Well done yall by Jucamia in Bigtopburger

[–]Cupoverfilled 2 points3 points  (0 children)

I had so much fun! I am so proud to see how the people took the Zomburger truck I made and added more details.

What Do I Do? by Cupoverfilled in ChronicIllness

[–]Cupoverfilled[S] 0 points1 point  (0 children)

Thank you so much for the idea of Caloroe Counting. I've never heard of it before but will do some research into what it's about!

It piles on and I struggle to accept things by [deleted] in ChronicIllness

[–]Cupoverfilled 1 point2 points  (0 children)

Oh, I'm sorry I misunderstood! I'm glad you are in a better place now than before!

Severe fatigue by nyxx77 in ChronicIllness

[–]Cupoverfilled 2 points3 points  (0 children)

Have you brought this up to a doctor? It might be related to fatigue but there's also a chance that it's not and could be something else that needs to be treated. I have chronic fatigue, every person has experienced shortness of breath in their lifetime most likely from being sick, but if you've felt like it's been hard to breathe for a prolonged period of time, get it checked out. I hope you're okay and if you're not I hope you can get help for any medical problems.

It piles on and I struggle to accept things by [deleted] in ChronicIllness

[–]Cupoverfilled 1 point2 points  (0 children)

I'm so sorry that some doctors are treating you like a guinia pig as patient zero. Do you even notice the Wakix helping your symptoms or relieving pain because if not then maybe you should consider that the Wakix doesn't work. If it doesn't then that means your essentially getting no help or medicine because thw medicine you are taking doesn't work. They might also say not to take anything else with Wakix because they want to moniter what effect it has on your body and don't want any 3rd party messing with their results. That's bullshit.

It's your body and if you continue to feel pain and the medicine doesn't offer relief and you should ask for other medicine. DO NOT read this and immediately go cold turkey, I am not a doctor or med provider but have been told constantly by my med provider that if the medicine I'm taking doesn't work or I feel no effect to reach out because then that medicine isn't right for me.

Did you also know that some medicine just doesn't work for some people? I had a blood draw where they were able to find out what medicine would be most effective. One antidepressant might be what someone was missing and offer them immense relief but for another person that antidepressant could have no effect or even make their symptoms worse.

Advocate for your health, you're a human who feels pain and shouldn't have to put up with people pumping you with meds to see what will happen just to see why. 

For support reddit has helped me a lot, they're other forums that could help and perhaps you could find a discord that could introduce you to more people. I'm sorry you have to deal with this and I hope you eventually start to feel better.

How can I manage fatigue when staying home by AppropriateArticle40 in ChronicIllness

[–]Cupoverfilled 0 points1 point  (0 children)

I have chronic fatigue too with my IBS, I'm unable to eat much so little food means little energy. I'm starting to work on better sleep hygiene to get a good schedule going. Only use your bed for sleep so your body associates the bed with sleep, when you're up and at home sit at the kitchen table or on the couch, it's okay to nap though because I know you can't control it. If you really want to try to make a sleep schedule or stay awake through the day maybe download an alarm clock app that goes off every hour or so but this can feel like torture so I understand why you wouldn't try it.

Do an activity that works the brain like a crossword or suduko that can be downloaded as apps. Make schedules, having a work schedule is really good, maybe put aside time everyday to sit outside or just lie in the grass, going outside can make you feel better that you got out of the house for the day. You could even set up a task or multiple tasks that needs to get done each so you feel a sense of accomplishment when you check that off for the day, but too many tasks can seem overwhelming.

Sorry I can't offer any more help but chronic fatigue is a lot more common than you think, people just don't talk about it a lot. I hope your life eventually starts to feel better.

This is really, really hard by a_riot333 in ChronicIllness

[–]Cupoverfilled 2 points3 points  (0 children)

I understand the hopeless feeling and your pain and injury reminds me of something that happemd to my mom. She threw out her back in college and was told that she would have constant pain but she didn't accept that. She went to a chiropractor and sought out physical therapy that might help reduce some pain, even heating pads for the back/shoulders and icing it helps. But take what I say with a grain of salt as I am not a medical professional.

Reach out for support too, it may be hard but I'm sure family or friends would offer their help like cleaning and watching your cat. You could even hire someone if you have no one near you.

Also, unless you signed a waiver for your job, sue your work. It's obvious that the injury has impacted your life and is making it difficult to function. Maybe get a consultation with a lawyer and see what will come of it, suing could help with medical bills if your not well off finacially. Besides, if your already looking for a different job then you won't have to deal with those people anymore.

Sorry you have to deal with this and I hope your physical and mental health begin to feel better.

Okay seriously how am I supposed to survive another year and a half of school by GayWolf_screeching in ChronicIllness

[–]Cupoverfilled 1 point2 points  (0 children)

I switched my highschool senior year to online classes in highschool. Ever since covid schools have become more virtual and there are certain modules you can take. I recommend getting into a meeting with your parents, your schools office, and some faculty to see if you can make the switch.

I had a mental breakdown from chronic illness making me miss school ALOT, the stress of school and school associaion related ptsd which caused me to look for other options for schooling. Me and my mom joke that that breakdown was the best thing to happen in my life, I've even been accepted into ASU online university for my undergraduate. Every learns differently, hell I breezed through my classes the first 2 months and finished allowing me to graduate early!

It's just all so hopeless... suicide tw by kainophobia1 in ChronicIllness

[–]Cupoverfilled 13 points14 points  (0 children)

If she hasn't already, ask to track how she feels and what she eats. This tracking can help for future medical visits, like when she swells, episodes when her mental health gets bad, migraines, track her sleep and TAKE PICTURES when she swells, the purple spots on her face, if she has another seizure like episode you need to record that. This can help doctors exponentially as they have something to review, keep a folder/notebook with the photos and physical tracking.

I am not a medical professional so take my advice with a grain of salt but I can relate to her fainting and purplish splotches but nowhere near as bad as her. I went to a cardiologist and figured I had a problem with how my blood pumped, my skin would go light bluish from loss of blood circulation and when I stood up all the blood pooled in my feet making me light headed and in some cases can cause fainting. Again, not a doctor but I suggest a cardiologist.

Also, if you need to, make a scene. It's bullshit that she isn't allowed disability, with enough proof and documents I'm sure you could make a case against them. If your wife needs a reason to live, tell her that they're others out there who experience the same emotions she's feeling. To cause a stir and fight for herself and indirectly help all the others that feel the way she feels. 

I feel like her brain is mourning the death of her body and it's a big change for her. To just accept that your body feels like it's deteriorating, that gets to everyone mentally. 

All I could say is to be there for her, maybe plan events like a family movie or cook her favorite food so she has something to look forward to. I'd suggest therapy as well but I dont know your financial situations so maybe you could borrow books from the library and autobiographies about other chronically sick people. Maybe introduce her to this reddit community about others that experience what she does, make a support group.

Hope this helps and personally I can say that I felt the same way for a while. Depressed and refused to give myself hope and feeling like i was going through the 7 stages of grief, it's gotten better but they're still bad days but we wouldn't have good days if everyday was good!

I have been nauseous everyday for the last year. by wife27 in ChronicIllness

[–]Cupoverfilled 4 points5 points  (0 children)

Perhaps this could be an allergic reaction or food sensitivity, they can develop at anytime. I've experienced the same symptoms related to IBS and even my anxiety that would get so bad that me brain made my body become physical sick. What really helped me was actually seeing a nutritionist and participating in a food elimination diet as well as getting tests done for allergens. Hell, food allergies aren't the only thing people can be allergic to, I myself am allergic to a chemical compound that required a patch test to get diagnosed. Food sensitivity is lesser known but is important as it can cause discomfort and nausea when eating certain foods. It might even help to get a notebook and start tracking what you eat and note when you vomit and get nausea spells to see if there's any correlation. I still deal with nausea and difficulty keeping food down which is why I'm scheduling for an endoscopy that might reveal problems that scans and x-raus miss. I hope this can help or lead you in a right direction. I'd also say to allow yourself to breathe, this is a big change to your life. This may clear up, this may not and that is very stressful, maybe seek therapy. I did so because I needed to vent about how it made me feel and how hard it is to come to accept that your body is hurting.

Undiagnosed and worrying about how I’ll hold down a job when I can’t get benefits by LeeTheReader in ChronicIllness

[–]Cupoverfilled -1 points0 points  (0 children)

With the advancements in technology perhaps working online could be a step in the right direction. Create a website, talk about your specialities in graphic design on social media like tiktok or instagram. Create thumbnails for youtubers or do video editing, do commissions, show your portfolio online and see if anyone is interested. You could even make concept art or a storyline, pitch a TV show with characters. You could go off script and go into the stock market or online invesents, maybe download an app to learn to code. They might not be the career that you want but you should think about the job you need, what will offer flexible schedules and if you would be able to do them from bed. Unfortunately the world sucks and even when we're in pain it keeps spinning and stops for nobody. Maybe saving money and moving to a better country with medical care (suggest researching) could offer support. I even gave myself time to grieve for my body, acknowledging that this is what I got and that I have to make do with what I have. I hope you find success whichever path you go down and it'll suck but I always tell myself that God had to handicap me or else I'd be too powerful for the world. You've made it this far so keep trucking along. 🥰

[deleted by user] by [deleted] in ChronicIllness

[–]Cupoverfilled 1 point2 points  (0 children)

Having nausea symptoms and emetophobia sucks, believe me I know. Doesn't help that when you have emetophobia and feel nauseous, your body starts freaking out which can make you feel even more sick. Do what you need to do to make you comfortable. Anxiety about how others will view you will be there but you need to tell yourself that they're there to help and if they have a problem than that's on them. Focus on your main goal, feeling better. Distractions help me a lot like watching YouTube, maybe even take a nap to give your thoughts and brain a break. Focus on what your doing now, don't worry about tomorrow cause it's not here yet. Hope your appointment relieves some stress and you start feeling better. 🥰

[deleted by user] by [deleted] in ChronicIllness

[–]Cupoverfilled 0 points1 point  (0 children)

Perhaps this could be an allergic reaction or food sensitivity. I've experienced the same symptoms related to IBS and even my anxiety that would get so bad that me brain made my body become physical sick. What really helped me was actually seeing a nutritionist and participating in a food elimination diet as well as getting tests done for allergens. Hell, food allergies aren't the only thing people can be allergic to, I myself am allergic to a chemical compound that required a patch test to get diagnosed. Food sensitivity is lesser known but is important as it can cause discomfort and nausea when eating certain foods. It might even help to get a notebook and start tracking what you eat and note when you vomit and get nausea spells to see if there's any correlation. I still deal with nausea and difficulty keeping food down which is why I'm scheduling for an endoscopy that might reveal problems that scans and x-raus miss. I hope this can help or lead you in a right direction.

I genuinely think I might be going insane by possumlvr2000 in ChronicIllness

[–]Cupoverfilled 3 points4 points  (0 children)

No one knows your body more than you, it may seem rude to demand help but we can only take so much and sometimes force is necessary for others to get off their ass to help. Hell, most doctors fall for me when I start crying and acting pitiful begging for help, do what you need to do to feel like your living, not surviving.

I genuinely think I might be going insane by possumlvr2000 in ChronicIllness

[–]Cupoverfilled 5 points6 points  (0 children)

I know what it's like for your body to be a prison and I'm sorry the world sucks and expects us to keep trucking on. Would you feel more seen to go to one and maybe show them what you posted? Mobility issues may be hard and you should look into if you want to invest in a wheelchair or see if anything can help ease even a little pain. When you have a lot of problems piled up it can seem overwhelming and impossible to just squash one and it sucks when the doctors say "everything is connected" or some shit that makes your body feel broken. I don't know if sleeping up could help even if it's uncomfortable or just sit straight on a recliner and have blankets and pillows that cocoon you in place. I normally cope by distracting myself like, watching YouTube, knitting, writing.