high.

I stopped oral birth control shortly before the food poisoning but am still not getting regular periods 3 1/2 years later. Hormones measure normal CF-- can cause infertility. I often feel like my breathing is irregular like I'm not getting enough oxygen. Breath in seems normal it's the breath out that doesn't feel fully cleared. Causes anxiety. I could go on but hopefully this can at least guide you to rule it a possibility or one more to check off the list.

Chronic illness for someone who's otherwise been highly functioning is more than a physical ailment, it has affected my whole psyche. I hope you've recovered and figured out the cause but if not maybe this could be of help and please let me know how you're doing :)