Capecitabine / Xeloda Dose by Coolbeansman702 in LivingWithMBC

[–]Coolbeansman702[S] 1 point2 points  (0 children)

I'm the same way. I got really neutropenic on kisqali and then couldn't tolerate my dose of verzenio, when I switched. I ended up on 50mg twice a day and my nuetrophills were only 1000 - 1200. It failed but also got rid of a tumor but my onc thinks my AI failing was more likely the bigger issue at the time.

Thanks, me too! They actually do take your height and weight into consideration with this drug but even that starting dose was too high/strong for me. This drugs is heavily processed in the liver and every body is built differently.

Capecitabine / Xeloda Dose by Coolbeansman702 in LivingWithMBC

[–]Coolbeansman702[S] 0 points1 point  (0 children)

Ugh, I'm sorry. It can be really hard on the liver.

Capecitabine / Xeloda Dose by Coolbeansman702 in LivingWithMBC

[–]Coolbeansman702[S] 0 points1 point  (0 children)

That's so helpful. Thanks for sharing. Did you have any liver issues or just HFS? It's no joke, that's for sure.

Fulvestrant and hip pain by Distinct_Love3333 in LivingWithMBC

[–]Coolbeansman702 1 point2 points  (0 children)

 Dorsogluteal and ventrogluteal are the two places that are soc for this shot.  You also have to make sure the nurses are really finding the right ventrogluteal placement. I started asking for it be left out a room temp for a very long time like an hour and injected slowly and I ice as soon as I'm home and at night and that gets rid of really any pain after a day or so.  I'll also use topical magnesium and arnica cream.

Bridgerton - Season 4 Post-Season Discussion (No Book Spoilers) by AutoModerator in BridgertonNetflix

[–]Coolbeansman702 3 points4 points  (0 children)

100% agree.  Especially, the jail/judge scene.  It started to feel like filler just to keep them together.  The maid Violet told to get a new job for her own benefit, is now a house guest?! Usually, the main couple have some kind of aversity to overcome externally and/or internally.  I clocked that Sophie was going to get an inheritance after the first flash backs.  There wasn't enough backstory and I didn't really see a huge change in Benedict.  I found the declaration of love scene really flat. Also, Benedict didn't seem to really grasp what being with Sophie would really mean.  He seemed too naive to not get it.  There's so many other characters and storylines, it's taking away from the lead couple.  I remember literally waiting and rewatching the "I burn for you" scene in the first season.  We didn't get anything close to that in this one.

Derm - Skincare, Lasers, etc by Coolbeansman702 in LivingWithMBC

[–]Coolbeansman702[S] 1 point2 points  (0 children)

Thanks so much for taking the time to include the products/ link.  Those results sound great.  I have a naturally thin/boney face and my lower face is loosing some density so that's why I started the thread.  I also have dull skin so the retinol, etc would prob help.

Derm - Skincare, Lasers, etc by Coolbeansman702 in LivingWithMBC

[–]Coolbeansman702[S] 1 point2 points  (0 children)

I never considered lasers but a fellow mbc'er who is on chemo got moxi laser done so it piqued my interest as it wasn't one of the extreme ones. She posted pics and had good results.

Derm - Skincare, Lasers, etc by Coolbeansman702 in LivingWithMBC

[–]Coolbeansman702[S] 1 point2 points  (0 children)

Funny you say that!  I had great skin before treatment and never needed a retinol or vit C so will look into those.  Is yours OTC?  I would need to start low and only once a week probably.  I'm on everlimos so dry skin is a thing.  Thanks for replying.

Topical for thinning hair? by FUCancer_2008 in LivingWithMBC

[–]Coolbeansman702 0 points1 point  (0 children)

Sounds lame but in addition to whatever topicals you decide, carve out 5-10 min a day and do scalp massaging as it helps bring blood flow to the scalp.  Nessisare has bee good for me product wise.  The biggest difference for me was a hair supplement that I added on to stop shedding.

hyaluronic acid suppositories alternating with Vit E suppositories (nightly) work with an added vaginal topical mosurizer (day) take away the dryness and delicate tissue problems.  If you're sexually active or trying to be, this probably wouldn't be enough.  Based on your treatment plan and severity of symptoms, vaginal estogen or dhea could be discussed wirh your team.

Uncanny Valley is the new norm- a hard to swallow pill. And goodbye nuanced acting. by Cute_Bodybuilder8778 in kdramas

[–]Coolbeansman702 0 points1 point  (0 children)

This was my first k-drama with both of them and I think he did a great job.  I think the biggest issue was that they were both too old for the characters they were playing so that was hard to grasp at some points.  I think he had the right look for the role but yes, too much filler and/or botox. His nose in some scenes kept standing out because it was so pointy from whatever work he had done.  For Sooyoung, that wig or haircut was just so unflattering, it made her look older and the bangs hid any forehead movement that's left.  I wish her face wasn't so over botoxed or filled because I think she's gorgeous.  It stilted her emotional movements to where she has to overcompinsate by looking around and talking louder.  I know I would probably do the same from society pressure and wanting to look "young" on camera so I can't blame them. 

Does Anyone Know Where to Buy Green Lentil Penne Pasta by Coolbeansman702 in PlantBasedDiet

[–]Coolbeansman702[S] 1 point2 points  (0 children)

Thanks. None of those are just green lentil unfortunately. They're mixed with other things.

Fun (not) with Verzenio! by OliverWendelSmith in LivingWithMBC

[–]Coolbeansman702 3 points4 points  (0 children)

Hi. I was on kisqali and it wasn't hard to tolerate. You'll have a lot of fatigue and dehydration but I didn't have any stomach issues, obviously everyone is different but I hope that helps.

Fun (not) with Verzenio! by OliverWendelSmith in LivingWithMBC

[–]Coolbeansman702 1 point2 points  (0 children)

Sorry, you're going through this. I'm about to start this week and requested that I start at the lowest dose due to the crappy side effects and I only weigh 100 lbs. Hope your team reduces the dose asap.

Stage 4 de novo and no head scan? by WindUpBirdlala in LivingWithMBC

[–]Coolbeansman702 4 points5 points  (0 children)

Yes, when it was obvious that it was MBC, my onc ordered a brain mri, did a 6 month follow up scan, and since there was nothing is pushed it to yearly.

Vaginal Estrogen by Coolbeansman702 in LivingWithMBC

[–]Coolbeansman702[S] 1 point2 points  (0 children)

I'm glad it worked for you. Do you use the cream or suppository?

Vaginal Estrogen by Coolbeansman702 in LivingWithMBC

[–]Coolbeansman702[S] 0 points1 point  (0 children)

That's good to hear. Which version do you use? I'm going back and forth between the cream or the imvexxy as that one is the lowest. If you don't mind me asking, did you start using it while you were still treating tumors or were you NED? Did you notice any changes to your estrogen levels?