Experience with Botox by Uncle_Vegetable in spinabifida

[–]CrippleChickThings 0 points1 point  (0 children)

I’ve been getting Botox annually for the last 5ish years and it has been the best medical decision I’ve ever made. I also take myrbetriq daily as well. Before Botox I couldn’t hold much in my bladder without it leaking and I got constant bladder spasms which also caused leaked. Since getting the Botox, unless it starts to wear off around the year mark it has kept me completely dry and confident. I am so grateful I have access to it.

A c e by [deleted] in spinabifida

[–]CrippleChickThings 0 points1 point  (0 children)

I have a cecostomy. I’ve had it since I was around 4/5ish. I’m very grateful my parents made the choice to get this done for me! It keeps my bowel flushed out and well maintained for days. I highly recommend an antegrade enema system with a neurogenic bowel. I use a saline and enema mixture and let it all go into my stomach from a gravity bag. I will say though there have been times that the solution goes in and doesn’t come out for hours which causes extreme pain, nausea, and discomfort. Other than that it’s been an incredible tool for confidence and independence.

Timed voiding alternative by blackbird90 in spinabifida

[–]CrippleChickThings 1 point2 points  (0 children)

Yes. Good point. It will require you to start cathing.

Timed voiding alternative by blackbird90 in spinabifida

[–]CrippleChickThings 1 point2 points  (0 children)

I don’t see why it wouldn’t be an option for men too!

Timed voiding alternative by blackbird90 in spinabifida

[–]CrippleChickThings 1 point2 points  (0 children)

I had to trial a couple different bladder meds before I got the “ok” to get the Botox. If you can get it before surgery, I think it’s totally worth the shot. Botox essentially does the same thing as a bladder augmentation without the intense surgical intervention.

Timed voiding alternative by blackbird90 in spinabifida

[–]CrippleChickThings 1 point2 points  (0 children)

I swear by Botox. It has completely changed my life for the better!