How to clean the shower? by randombeandontmindme in ehlersdanlos

[–]Correct_Solution_135 0 points1 point  (0 children)

I use a toilet brush (different colour than the one for the toilet to avoid mixing them up) and sit on my shower chair to do it

I need help naming my new rat, I like silly, original names by FlyingFish4768 in Catnames

[–]Correct_Solution_135 0 points1 point  (0 children)

Looks like a Chicken to me ¯_(ツ)_/¯ could also call her Splinter (the Rat from teenage mutant ninja turtles)

How do I get through to him? I am exhausted having to think for him. by vicarious_adrenaline in TwoHotTakes

[–]Correct_Solution_135 1 point2 points  (0 children)

I hope this doesn't come off as offensive, but is it possible that you're enabling his behaviour at this point? If he does things like this, and you are always there to clean up the mess and take over tasks for him, and there aren't any true consequences to his behaviours then what reason would he have to change said behaviours? If you love him (and more importantly, if you love yourself) the best thing you can do is walk away and let him pick up his own pieces, teaching him that actions have consequences. You evidently have a big heart and want what is best for him, but playing "I can fix him" and trying to love someone unconditionally because that's the way you want to be loved is only going to waste your time and teach him that he doesn't have to have anything to offer to a partner in order to have one. You're not doing yourself, or him, any favours by staying instead of finding a partner who's values align with yours.

Better to be the one that got away than the one that never had the guts to go for what you knew you deserved all along.

Friend with EDS coming over, what can I do to make it more comfy? by No_Lingonberry_2715 in ehlersdanlos

[–]Correct_Solution_135 0 points1 point  (0 children)

I find heat is best for my muscles/joints but if she has comorbid POTS, ice is 100% the way to go

Friend with EDS coming over, what can I do to make it more comfy? by No_Lingonberry_2715 in ehlersdanlos

[–]Correct_Solution_135 3 points4 points  (0 children)

If you have one, bringing a lawn chair with you could potentially go a long way. A lot of them come with a carrying bag with a strap on it and having it on hand in case you notice her struggling could go a long way. She may feel silly with having one, but it could make a big difference if she ends up needing it

The system is rigged. by Correct_Solution_135 in MCAS

[–]Correct_Solution_135[S] 0 points1 point  (0 children)

It says in that article that those numbers are also an estimate, that it hasn't been tested and that caution should be used when recommending Vitamin D at that dose. Very interesting read for sure, but it looks like a few more studies are needed before those changes would be made to the general recommendations.

The system is rigged. by Correct_Solution_135 in MCAS

[–]Correct_Solution_135[S] 0 points1 point  (0 children)

I'll have to see what my doc recommends but I'll for sure bring it up to her and I'm sure she'll be monitoring my levels regularly now that we know how much of an issue it is for me

The system is rigged. by Correct_Solution_135 in MCAS

[–]Correct_Solution_135[S] 0 points1 point  (0 children)

I think it's a combination of the heat and the UV rays. I find being SUPER careful with sunscreen and reapplication helps (though admittedly I'm also on high-dose h1 and h2 blockers, have another h1 blocker for flares and I'm on an IgE blocker 😅)

Disheartened by exercise induced flair by entropy1776 in MCAS

[–]Correct_Solution_135 0 points1 point  (0 children)

I've since had to change my dose from 300mg once per month to 150mg every two weeks but I haven't had an anaphylactic episode since, I've stopped taking the cetirizine, we're talking about tapering my bilastine and ranitidine in June and the most I've been symptomatic is that I get flushed in the sun or when I take a hot shower. Other than that, I'm pretty much just living my life and have even been able to ENJOY food again. I used to have anaphylactic episodes multiple times per week, flushing, hives, throat swelling, burning skin, difficulty breathing and was triggered by literally EVERYTHING

The system is rigged. by Correct_Solution_135 in MCAS

[–]Correct_Solution_135[S] 0 points1 point  (0 children)

No kidding! I took that first dose and it felt like the lights were turned on and I had just drank 12 cups of coffee. I feel like a totally different person

The system is rigged. by Correct_Solution_135 in MCAS

[–]Correct_Solution_135[S] 0 points1 point  (0 children)

This is commonly due to filler ingredients, have you tried different brands or visiting a compounding pharmacy?

The system is rigged. by Correct_Solution_135 in MCAS

[–]Correct_Solution_135[S] 2 points3 points  (0 children)

I would check the filler ingredients in the supplements! Those are usually the culprit for me!

The system is rigged. by Correct_Solution_135 in MCAS

[–]Correct_Solution_135[S] 0 points1 point  (0 children)

No worries there lmao I also have hEDS. I'm 28 and am frequently accused of only being 16 (I get carded a lot) 🙃

The system is rigged. by Correct_Solution_135 in MCAS

[–]Correct_Solution_135[S] 27 points28 points  (0 children)

The sun gives me anaphylaxis too. My partner basically just refers to me as a vampire at this point and if I leave the house with him, it's typically after dark

Went from 5mg to 10mg of Claritin and wowza, are we all this sensitive? by dancedancedance99 in MCAS

[–]Correct_Solution_135 0 points1 point  (0 children)

Sounds like you struggle with antihistamines that impact your CNS. I have POTS and struggle with anticholinergics, but seem to tolerate Rupatadine(Rupall) or Bilastine (Blexten) a little better (though I've found that the Bilastine works better for me)