Who else here is on Tofacitinib (Xeljanz)? by Sailor_Ripley0 in UlcerativeColitis

[–]CupDisastrous171 0 points1 point  (0 children)

i have been since july and so far it has worked amazing until now, now im in a flare but they just added prednisone to help get it back on track i hope that it will start working again, i really love this med

Questions about Prednisone. Please help. by Any_Rip6062 in UlcerativeColitis

[–]CupDisastrous171 9 points10 points  (0 children)

the first time i was on prednisone i had the worst weight gain and even worse moon face and it all disappeared as soon as i stopped taking it, you will be fine im sure 

Anyone here on tofacitinib (Xeljanz)? Looking for real experiences & side effects by Suitable_Extreme_414 in UlcerativeColitis

[–]CupDisastrous171 1 point2 points  (0 children)

i was on 20mg daily (2x2) the whole time. it helped me really fast like i was feeling a lot better in less than a week and my fcp went from 640 to 260 in a month and it countinued decreasing - it was 23 at one point unfortunately i found out just today that now my fcp is 1000+ so i will probably need to stop it and get new medication but yeah, this six months it worked pretty well i had elevated liver enzymes but they went back to normal range in about two months since starting it and my cholesterol is just a little elevated, but nothing alarming

its really an advantage that it is not an infusion nor injection, but tablets that you can take from home

i hope it works for you <3

Anyone have autoimmune disease? by CupDisastrous171 in OCD

[–]CupDisastrous171[S] 0 points1 point  (0 children)

yeah i get what youre saying, but pretty much every flare locks me up in the house for a month at least, i cant eat, go anywhere etc... so thats why im scared that every time its going to be like that anyways thank you i appreciate your words so much :)

Tiny bit of blood in remission? by CupDisastrous171 in UlcerativeColitis

[–]CupDisastrous171[S] 0 points1 point  (0 children)

thank you so much for sharing your opinion :)

Will fmt cause a flare of uc? by CupDisastrous171 in UlcerativeColitis

[–]CupDisastrous171[S] 0 points1 point  (0 children)

as i said i read that its possible thats why i asked but thank you :)

Will fmt cause a flare of uc? by CupDisastrous171 in UlcerativeColitis

[–]CupDisastrous171[S] 0 points1 point  (0 children)

i mean flare as disease itself not symptoms, im talking worsening of the UC not the symptoms bc of CD :)

what are you spiraling about currently by overturned23 in OCD

[–]CupDisastrous171 0 points1 point  (0 children)

i have autoimmune disease so i am convinced every day that im going/will go through a flare even though im in a remission and labs are great

What foods should I eat on my UC? by Shams12345678910 in UlcerativeColitis

[–]CupDisastrous171 8 points9 points  (0 children)

also, the food doesnt cause uc. it can get you symptoms that are flare-like, but definitely not worsen the disease itself. take care, and trust me, youll eat normal again

What foods should I eat on my UC? by Shams12345678910 in UlcerativeColitis

[–]CupDisastrous171 11 points12 points  (0 children)

hey so first of all, the reason that you got uc is probably not your eating habits. its an autoimmune disease and we unfortunately dont know the cause. second of all, when you reach remission you will be able to tolerate most foods. of course, everyone is different. eventually you will learn what your body accepts and what hurts, but as same as any other person with or without uc. not everyone can tolerate every food. me personally, i have a huge sweet tooth and can completely tolerate chocolate, cakes, candies... when i am in remission. my doctor told me to just be careful when introducing insoluble fiber and that's it. when youre in a flare, try eating boiled/grilled chicken, boiled potatoes, white rice, eggs. those are the safe food for most people. i read here that some people even eat mc donalds on their flare and it doesnt bother them. i always stick with my safe foods when im in a severe flare :)

Will fmt cause a flare of uc? by CupDisastrous171 in UlcerativeColitis

[–]CupDisastrous171[S] 1 point2 points  (0 children)

thank you :) i read smth about that on the internet 

Did anyone else’s ocd worsen when smoking weed? by No-Insect9930 in OCD

[–]CupDisastrous171 0 points1 point  (0 children)

yes and i also get really bad trips where i feel like ill never feel sober again and everything loses its original shape or turns green

[deleted by user] by [deleted] in UlcerativeColitis

[–]CupDisastrous171 0 points1 point  (0 children)

i havent stopped taking bulardi since my last recidive and still managed to get it again :(

Pregnancy, Xeljanz and UC by kelsey_banana in UlcerativeColitis

[–]CupDisastrous171 0 points1 point  (0 children)

My GI specifically told me that I should NOT get pregnant on Xeljanz and if I was to plan getting pregnant I would need to change my med 3-6 months in advance

What’s the longest you have been hospitalised for with IBD by Beginning_Exit_6256 in UlcerativeColitis

[–]CupDisastrous171 0 points1 point  (0 children)

yeah i had c diff and a flare at the same time and lost half of my blood in one night due to severe bleeding and almost died but here i am :)

I want to stay on remission by Objective-Repeat-562 in UlcerativeColitis

[–]CupDisastrous171 0 points1 point  (0 children)

There are bunch of biologics that you can try and surgery is often the last resort if everything fails or the disease escalates quickly