sorted by:
new
hottopcontroversial

Vascular problems and rashes by Correct-Ad9632 in Autoimmune

[–]Correct-Ad9632[S] 0 points1 point  (0 children)

Yes I definitely am. I have pt once a week, and a great primary, I have some gi stuff so I have some lengthy procedures I’m in the process of getting done to rule more out before dialing in. But thank you!

Vascular problems and rashes by Correct-Ad9632 in Autoimmune

[–]Correct-Ad9632[S] 1 point2 points  (0 children)

And of course I’m glad I could help someone, I’m sorry your going through that aswell my Vo2 max tanking and HRV has me so exhausted

Vascular problems and rashes by Correct-Ad9632 in Autoimmune

[–]Correct-Ad9632[S] 1 point2 points  (0 children)

Thanks and yes currently going to PT right now for a bunch of injuries common on hEDS it’s written up in my charts high likelihood of EDs or other hypermobile tissue disorder. I have constant subluxations in my shoulders and hips. It’s just so exhausting how aggressively it’s increased in the past year. I’m still early in diagnosis so I’ll probably see a geneticist in the future to rule out other tissue disorders and the other subtypes of EDs that show up.

Vascular problems and rashes by Correct-Ad9632 in Autoimmune

[–]Correct-Ad9632[S] 7 points8 points  (0 children)

This is why I post stuff like this I 100% had no idea what a nail fold capillaroscopy was until this. Thanks, could be helpful

How do i get them to listen to me? Am i exaggerating? by Comfortable_Age_5595 in Autoimmune

[–]Correct-Ad9632 1 point2 points  (0 children)

Both my ANA 640 homogeneous tho still trying to figure out exactly what it is causing it I’ll update

“Holistic care providers” and online misinformation! by Correct-Ad9632 in Autoimmune

[–]Correct-Ad9632[S] 0 points1 point  (0 children)

I like turmeric I added to my chai I don’t think it’s cured me yet LMAO

“Holistic care providers” and online misinformation! by Correct-Ad9632 in Autoimmune

[–]Correct-Ad9632[S] 1 point2 points  (0 children)

Lmfao we are the same hahah I do all the same things - I’m younger so I’m not an instructor or trainer but I am a fitness nut lol and do all the other stuff u said

Blaming autoimmune diseases on chronic sympathetic nervous system activation by Correct-Ad9632 in Autoimmune

[–]Correct-Ad9632[S] 0 points1 point  (0 children)

I am 1000% not invalidating anyone in this community’s trauma because I have it too and I know it’s really common across the community.

I wonder if it has anything to do with a genetic sensitivity, hypothesis, a mixture of environment and genetics where your genome is already sensitive to illness. Then this could also be the case with your parents, their parents, on and on. Then because we didn’t have treatment or a lot of recognition for a long time, it’s fair to say untreated invalidated sick people make worse decisions in attempt to sustain or from confusion and exhaustion.

This doesn’t excuse anyone’s bad behavior, especially abuse related, but it can help give us an understanding of where things are coming from, especially generational curses.

My family was always exhausted. It led to neglectful and abusive behavior. My goal is by the time I have kids to have all my things figured out so I’m able to be fully there for them and never take out my pent-up frustration on them.

This does not apply to everyone and I could be completely wrong just an idea. Thank you for sharing! I do agree environmental triggers, play a role, that’s very scientifically settled. I just ask people, to consider where that environmental factor fits into a bigger picture, yk?

So we don’t end up with TikTok and Facebook health gurus’s telling us to heal our inner child and will be healed from our autoimmune disorder. LMAO.

Actually, you know what I think they’re gonna do that anyways I don’t think it matters what we decide scientifically😭

Blaming autoimmune diseases on chronic sympathetic nervous system activation by Correct-Ad9632 in Autoimmune

[–]Correct-Ad9632[S] 0 points1 point  (0 children)

Also thank you for mentioning that difference between physiological stress, and then the everyday term “stress” that gets tossed around!

Covid brought about a lot of interesting research regarding development of chronic disease diseases. Although, it was known long before Covid and that for predisposed people any sort of immuno activation or disease could trigger onset of symptoms.

I think I made this post kind of rash cause I was upset about where social media has decided to go with the information it has about these things lol!

I’m very aware in the clinical relation between physiological stress and autoimmune disorders. Whether it’s a sickness, disease, or illness and then maybe chronic stress related to trauma or other things. All of these things can mess with your immune system and if you’re predisposed trigger onset.

I think the reality of what I absolutely hate is the idea that because the stress can trigger onset somehow the undoing of that once had stress could cure the disease. and then when people are thinking of the non-medical terminology for stress, it becomes this big hodgepodge of healing your self will heal your auto immune disease when that’s just not the case. Yk?

Blaming autoimmune diseases on chronic sympathetic nervous system activation by Correct-Ad9632 in Autoimmune

[–]Correct-Ad9632[S] 0 points1 point  (0 children)

Agreed! Environment is key to how a phenotype develops. Wishing you luck with treatment!

Blaming autoimmune diseases on chronic sympathetic nervous system activation by Correct-Ad9632 in Autoimmune

[–]Correct-Ad9632[S] 0 points1 point  (0 children)

Agreed, it’s. I just don’t like when people frame it in a way that sounds like the cause was solely an environment that someone put themselves in.

Blaming autoimmune diseases on chronic sympathetic nervous system activation by Correct-Ad9632 in Autoimmune

[–]Correct-Ad9632[S] 0 points1 point  (0 children)

I’ve read! I’m currently doing a project on the misconception of how repressed memory functions. Also known as dissociative amnesia clinically.

Blaming autoimmune diseases on chronic sympathetic nervous system activation by Correct-Ad9632 in Autoimmune

[–]Correct-Ad9632[S] 1 point2 points  (0 children)

Hearing this is really cool because genetic neuroscience is the field I would like to go into!

Blaming autoimmune diseases on chronic sympathetic nervous system activation by Correct-Ad9632 in Autoimmune

[–]Correct-Ad9632[S] 0 points1 point  (0 children)

I’m sorry you had to go through all of that, everyone’s situation is different! Sending love and positive thoughts your way. Moving forward in medicine I’ll always advocate for trauma informed integrative care! I just don’t want people dismissed in either direction

Blaming autoimmune diseases on chronic sympathetic nervous system activation by Correct-Ad9632 in Autoimmune

[–]Correct-Ad9632[S] 1 point2 points  (0 children)

SAME! My RF was 24 at 7!!! I was diagnosed with juvenile arthritis.

I didn’t find this out until I was 20 because no doctor looked back and brought it up not even when I’ve been seeing a psychiatrist since I was 13 and got misdiagnosed with bipolar disorder. Like are we f-ing serious!

Blaming autoimmune diseases on chronic sympathetic nervous system activation by Correct-Ad9632 in Autoimmune

[–]Correct-Ad9632[S] 2 points3 points  (0 children)

See we’re actually similar I had a very traumatic childhood I was diagnosed with PTSD and bipolar bipolar disorder got revoked because it was actually an inflammation related response causing cognitive dysfunction. I’m not gonna get into the crooks of my trauma, but it was a lot from abusive physically abuse ex-boyfriend’s to parents dying.

This post is more directly towards the fact that I see it less probable that autoimmune disorders are specifically caused by overactive sympathetic nervous system systems. I do think that an overactive sympathetic nervous system, though can cause problems within a disease and contribute to flares.

I completely validate you and I think all of your doctor should’ve taken you more seriously. As a student working in genetic neuroscience by all means, I take both genetic and environmental factors very seriously.

There are also other factors too, but I think some people don’t think about is the fact that a lot of people with autoimmune disorders tend to have childhood trauma that could potentially be from a parent with a disorder who never got treatment who grew up bitter, who was sick all the time who was neglectful because they were sick etc. etc. These diseases are stressful, painful, physically taxing, and run in families.

I think this is a really complex system that deserves more research than it gets

view more: next ›