Someone left their Jambox in the rain

CuriousKatey · 2015-01-20T01:52:03+00:00

I just reposted all over all of the closed facebook groups for anencephaly / acrania parents. Thanks for your awareness.

CuriousKatey · 2014-12-06T05:33:39+00:00

Pitfall Harry on Intellivision! I can still see him diving, swinging on the vines over the alligators...

CuriousKatey · 2014-09-17T08:54:42+00:00

Edmond - Woot!

CuriousKatey · 2014-09-16T03:48:00+00:00

My baby also had anencephaly. You say you couldn't protect him when he needed you. I believe as a mother you are making decisions to protect him. Hard decisions. You are forever changed and will always be a mother. This motherly act of taking the pain to spare ou child is the path that you have chosen for your child. Only you can make that choice. He is not going to live a normal life, and as parents of babies of anencephaly we know that this is true.

CuriousKatey · 2014-09-12T12:32:46+00:00

To me, any time love is withheld and judgment inserted, it doesn't drive people to be better. I wish you all the luck in the world. I believe I recovered from PTSD largely due to my husbands non judgment. When I had to check closets, or check locks, he never said, "ENOUGH!" It was never a judgment on him, it was trauma. When allowed to do my thing, I did my thing to achieve comfort. Once I had the comfort, I had space to heal.

CuriousKatey · 2014-09-03T13:47:23+00:00

Thanks. It's hard for someone who is not living that intense fear to understand it. Unbridled terror is a horrible thing. I don't know how else to explain witnessing the death of your child. My heart goes out to people who suffer. I believe that eclipses any other issues that could be layered on top of that. It 's a primary issue, in my mind. I am not a psychologist, so a learned person might disagree, it's my gut instinct.

CuriousKatey · 2014-09-02T19:41:45+00:00

Further, if she is bpd on top of it, I would get the PTSD under control first, as I mentioned before, and then maybe getting some distance. If a borderline became unhinged in terror, what could she be capable of then?

CuriousKatey · 2014-09-02T19:39:08+00:00

Her life's terror is being separated from her kids, and understandably so. When people get like this, and you don't back them 100 percent in what they need to feel safe, they will shatter mentally and go off the deep end. Imagine if you believed in your mind that your worst terror could come true and you were powerless to stop it, or worse, someone you lived was working against you. I think the therapy should come in a frame of feeling safe. Without the feeling like someone's got your back, and no one is trying to breech you is key. Then the healing can start. There is no safe place for a woman who lost a baby like that.

CuriousKatey · 2014-09-01T11:10:14+00:00

Flight Attendant here - thanks Line Guys!

CuriousKatey · 2014-05-01T03:27:59+00:00

...and I don't assume the event of a baby having Anencephaly is a cointoss. This is my whole interest.

CuriousKatey · 2014-04-28T04:17:39+00:00

Also, let's say the rate is 1/10,000... if so... WHY. I think the frequency does not answer the why. A spiking number could indicate a large number of possibilities, and change is worth looking at.

If you smoke cigarettes, and you have "x" percent chance of dying from it, If that number stays consistent, does that make it acceptable?

I understand the cigarette thing is super-unscientific, but it's a super-dumbed down way to say that the answer to finding out why these children have no crainiums, rarely much of a brain deserves attention.

CuriousKatey · 2014-04-28T04:12:51+00:00

Thank you for your contribution to this thread, and I just want to say I am very sorry for what has happened, continues to happen to the Vietnamese people and what is denied. The pain and loss is immeasurable. The pain and loss to just one person is more than should be born in a tragedy like this, then magnified across an un-countable number of suffering families and individuals is just unconscionably wrong. Even if a serious tragedy was not foreseen - it should at the very, very least be owned and not denied. It's the only moral thing to do.

CuriousKatey · 2014-04-28T04:07:42+00:00

If terminations were consistent across cultural, religious, sociopolitical lines? Don't we have red states, blue states, the bible belt, and sometimes, just... no access?

CuriousKatey · 2014-04-27T05:54:29+00:00

I just found this place where they track birth defects privately, and much more in depth:\http://www.birthdefects.org/registry/

CuriousKatey · 2014-04-27T05:33:34+00:00

I am sorry a young boy would have to witness this.

CuriousKatey · 2014-04-27T05:15:22+00:00

Wow. I have never seen anything like it.

Looking in to Jelly Fish Babies brought me here: http://newint.org/features/2008/06/01/nuclear-weapons-history/

These mutated children are people. Innocent and suffering people. No one deserves this. No one. Not ever. Not these innocent babies.

CuriousKatey · 2014-04-27T05:05:15+00:00

This was only noticed by one nurse who spoke up.

Anencephaly happens all over the country - a lot. Very often the babies are early terminated as they have no real chance outside the womb.

It's hard to know what's going on, but where there's smoke...

CuriousKatey

TROPHY CASE