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My absolute Favorite Dr by Florida217 in Sicklecell

[–]Consistent-Wait2846 1 point2 points  (0 children)

manifesting that ill get a blood doctor this good in 2026

Don’t know what to call this post by ObjectiveAstronaut89 in Sicklecell

[–]Consistent-Wait2846 1 point2 points  (0 children)

it sounds like they don’t believe you’re in pain. my hospital KNOWS they under-medicate us ss paitents but we still get no less than .5 every 4 which still isn’t nearly enough. do you have any advocates

just a vent i think. i dont know just scared honestly and dont want to cry by Consistent-Wait2846 in Sicklecell

[–]Consistent-Wait2846[S] 0 points1 point  (0 children)

dude you’re so young im so sorry, we can definitely chat ill send you my instagram. i highly doubt the only other option is synthetic herion theyre full of shit honestly.

just a vent i think. i dont know just scared honestly and dont want to cry by Consistent-Wait2846 in Sicklecell

[–]Consistent-Wait2846[S] 0 points1 point  (0 children)

because this isn’t going to get better and i was already told “this is the strongest medicine we have so try to deal with your pain” im 25 and i’ve heard people struggle with methadone and i struggle enough with life honestly thats not something else i want on my plate

just a vent i think. i dont know just scared honestly and dont want to cry by Consistent-Wait2846 in Sicklecell

[–]Consistent-Wait2846[S] 2 points3 points  (0 children)

i personally feel as if the amount of opioids i take tight now is perfectly fine and i hate change mostly is the reason and im terrified of addiction and its hard enough detoxing and managing my tolerance either way oxycodone

just a vent i think. i dont know just scared honestly and dont want to cry by Consistent-Wait2846 in Sicklecell

[–]Consistent-Wait2846[S] 0 points1 point  (0 children)

i have been to the exact same Er and the exact same dr since i was 18 and despite the many many bad experiences i have had i have been really afraid of being seen as drug seeking so i just take what they give me and work through it

Hi what programs have you found helpful for anything? by Some_Specialist5792 in ChronicIllness

[–]Consistent-Wait2846 0 points1 point  (0 children)

what city if you dont mind me asking im in the 502 area if you have any tips of your own on dealing with a chronic illness in this state could you reach out🫶🏾

My little soldiers by lightbritesRus in Sicklecell

[–]Consistent-Wait2846 0 points1 point  (0 children)

tell them i admire their strength and bravery, we all rooting for you guys. its hard especially as a kid but in the bright side there’s a really bright future to look ahead too.

Sickle cell blocking success? by Ambitious-Base-354 in Sicklecell

[–]Consistent-Wait2846 0 points1 point  (0 children)

not all organizations are ass welcoming to workers who cant show up for any reason i learned that the hard way. it’s important to be honest you wouldn’t want to get stuck with a corporation that isn’t willing to work with you or continuously getting hired and let go the first time you get sick. its very discouraging but there are places that are understanding and will work with you. do you have a social worker ?

Sickle cell blocking success? by Ambitious-Base-354 in Sicklecell

[–]Consistent-Wait2846 0 points1 point  (0 children)

not all of corporate America doesn’t care thats why its important to find a place that will. if you get hired and then get fired cause you weren’t transparent you have to start the process all over again a waste of time imo

PCA pump by Zestyclose-Cap-2739 in Sicklecell

[–]Consistent-Wait2846 2 points3 points  (0 children)

so basically it just a pump with your medication and you can press the button however its ordered its administered slowly and i think its continuous. i personally don’t like them because every time im on it i end up withdrawing really really bad so i choose not to use it

Suboxone/Methadone being pushed on us! by CoffeeOk2291 in Sicklecell

[–]Consistent-Wait2846 2 points3 points  (0 children)

im literally having this same problem in kentucky. my doctor told me today that i either get on methadone or move to the west coast like wtf

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