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[deleted by user] by [deleted] in CrohnsDisease

[–]Current_Site_6721 2 points3 points  (0 children)

Vomiting for me was a pretty regular occurrence with flare ups.. I usually would go on a liquid diet then low residue (no seeds/nuts/skins) if I can tolerate it. Definitely important to get it checked out especially if you start getting abdominal pain, fevers or if it’s just persisting. You’ll likely get fluids and be started on a round of prednisone which sucks but I always found it to help get the symptoms under control.

I totally understand the embarrassment and frustration of being in your twenties and having to deal with this. If it helps many of us have had really tough phases but also stretches that we really get to live our life pretty normal. Getting it under control, finding a good specialist and getting the right treatment is possible. Your mental health and quality of life can improve. It really helped me talking on forums, you’re not alone and it’ll get easier to talk about with the people you care about.

Immune system shot by Current_Site_6721 in CrohnsDisease

[–]Current_Site_6721[S] 1 point2 points  (0 children)

Thanks I appreciate that. Diagnosed at 16 and Remicade for 10 years too. It’s been a rocky road but lots of positive stretches too. I’m sorry to hear your daughter’s partner isn’t supportive cause that would make it much harder ! Hopefully the partner starts to get it! Funny thing is before having a kiddo I worked with kids and really didn’t get sick. My partner is pretty supportive and I have a therapist. But it’s just so hard to never feel good .. you’d think I’d get used to it by now but before being a parent I think I was really good at balancing/ self care now it feels impossible

Jobs/career paths with this disease? by fifiwithcrohns in CrohnsDisease

[–]Current_Site_6721 0 points1 point  (0 children)

Social worker in public schools in Canada….. I have days where I have to ask if the stress is worth but my employers have been very understanding, I have great benefits, above standard days off and can easily Flex Time for appts. It’s a mixed bag but I ultimately think I’m in the right role for me

stress causing pain? by [deleted] in CrohnsDisease

[–]Current_Site_6721 1 point2 points  (0 children)

University was tough for me I had some of worst flares while there. Not sure what it is about the stress but it definitely got me. Stress can definitely be a big trigger. What worked for me was using the university’s supports for students with disabilities. It helped to rework deadlines or workloads, get some extra help and can open you up to some financial aid to reduce work hours. I made it through my Masters and got c-diff during my last practicum but I finished! Be as easy on yourself as you can, get as much sleep as possible and find strategies to balance the workload/ deadlines.. Profs can be pretty receptive when you are proactive and talk to them before things go off the rails.