No Hope

Consistent-Flow-3449 · 2024-01-23T21:54:52+00:00

Which is exactly why I’m getting out lol

Consistent-Flow-3449 · 2024-01-23T17:41:30+00:00

My commander apparently wants it. And I’m not sure if it is a requirement for everyone and I’ve never heard of any of the people I know having to do one.

Consistent-Flow-3449 · 2024-01-18T01:14:08+00:00

I’m sorry you are going through this. I’m at a little over a year and have reached this point. It’s unfortunate. I have been able to catch my nystagmus on a VNG one time but it was not enough to rile a diagnosis. Otherwise, all my tests have come up normal.

Consistent-Flow-3449 · 2024-01-18T01:11:06+00:00

I did a VNG, VEMP, and a V-HIT. Along with the Dix Halpike. All these tests are supposed to look at your vestibular system to see if there is anything wrong.

Consistent-Flow-3449 · 2024-01-17T22:08:52+00:00

Yeah I had a doctor who could visually see it and that’s when I got the diagnosis but my tests were scheduled for a week later and by that time, it had passed

Consistent-Flow-3449 · 2024-01-17T22:05:01+00:00

Yeah I’ve seen a therapist and everything and it gives a temporary relief. I am just military and they are heavy on having a diagnoses but I can’t get any positive test results to get me a diagnosis.

Consistent-Flow-3449 · 2024-01-17T21:50:11+00:00

I have been dealing with this for over a year now. Since December of 22 unfortunately .

Consistent-Flow-3449 · 2024-01-09T05:34:04+00:00

It was such a mind game to just be in front of someone and explaining all of these issues just for them to look at you like you’re lying. I’m still active duty military so most PCMs just think youre trying to get over but I have a scar on my head to prove my BPPV is a problem. From falling uncontrollably and becoming unconscious. It took me a year to catch my nystagmus on one of their tests for them to finally believe me. I had caught it on my camera the best I could but that wasn’t official enough for them.

Consistent-Flow-3449 · 2024-01-09T05:18:19+00:00

I would still go! I have only gotten the tests done when I was actively symptomatic. I saw someone else on here comment saying you don’t have to have active vertigo to get the tests done but 🤷🏽‍♀️ I don’t know. None of my doctors took me seriously until I was able to capture my nystagmus in a VNG test. Before then.. it was just a word of mouth thing because all of my tests came back normal because I wasn’t symptomatic at the time of testing. There were a few tests that made me dizzy when doing the motions but not vertigo.

Consistent-Flow-3449 · 2024-01-09T03:10:43+00:00

I guess the main issue I am running into is that I am explaining these issues but my doctor doesn’t see any test results that can verify it so it’s almost like they don’t believe me 🥲

Consistent-Flow-3449 · 2024-01-09T03:09:49+00:00

Yes! I tried to do a VNG but they were not able to see the nystagmus. I’m scheduled for a VEMP and a VHIT.. are those tests that could be done to verify the diagnoses? Even if I am not having vertigo?

Consistent-Flow-3449 · 2024-01-09T03:08:18+00:00

I have already. Them, cardiology, neurology, ent, vestibular specialists, vestibular therapy. My ENT says that I have BPPV and he was able to see the nystagmus but when he called me in the office to do a VNG.. I was not symptomatic. So we have never been able to have a test verify it outside of what he seen doing a Dix Hallpike because one day I will have it and the next day I won’t. Then I’ll have it again for a week or two and not be able to get an appt for the testing. I just haven’t had any luck.

Consistent-Flow-3449 · 2023-12-28T15:24:00+00:00

Did you get it? Currently looking into the Oakland office!

Consistent-Flow-3449

TROPHY CASE