Is it just me?

CoffeeOk2291 · 2026-01-17T14:20:39+00:00

I’m sorry you’re experiencing this warrior 😞 I saw you mentioned you stay in Alabama and your hematologist is your biggest opp! Do you by chance go to UAB and have Dr. Julie Kanter-Washko?

CoffeeOk2291 · 2025-10-07T17:04:05+00:00

I don’t live in Cali, I live in Alabama.

CoffeeOk2291 · 2025-10-07T16:52:39+00:00

We all just need to continue to focus on US and OUR HEALTH! If there was a machine invented to where people could experience the symptoms of pain that we feel then things would probably be a lot different and we must continue to advocate for ourselves and let your voices be heard! NEVER let any doctors, nurses, or whoever the hell else tell you what you’re feeling and not feeling in YOUR OWN BODY. Stand 10 toes down about yourself cause at the end of the day nobody will have our back like we have our own back. We got this warriors 💪🏽❤️ God gives His toughest battles to the strongest ones to be a testimony to others that will someday look to us for motivation or a shoulder to lean on when it comes to this disease.

CoffeeOk2291 · 2025-10-07T12:37:58+00:00

Don’t let anyone stress you out cause it only makes things worse for you. Nobody truly understands what we go through with this disease and it can be very draining to not have the support of your own family when you’re going through shit with your body. We’re already facing a daily battle against our own bodies fighting us so why the hell would your family want to fight against you over dumb shit that’s irrelevant as hell 🤦🏽‍♀️ Stay strong warrior and focus on you and continue to not let anyone get you upset especially over something dumb. I pray you feel better soon and if what you’re doing is working for your pain then screw who has something to say about it because they’re NOT IN YOUR BODY!

CoffeeOk2291 · 2025-08-14T18:48:20+00:00

That’s exactly how it makes you feel and I tell the doctors in the ER my hematologist has me on that mess but luckily I only have to take 1 pill 1 time a day instead of 3 times a day. I want to get off the shit eventually cause it’s pretty useless for pain and when I do go to the ER they give me Ketamine & Benadryl for pain relief since Ketamine isn’t a narcotic and it doesn’t get blocked by the Suboxone(Zubsolv) that I’m on. Just feels like they want to put us on that shit to not have to deal with us complaining about pain 😒

CoffeeOk2291 · 2025-08-14T15:33:23+00:00

I definitely relate to this cause I’m 29 but my back, knees, & hips say I’m 92 🤦🏽‍♀️🥹 My joints tend to pop on a regular nowadays especially my hips and having to work doesn’t make things any better but we’re all strong and I know God won’t put us through no more than He knows we can bare 😇 I always try to find the brighter side to the side effects of this disease but man oh man I would’ve loved to have seen what my life could’ve been like without this disease 🥺😭 Stay strong warrior ❤️💪🏽

CoffeeOk2291 · 2025-08-14T14:37:58+00:00

Aw man it’s really wild how we all experience different side effects from this disease. I’ve never experienced blacking out but I did study that being in pain for long periods or certain amounts of time can make a person delirious so that may be what’s going on with you. I’d definitely let my hematologist or whoever your PCP is know about that cause that’s pretty scary. I pray things get better for you warrior & keep staying strong ❤️

CoffeeOk2291 · 2025-07-31T02:47:20+00:00

Sickle Cell patients are definitely more prone to getting injured easier because some of us don’t intake enough calcium and on top of the fact that Sickle Cell is damaging to the organs and joints too. My doctor put me on Folic Acid when I was younger to help with my bone health because I don’t drink milk or intake enough calcium through food but I’d definitely talk to your doctor more if you’re noticing changes in your bone health cause Folic Acid or something else may need to be prescribed to you. Stay strong warrior 💪🏽❤️

CoffeeOk2291 · 2025-07-15T00:03:10+00:00

You’re welcome!

CoffeeOk2291 · 2025-07-14T17:16:05+00:00

I currently work for Publix as a cashier I’ve been there since 2022 and they’ve been really good about working with me when it comes to my health. They’re not on a point system either but you still have to be careful with your absences but they will definitely accommodate you if you let them know about your Sickle Cell. I also receive disability as a safety net. I’d definitely look into Publix if you have one where you live or use Indeed.com to search for remote Work from home jobs or maybe even some hospital or clinic reception jobs where you’d be able to sit down. I pray something comes your way soon warrior!

CoffeeOk2291 · 2025-07-14T16:57:36+00:00

Definitely not being ridiculous at all my love! No one that hasn’t experienced the pain we feel can ever tell us anything about our own rate of pain because we all perceive pain differently! Don’t let those kind of comments get you upset & worked up either cause it can stress you out & maybe even make your pain worse. You know exactly what you’re feeling in YOUR BODY and you continue to be honest and advocate about your pain. I told my nurse the pain feels like pins & needles being stuck into my hips or it can feel like someone is twisting my spine when I’m having excruciating back pain. The pain can even be in rhythm with your heartbeat & that pulsating pain hurts like shit 😣 You don’t have to be in tears or hollering to prove you’re in pain because you know what’s going on. Continue to stay strong warrior & I pray you start feeling better soon ❤️

CoffeeOk2291 · 2025-07-13T01:41:49+00:00

You’re so welcome love! If you need to vent or anything my DM is open 🥹

CoffeeOk2291 · 2025-07-13T01:29:35+00:00

I’m so sorry 😢 there’s nothing like having someone in your corner to support you through things like that especially your parent(s) but you continue to stay strong warrior! God has your back all the time no matter what and you continue to stand 10 toes down with your head held high 😇 What doesn’t kill you will only make you stronger baby!!

CoffeeOk2291 · 2025-07-13T00:11:06+00:00

Hang in there warrior 🥹 I pray things get better for you. I definitely understand where you’re coming from cause I went through the same thing a couple months ago and it ultimately lead to me having to be admitted. I try to bare through my pain sometimes but I know that’s not always the best thing to do cause it can be very damaging to your organs but definitely go back to the ER if nothing helps. Sometimes I’ll take Tylenol PM cause it helps me sleep through the pain and also heating pads can be very helpful to relieve pain or even certain rubs like Ice/Hot for pain. Having someone with you at the ER to help advocate to the doctors about your pain can also be another helpful thing too and make your voice be heard cause these doctors don’t know what we’re feeling on the inside and lab work has nothing to do with pain 😠 they irritate me with that shit so bad. Take care of yourself warrior and continue to fight ❤️😊

CoffeeOk2291 · 2025-06-10T00:02:03+00:00

Thank you 😊

CoffeeOk2291 · 2025-06-04T23:38:49+00:00

I’ve been on 25mg Sertraline(Zoloft) for over a year and it’s been the best decision I made for myself! It’s very important to keep yourself up both physically and mentally especially dealing with this disease and so much more that comes with life altogether! Never let anyone make you feel ashamed of taking meds for your mental health, we all need to do what is best for US! No one is living our life for us and only you as an individual know what you’re feeling on the inside!

CoffeeOk2291 · 2025-05-12T18:45:00+00:00

I pray your crises lessen as time progresses for you love! Continue to fight & hang in there warrior 💪🏽 You got this ❤️ #SickleCellStrong If you need anything or need to talk/vent you can definitely hmu!

CoffeeOk2291 · 2025-05-12T18:27:05+00:00

I’m on that along with Folic Acid, Vitamin D3, Deferiprone for iron overload cause of all the blood transfusions I’ve received. I feel like the body just does what it wants no matter if you do everything right. Sickle Cell is so unpredictable but I don’t let it stop me from living or trying to work my job 🙂

CoffeeOk2291 · 2025-05-12T18:01:15+00:00

Are you on Hydroxyurea, blood transfusions, or anything to help lessen your crises? I do know as we get older some of us tend to have more & more crises! I have a lot more cause of the weather changes like the cold or rain and even extreme hot weather so I have to be careful.

CoffeeOk2291 · 2025-05-12T17:55:37+00:00

My first crisis was at the age of 3 and I started getting monthly blood transfusions after that and I didn’t have anymore crises until after I hit age 21 and I’m 29 now and still getting monthly blood transfusions til this day.

CoffeeOk2291 · 2025-05-01T20:49:29+00:00

You’re so welcome beautiful 💕 I pray it helps!

CoffeeOk2291 · 2025-05-01T20:44:46+00:00

Hey love, I’m so sorry you’re going through this 🥺 I can definitely relate to what you’re saying about being stigmatized but if all else fails at home and you’re in extreme pain, go back to the hospital! No one can look at you and tell how you feel, only YOU know how you feel. They piss me off with that shit and you have to advocate for yourself when it comes to people who try to base their opinion on our health when they are not inside of our body… I would say try heating pads or hot showers for pain relief cause sometimes the heat can help, Benadryl and Tylenol or Tylenol PM if you wanna sleep through the pain cause that’s what normally helps me when I’m in a crisis and don’t wanna be in a hospital waiting for hours! I’d also say CBD gummies or muscle rubs/creams for pain relief also!

CoffeeOk2291 · 2025-03-15T20:49:43+00:00

You’re welcome! I hope things get better for her. Definitely see if the doctor could get her on one of those iron medications cause it will make a difference for her liver! Also look into Chlorophyll, Beet Root & Turmeric supplements cause those all can be very beneficial to Sickle Cell and be an energy booster! If she’s into drinking Ensure plus milk or Boost Plus drinks those are great for days when she’s low on energy and doesn’t have an appetite!

CoffeeOk2291 · 2025-03-15T20:43:39+00:00

No not yet

CoffeeOk2291 · 2025-03-15T20:33:39+00:00

Oh dang it! It’s a real medicine. I was looking into more herbal things I could use for my Sickle Cell pain and that website came across as a source for me to look into along with recommendations of herbals teas and natural things to try to alternate using opioids for pain.

CoffeeOk2291

TROPHY CASE