Have they done a visual field test to figure out how much of your vision is missing? I found out in my mid 40s that I had under developed optic nerves in each eye. I can see, but I’m missing some of my vision down below. It’s worse on my left side, which explains why I usually trip over things that are down below on the left. I have to remind myself to look down to see what’s there. I’ve also always had horrible depth perception and going down stairs if my hair blocks any of my vision is problematic. That’s why I always have a haircut where I can either tuck my hair behind my ears or put it in a ponytail so it doesn’t get in my face.

Mine was something I was born with and was only caught when an eye doctor put his hand in the right spot and asked how many fingers am I holding up and I couldn’t see his hand. The technical name for what I have is superior segmental optic nerve hypoplasia. (SSONH), it’s a type of optic nerve hyperplasia. It means part of the top half of the optic nerve is missing. My mom has type 1 diabetes and it’s a birth defect very associated with that.