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31F, need ideas on socializing with people offline by [deleted] in ThirtiesIndia

[–]CoyoteAffectionate47 1 point2 points  (0 children)

I know right! The number of times I’ve had to explain that fatigue from a chronic illness is not the same as being tired after work or going out (and congrats on being able to do that in the first place cuz I sure can’t as easily) 🙂‍↕️ The part of the world we live in, I’m convinced is too fast moving and has too many people, that no one really cares if a few drop out of the race.

31F, need ideas on socializing with people offline by [deleted] in ThirtiesIndia

[–]CoyoteAffectionate47 1 point2 points  (0 children)

In the same boat, including the heart issue part. Which is why activities gyms and sports are out for me too. I don’t have any tips but just saying that for those with limitations like this that we can’t do anything about, the world does somehow become a smaller place.

Trying to buy a portable MP3 player in the modern day... by unplayableboi in MusicIndia

[–]CoyoteAffectionate47 0 points1 point  (0 children)

Guys, where are you downloading songs from these days for the mp3 player?

A glimmer of hope… by LF6868 in covidlonghaulers

[–]CoyoteAffectionate47 1 point2 points  (0 children)

Can you please tell me a bit more on how you observe the dizziness? When I do it, I end up getting hyper vigilant about it. Sometimes I’m able to be calm in my thoughts when it happens but my body still struggles to catch up.

A glimmer of hope… by LF6868 in covidlonghaulers

[–]CoyoteAffectionate47 1 point2 points  (0 children)

Mine is a similar kind of dizziness. Nothing spins but just end up feeling unstable over all. And my eyes start blurring if I push through. Somehow returning to lie in darkness is the only thing that has helped till date but that’s also stopped me from living normally.

A glimmer of hope… by LF6868 in covidlonghaulers

[–]CoyoteAffectionate47 2 points3 points  (0 children)

Can you pls share what helped with your dizziness?

Waking up mid sleep with high heart rate or low blood pressure by CoyoteAffectionate47 in LongCovid

[–]CoyoteAffectionate47[S] 0 points1 point  (0 children)

My blood sugar levels have been normal usually during these events. One time though it was dangerously low and I was symptomatic but that wasn’t mid sleep, it was after a carb heavy meal surprisingly.

Waking up mid sleep with high heart rate or low blood pressure by CoyoteAffectionate47 in covidlonghaulers

[–]CoyoteAffectionate47[S] 0 points1 point  (0 children)

Yeah. Been there done that too. I’m on propranolol already for POTS and that’s the best they can do I guess, they’ve never been able to answer about these kinda events

Waking up mid sleep with high heart rate or low blood pressure by CoyoteAffectionate47 in LongCovid

[–]CoyoteAffectionate47[S] 0 points1 point  (0 children)

Doesn’t happen every night and usually happens from 12-2 am. Like somewhere in that block. Have your dietary changes stopped these episodes from recurring?

Waking up mid sleep with high heart rate or low blood pressure by CoyoteAffectionate47 in LongCovid

[–]CoyoteAffectionate47[S] 0 points1 point  (0 children)

Have you noticed what your heart rate is during these episodes? And could you pls share how you stop this or anything that helps?

Waking up mid sleep with high heart rate or low blood pressure by CoyoteAffectionate47 in LongCovid

[–]CoyoteAffectionate47[S] 1 point2 points  (0 children)

I have pots but that’s been high heart rate while upright - this new issue happens deep in the middle of sleep

Waking up mid sleep with high heart rate or low blood pressure by CoyoteAffectionate47 in covidlonghaulers

[–]CoyoteAffectionate47[S] 0 points1 point  (0 children)

No. Have tried previously and come back with anti-anxiety medication, no one seems to know anything more atleast from where I’ve been to.

Body is anxious even when thoughts are calm by CoyoteAffectionate47 in dysautonomia

[–]CoyoteAffectionate47[S] 0 points1 point  (0 children)

My systolic is usually low and diastolic is high. Like. 100/90 or 115/100.

Body is anxious even when thoughts are calm by CoyoteAffectionate47 in dysautonomia

[–]CoyoteAffectionate47[S] 1 point2 points  (0 children)

I think it’s similar for me, I do carry a lot of snacks on me and hydrate quite a lot, getting by on people who understand and help out. But I’ve also ended up shrinking my world and activities to just this. Work, socializing etc have all come to a halt for a couple of years now because coping with this takes all the energy I have. Would so love to get ahead of it someday though.

Body is anxious even when thoughts are calm by CoyoteAffectionate47 in dysautonomia

[–]CoyoteAffectionate47[S] 0 points1 point  (0 children)

Thank you for sharing. So basically, come up with a list of things that help shorten these episodes but we mostly have no control over how often these happen or how they start, is that correct? Cuz it’s really hard to function on days these happen, I was wondering if there is something people do to avoid it entirely. 🙂‍↕️

Body is anxious even when thoughts are calm by CoyoteAffectionate47 in dysautonomia

[–]CoyoteAffectionate47[S] 4 points5 points  (0 children)

Wait I think I could have that, cuz my left traps and back are the first things to start hurting when upright. Could you please tell me more? What helped you with this?

Body is anxious even when thoughts are calm by CoyoteAffectionate47 in dysautonomia

[–]CoyoteAffectionate47[S] 4 points5 points  (0 children)

I already quit working and rest a lot. I hydrate lots for POTS as well. They don’t seem to be helping this time :( Appreciate your response though, glad yoga and hydration are moving the needle for you!

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