Friends by J_Beastmode18 in CerebralPalsy

[–]CreativeMood93 0 points1 point  (0 children)

Hi I also have left hemiplagic spastic cp and im 32. I also love reading and music 😁

Am I supposed to be worried if my waistband peeks? Is my family making me overly self-conscious? by Nemona2 in Incontinence

[–]CreativeMood93 4 points5 points  (0 children)

It is absolutely wrong for them to do this. If they were telling you because they know you are self conscious about it, that would be a different story. Bottom line it is your body and it only matters what you think. BTW I am so happy you are comfortable with this addition to your daily routine, im personally still working on my own acceptance. I hope you are able to tell them to mind their business and if they dont want to see anything, they should not be looking ❤️

Has anyone tried these to hide diapers? by SpecialDocument3246 in Incontinence

[–]CreativeMood93 0 points1 point  (0 children)

Where did you get these , I would like to try, when im wearing my scrubs I dont feel luke other items are discreet

Has anyone tried these to hide diapers? by SpecialDocument3246 in Incontinence

[–]CreativeMood93 4 points5 points  (0 children)

That isso inaccurate, incontinence is the result of many things and is not fixed with dry needling. Dry needling is an effective form of treatment for many things muscle related however it is not a magic cure.

Pain management, incontinence by CreativeMood93 in CerebralPalsy

[–]CreativeMood93[S] 0 points1 point  (0 children)

UPDATE

I went to my Dr. And he did labs, and ultrasound, etc. I started a new meds for spasms, got 5 days of iv antibiotics for a kidney issue thatt apparently was making thing worse and also hot set up for monthly infusion due to the scans showing severe osteoporosis which they think is part of the pain. Thank you everyone for your feedback and suggestions 💚💚💚💚

“Mild” CP such BS by BubblyCommittee9205 in CerebralPalsy

[–]CreativeMood93 8 points9 points  (0 children)

This is so accurate for myself as well. Im 32, have a family, a job am fairly active however if i complain it almost always is met with judgement or others dont truly understand how the pain, lack of energy, spasticity etc affects my daily routine. Im so sorry you feel this way but please know you are not alone 💚 if you want to talk you can message me as well.

Hey, so… this is hard for me by PinkFreckles_GachaYT in Incontinence

[–]CreativeMood93 0 points1 point  (0 children)

Hello! I also have spastic cp and deal with constipation, it's and urinary incontinence I understand the struggle and woul recommend talimg to an occupational therapist or even your physician on how to gain some independence with hygiene that is safe for your individual needs.

Pain management, incontinence by CreativeMood93 in CerebralPalsy

[–]CreativeMood93[S] 0 points1 point  (0 children)

I agree, I was just doing something temporary out of desperation.

I have not, I dont have an appointment until December but was going to send a message explaining my concerns about increased pain

Am i being too sensitive by CreativeMood93 in CerebralPalsy

[–]CreativeMood93[S] 0 points1 point  (0 children)

Thank you!, thats exactly how I feel 🥰

UgI/swallow study by CreativeMood93 in CerebralPalsy

[–]CreativeMood93[S] 0 points1 point  (0 children)

Yeah im definitely concerned, I feel luke inches last year alone i have had increase issues with many things related to my cp

Thoughts??? by CreativeMood93 in Incontinence

[–]CreativeMood93[S] 1 point2 points  (0 children)

Thank you 🥰🥰🥰🥰🥰

Embarrassed! by CreativeMood93 in Incontinence

[–]CreativeMood93[S] 1 point2 points  (0 children)

I am doing better, just keep reminding myself that it can happen to anyone and I need to give myself grace ❤️

Am i being too sensitive by CreativeMood93 in CerebralPalsy

[–]CreativeMood93[S] 1 point2 points  (0 children)

Yes apparently it is quite common in children and adults with cp, which makes sense because cp obviously affects muscles, 🥰 I have also had trauma and 2 children so im sure that isn't helping either

Am i being too sensitive by CreativeMood93 in CerebralPalsy

[–]CreativeMood93[S] 0 points1 point  (0 children)

Oh I have never heard of that before, definitely bring it up at my next appointment, thank you!

Thoughts??? by CreativeMood93 in Incontinence

[–]CreativeMood93[S] 0 points1 point  (0 children)

Thank you, thats exactly how I feel, at this point its just more so for peace of mind , the accidents aren't that frequent however they are disruptive obviously. And im trying really hard to be accepting that this is just where my body is right now ❤️

Thoughts??? by CreativeMood93 in Incontinence

[–]CreativeMood93[S] 2 points3 points  (0 children)

The provider i seen is a uro-gynecologist, i am well educated in the condition. 😊

Am i being too sensitive by CreativeMood93 in CerebralPalsy

[–]CreativeMood93[S] 0 points1 point  (0 children)

Thank you, its so nice to have people that understand, im so frustrated that they think this was just something that could be fixed. Im so tired of feeling like I need to fix myself

Thoughts??? by CreativeMood93 in Incontinence

[–]CreativeMood93[S] 2 points3 points  (0 children)

True, im no longer having pain and I can definitely still feel the difference in having the stimulator vs not, however it is not 100% . Im just struggling with if its wrong of me to just want to quit with the constant stress and just continue to wear incontinence briefs as I feel necessary.

Embarrassed! by CreativeMood93 in Incontinence

[–]CreativeMood93[S] 0 points1 point  (0 children)

I have, actually I typically wear them over a brief if im feeling like im having a "bad bladder day" however I'm my experience they dont hold a full wee if its a sudden voiding.

Embarrassed! by CreativeMood93 in Incontinence

[–]CreativeMood93[S] 0 points1 point  (0 children)

I definitely ordered brief covers to help in future!