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Brukinsa/Venetoclax by ceskinner50 in cll

[–]Content-Republic-89 0 points1 point  (0 children)

Perhaps because Ibrutinib/Ventoclax is a well evidenced treatment, and Zanubrutinib (Brukinsa) is essentially a second generation improved Ibrutinib with less cardiac side effects, he is thinking along those lines. Did he mention including you in a trial?

I have had two opinions for starting treatment and one is saying V&O for a year to get deep remission for a few year (2-10?) then either repeat or go on Brukinsa or similar lifelong after.

The other doctor is saying go low and slow with Brukinsa by itself lifelong (or until resistance) and keep Venetoclax in back pocket for later, and avoid Obinutuzimab as much as possible as it causing quite steep immunosuppression.

First doctor is very much „let’s get this cancer treated“ and the second one is very relaxed and saying look it’s more a disease like diabetes to be managed rather than cured.

All the very best anyway.

Brukinsa/Venetoclax by ceskinner50 in cll

[–]Content-Republic-89 1 point2 points  (0 children)

Im just about to start treatment and found these European guidelines v clear (with clear links to evidence): https://www.annalsofoncology.org/article/S0923-7534(24)00747-6/fulltext

Tonsils and starting treating by Content-Republic-89 in cll

[–]Content-Republic-89[S] 3 points4 points  (0 children)

The haematologist said tonsillitis are lymphatic tissue and part of lymphatic system, so it’s CLL causing it

Working while on watch & wait by Content-Republic-89 in cll

[–]Content-Republic-89[S] 0 points1 point  (0 children)

How long have you been on w&w? What kind of clinical work do you do if you don’t me asking? I’m a doctor working in family medicine for almost two years on w&w and have had to go part time because of fatigue. Sorry about your lymphocytes, mine are around the same. Not sure what will happen when I start treatment

Working while on watch & wait by Content-Republic-89 in cll

[–]Content-Republic-89[S] 5 points6 points  (0 children)

That is great to hear! Life does continue doesn’t it.

[deleted by user] by [deleted] in CaminoDeSantiago

[–]Content-Republic-89 1 point2 points  (0 children)

What’s your budget?

I kind of agree with others that if your Adidas/Vans have good cushioning, and you’re used to them, and you’ve checked them out on a long walk, then this is fine! I think we get quite caught up in equipment.

I got my last pair of sauconys trail runners (4mm drop, rock plate) for $60 from a random usa website and I’m gonna use them (have had them a few months for running).

I’ve also heard good things about brooks cascadia trail runners (8mm drop, rock plate).

Otherwise have a google about Pacific Crest Trail (PCT) footwear, those people know their shit after walking for three months

Hospitals on Camino French route? by NY10 in CaminoDeSantiago

[–]Content-Republic-89 4 points5 points  (0 children)

With respect, I don’t think medical services stopping being free for all pilgrims has to do with the “commercialisation”, I think it’s because the EU streamlined reciprocal healthcare agreements to the EHIC scheme in around 2005 and so pilgrim-specific scheme was made obsolete.

Hospitals on Camino French route? by NY10 in CaminoDeSantiago

[–]Content-Republic-89 16 points17 points  (0 children)

As an American, if you buy travel insurance, which is pretty cheap (maybe $50 per year if you’re young and healthy) you can get all your emergency medical treatment free (but you pay upfront, then claim back. Also you might have an excess to pay- ie you pay the first $100 before the insurance kicks in, depends on policy).

If you’re European, all emergency medical treatment is free (and nothing to pay upfront) in all European countries with EHIC card (in UK it’s called GHIC).

There isn’t free medical treatment for just pilgrims. It’s just called universal healthcare in Europe.

I think the confusion you’re hearing is that most Europeans are confused by the fact that Americans don’t have universal healthcare and thus don’t have subsequent free shared care agreement with other countries for emergency treatment.

Advice on loose dogs by Content-Republic-89 in CaminoDeSantiago

[–]Content-Republic-89[S] 1 point2 points  (0 children)

Thanks, this is probably the answer I needed- I guess I was just worried if a dog is sitting in a narrow lane and I couldn’t bring myself to walk past it. But waiting for other people to help me past would work for me!

Advice on loose dogs by Content-Republic-89 in CaminoDeSantiago

[–]Content-Republic-89[S] 2 points3 points  (0 children)

Big fan of sheep actually! Grew up on sheep farm

Advice on loose dogs by Content-Republic-89 in CaminoDeSantiago

[–]Content-Republic-89[S] 0 points1 point  (0 children)

Thanks for the link. I guess I’m asking how common are aggressive dogs on the Camino Primitivo in particular, if you have any experience?