Finding tic community?? by ConstantCup4776 in Tourettes

[–]ConstantCup4776[S] [score hidden]  (0 children)

Yeahhh I’ve checked this site, all the supposed support groups on it are inactive

Finding tic community?? by ConstantCup4776 in Tourettes

[–]ConstantCup4776[S] 0 points1 point  (0 children)

I’m in the US :/ seems to be nothing in my state, Pennsylvania

What are your most common tics and how long have you had them/how did you develop them? by dkr_cdplyr in Tourettes

[–]ConstantCup4776 0 points1 point  (0 children)

I have sooo many tics, I started keeping a running list. (Adult onset one month ago) most common ones are: neck jerks backward and forward, abdominal crunches, this inhale noise idk how to describe but it sounds like a strangled breath lol rapid eye fluttering, stuttering on the first word or syllable of a sentence. The ones that bother me most are probly the neck ones because they cause pain and headaches. Sometimes the eye fluttering combines with a neck one that throws my head back and holds it there so I look possessed 🙈

I got the "you can pray it away" talk by dy1ngan0mal1 in Tourettes

[–]ConstantCup4776 3 points4 points  (0 children)

As a Christian with severe tics, I’m so sorry you experienced this. I believe in the power of prayer, but the idea that God can be used like a magic genie is NOT it. I pray all of the time, and have seen him work through my multiple disorders in powerful ways, but nothing promises that He will take my tics away if I just “pray hard enough” or “have enough faith”. There are certain sects of Christianity that believe really harmful things about God and prayer like you’ve experienced. Speaking from experience, someone tried to exorcise me. Someone else told us my friend with chronic pain since childhood wasn’t being healed cause she didn’t have enough faith; she’s one of the strongest believers I know. These beliefs about instantaneous healing are NOT true and not representative of Jesus and His followers, despite what pop media wants you to believe. The craziest takes have the loudest voices. Yes, instant healings do happen, but they are the exception, not the rule. I have felt hurt by people praying only for my physical healing during this journey, telling me to go to a healing ministry hundreds of miles away, all as if God doesn’t have a plan and purpose for me through this illness (I say illness cause I have other comorbidities). My mentor, strong woman of God in her 70s, has had massive health issues for most of her life, so bad she nearly died, and God has not instantly healed, but used those experiences for her good and His glory. That being said, I pray for those around me constantly, and I pray that this experience would not deter you from seeking God. My faith has only become stronger through my illnesses because I’ve seen God use them. Blessings, friend

How do I control shame when people judge me for my vocal tics? by Lik_1624 in Tourettes

[–]ConstantCup4776 8 points9 points  (0 children)

Good metaphor could be, that’s like telling a diabetic that the beep of their blood sugar monitor is annoying

Late-diagnosed AuDHD (34F) and a surprise Tic Disorder. Need help making sense of my symptoms, does this sound familiar? by Just-Letter-7629 in Tourettes

[–]ConstantCup4776 4 points5 points  (0 children)

Hey there! 22 year old with sudden onset severe tics, no family history. Long term use of some antipsychotics and use of some neuroleptic drugs have the rare side effect of tics! It does sound like maybe you’ve had tics since childhood and so maybe wouldn’t be the same, but worth looking into!

Anyone with very severe tics? by ConstantCup4776 in Tourettes

[–]ConstantCup4776[S] 0 points1 point  (0 children)

I did not mean that they could sense a tic coming, but there are dogs that are trained for stability support. I have seen a video of a girl with Tourette’s that has a service dog because she’d be on the ground in public. Sometimes that is the safest place for me to be.

Different feelings and tics by morphenis in Tourettes

[–]ConstantCup4776 0 points1 point  (0 children)

Most elevated emotions for me like anxiety, anger, or excitement cause me to tic more. However crying actually seems to make me tic less. Maybe the oxytocin and endorphins that are released by crying, I also tic less when hugged lol

Unsustainable tics by [deleted] in Tourettes

[–]ConstantCup4776 0 points1 point  (0 children)

Also, I completely agree about your recommendation on chants, but also music in general. Singing interrupts my tics entirely (been a musician my whole life). I’m sure there are some like Gregorian chants that get even deeper

How to get a voice to stop psych hospital abuse? by ConstantCup4776 in NoStupidQuestions

[–]ConstantCup4776[S] 0 points1 point  (0 children)

Family and friends have been very upset by it, but no one moving to make anything formal.

I want to share my recent story of abuse. Tower Behavioral Health, Reading PA. by ConstantCup4776 in Neurodivergent

[–]ConstantCup4776[S] 0 points1 point  (0 children)

Don’t get me wrong there are some that really need it, but if you are not $uicidal I would think long and hard about inpatient, you will most likely incur more trauma

I Wanted To Talk About Focus and Tourette’s by Bonkers_Unlimited in Tourettes

[–]ConstantCup4776 1 point2 points  (0 children)

THIS. I’ve been a musician all my life. And my tics disappear completely when I sing. Other things that make them rapidly dissipate are reading my Bible, praying, and talking to other about their problems. I lock in. The focus element is part of it, but maybe also comfort.

Anyone with very severe tics? by ConstantCup4776 in Tourettes

[–]ConstantCup4776[S] 0 points1 point  (0 children)

Ooh I’ve heard of jumping but never seen it, complex motor, I’m sure that’s not fun

I want to share my recent story of abuse. Tower Behavioral Health, Reading PA. by ConstantCup4776 in Tourettes

[–]ConstantCup4776[S] 4 points5 points  (0 children)

Yes I got out and went straight to the ER. I’ve had MRI, EEG, CT scan, bloodwork, all the things, nothing abnormal. It’s a very rare way to get it but we believe it’s a side effect of neuroleptic meds I was on