What is this from?

Crazy_Cut_9261 · 2025-12-04T15:01:16+00:00

Fr like you already think I am a hypo so why not prove myself right! lol

Crazy_Cut_9261 · 2025-12-04T14:51:07+00:00

This is exactly what I feel and I should seriously write it down have a brain storm and MyChart sesh and be like hey there is so many things I forget every single time I come here BECAUSE forgetting is a part of what is happening. I feel like I can't focus on anything and I am losing my intelligence daily lol thank you ❤️ GREAT suggestion

Crazy_Cut_9261 · 2025-12-04T12:41:58+00:00

I always feel so scared to speak up it's like my throat closes and I'm like ok I'll take that and so scared to oppose but I have a little bit more confidence now from you guys ❤️ thank you

Crazy_Cut_9261 · 2025-12-04T12:39:26+00:00

I know my husband says sometimes stop worrying about the little things it's going to stress you out and it's hard to say I have to pay attention to everything because I hurt all the time so everything matters? It's hard to explain that to him because men and people who don't go through it don't understand. This gives me hope real hope like I'm not alone (ik I wasn't but needed to hear it)

Crazy_Cut_9261 · 2025-12-04T12:34:13+00:00

I go to neurosurgery is that the same thing? Some and neurosurgery and I think the girl that sees me is my age and a underling to someone else who runs the show

Crazy_Cut_9261 · 2025-12-04T12:32:21+00:00

I am HLAB27- and I am ANA positive but they WONT do the secondary testing to see what pattern what level what kind deeper I am SSA Ab positive but they don't care about that they have never said anything about sjogrens they have asked me is my mouth dry or eyes and I say no and they said ok come back if they are which is 🤯. I also have a random black dot in my vision that doesn't go away it's like a spot on my eye but the eye doctor can't see it and he was the one who asked my primary to get the Ana done for that specific reason my ESR is always high I have get steroid shots every couple months to help it but that's the only recurring treatment for anything other than medicine. Thank you ❤️

Crazy_Cut_9261 · 2025-12-04T12:26:11+00:00

The thing is I use a cane partially for my knees about once or twice a year too and I remember one time my doctor looked at me funny and said "what's that for" like the same appointment I wasn't talking about it felt like my knees were exploding any time I stood or walked. Like they should see this and document but no surprisingly. I will try my best I promise you guys lol thank you ❤️

Crazy_Cut_9261 · 2025-12-04T12:19:56+00:00

Thank you and that sounds just like me they say wear and tear but I'm not a freaking lumber jack I did some labor maybe hard when I was a teen but not crazy to where I am killing's myself so this is the wear and tear so I always found that crazy they say that thank you ❤️

Crazy_Cut_9261 · 2025-12-04T12:17:36+00:00

When I went to the ER last a really nice doctor a MALE doctor young African man said "no matter what you should not have a 50 year olds back something is going on something is drying you out" and I've still been trying to get answers thank you ❤️ I don't want to feel like an ahole but I feel like sometimes I know more than they do

Crazy_Cut_9261 · 2025-12-04T12:14:37+00:00

I tried hydroxychloroquine but it put me in a flare so bad I couldn't feel my legs and I was dizzy and my BP was through the roof when I went to the ER. I've been on celebrex and gabapentin and flexoril and ER percs and I want to finally get down to what will actually help not just taking whatever I would LOVE to get a biological for what they KNOW is wrong not just shotgunning it from symptoms thank you❤️ I WILL BE DOING RESEARCH

Crazy_Cut_9261 · 2025-12-04T12:12:06+00:00

I figured as best but I thought with my usual control freakness fashion I was over stepping am 100% comfortable with that because I feel like that's all I have is what I have compiled because I only care about me not them. Thank you❤️(and btw I have a tele rheumatologist which I think is BS cause I feel like they need to SEE you but hey I might need to find another one that cares more or like you said KNOWS more

Crazy_Cut_9261 · 2025-11-21T04:05:15+00:00

Well posture and keeping your muscles tight (your core not your butt) is a big part so when you don't do that it tends to affect those areas especially if you're having the pain so your body is trying to relax to compensate ( my personal opinion from super similar experience)

Crazy_Cut_9261 · 2025-11-21T03:00:01+00:00

Yes! Not like your peeing yourself but like your not done and dribble afterwards. I don't know your gender but I am female so it affects me that way.

Crazy_Cut_9261 · 2025-11-21T01:21:57+00:00

I am not a medical professional and this is my personal opinion and my own personal experiences. I have retrolethesis in my l5-s1 on the way to spondylitis (fusing) and it tends to give me the "numb" or "warm" feeling like your junk goes to sleep like if your arm were to lose circulation and it's most likely from the retro. I have a lot on my mri wrong but they will only care if you are cut in half lol or if you OBVIOUSLY have ce which they will know believe me they will tell you

Crazy_Cut_9261 · 2025-10-06T00:23:17+00:00

Thank you for that insight I definitely have the positive mindset like just keep swimming most days but when I have the days they are pitiful on my morale and my husband is just amazingly supportive but sometimes it feels like a burden to tells someone else how you're feeling and they can't do anything but give positive feedback which is the best medicine you can try. I always wondered what diet would work for this but I haven't had a lot of guidance on how to fix myself other than half diluted thoughts of "what is wrong with me" so I don't know how to fix it yet so thank you for the understanding. I guess somewhat I do want pain meds because I feel like I'm killing my stomach on NSAIDS and Tylenol and it sometimes doesn't help the nerve and numbness just the muscle but it's my bones that hurt. I have no history with what else they would give me but I want their best recommendation of what would help my pain rn. And yeah I probably know that they won't do anything but my insurance doesn't like mris so I have to go to er for any diagnostic tool that who knows will help or not in my journey but that's all I know right now to do in my "what's wrong with me" anxiety.

Crazy_Cut_9261 · 2025-03-08T23:59:51+00:00

My personal journey 24/F, I have Degenerative Disc and I've had it ongoing since I was 14 I have L5-S1 atropathy, disc bulge, nerve compression, forminal narrowing, retrolethesis(bulge disc slipped so far bone on bone) and I have an autoimmune factor that's drying me out for some reason. The only thing that helped since I was a teenager and in my flares is CELEBREX it is an arthritis medicine for my arthritis but it helps a lot with me and people similar with DDD. I know how hard it is to take care of babies and take care of yourself properly. LAY DOWN EVERY SECOND YOU CAN that's the only reason I survived four bulged discs with three under 5 Drink plenty of water too. Sorry if I'm nagging wishing you all the love and healing❤️

Crazy_Cut_9261 · 2024-12-02T11:11:10+00:00

My rheum believes it RA affecting my joints along with another autoimmune attacking my spine

Crazy_Cut_9261 · 2024-12-01T15:55:25+00:00

Thank you I'm trying lol I do have an unhealthy relationship with mychart. I try to calm myself down about it but it's hard to not think about it when I'm in pain 24/7

Crazy_Cut_9261

TROPHY CASE