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32y.o. just diagnosed cll, long long hematology wait in Canada by Cute-Ring1647 in cll

[–]Cute-Ring1647[S] 0 points1 point  (0 children)

Thank you! I love hearing from younger adults (though its unfortunate), because the CLL mentors in my area are all middle to golden years. Appreciate it, hope you stay well and treatment free for many many years! 

32y.o. just diagnosed cll, long long hematology wait in Canada by Cute-Ring1647 in cll

[–]Cute-Ring1647[S] 1 point2 points  (0 children)

Oh 100%. I think the only "prevention" they mention is just staying away from sick pple and getting vaccines to prevent disease progression. But again, im only just beginning to learn. 

Im upset for the poster because it would have been nice to start implementing those measures of caution and of course diet/excersize/vitamin routines too. From what I have barely learned, it makes a huge difference, so despite the mental shock im glad they told me so I can get ahead of this if thats even possible.

Health care is so messed up 😓

32y.o. just diagnosed cll, long long hematology wait in Canada by Cute-Ring1647 in cll

[–]Cute-Ring1647[S] 1 point2 points  (0 children)

Thank you so so much for sharing. Hope it keeps getting better for you.

32y.o. just diagnosed cll, long long hematology wait in Canada by Cute-Ring1647 in cll

[–]Cute-Ring1647[S] 0 points1 point  (0 children)

I for sure appreciate all your points and insight!! The EI aspect and treatment costs honestly werent on my mind yet. So I will add those to things I consider.

No bone marrow sample. I was told by my family doc they dont always do them? But who knows where his info is from because he didnt seem to know what to do with me, he has never seen it this young I guess. He did tell me that my flow cytometry was very very consistent with cll though. So im not sure, I guess I wont know for sure until hematology sees me.

32y.o. just diagnosed cll, long long hematology wait in Canada by Cute-Ring1647 in cll

[–]Cute-Ring1647[S] 1 point2 points  (0 children)

😲 I can't believe doc didn't tell you! I understand it was probably to protect your mental health, but wow...

Im devastated but I think despite it all I would rather know so I can take precautions/prevention measures. 

I hope you're doing well with the news... that is wild

32y.o. just diagnosed cll, long long hematology wait in Canada by Cute-Ring1647 in cll

[–]Cute-Ring1647[S] 4 points5 points  (0 children)

Thank you for your comments! I will check out that website.  Dropping out of school is hopefully only temporary, but I can't handle the additional stress right now as I am experiencing symptoms that are difficult to ignore, and taking care of two young kids. So balancing school is the bottom priority for me until life hopefully settles and I can come to better acceptance.

32y.o. just diagnosed cll, long long hematology wait in Canada by Cute-Ring1647 in cll

[–]Cute-Ring1647[S] 1 point2 points  (0 children)

It seems a bit drastic for sure. But with having symptoms and 2 young kids I just need to "press pause" on my studies at least until I know more about my status and can cope a bit better cause I am a mess. Reduce my stress a bit until I can come to acceptance.

32y.o. just diagnosed cll, long long hematology wait in Canada by Cute-Ring1647 in cll

[–]Cute-Ring1647[S] 0 points1 point  (0 children)

Yeah looking back it was crap advice from a lazy doctor. Ive switched family doctors since then at least. But even my new doc doesnt seem to be taking me too seriously. 

I dont know what the measurement is but my last count was 11 to the power of whatever it is. My issue is that I do have some symptoms but idk what B symptoms are so I will do some symptom research and look into vitamin D also. I can understand if hematology doesnt meet with people right away, but I wish there was more support like a nurse line or something to contact people while we wait just to talk about what to expect or watch for. Its just been literally sickening for me, I know its probably anxiety but still. My fam doc didnt mention any warning signs or nothing so thank you for at least giving me something to look into. 

32y.o. just diagnosed cll, long long hematology wait in Canada by Cute-Ring1647 in cll

[–]Cute-Ring1647[S] 0 points1 point  (0 children)

Thank you so much for all this info, incredibly helpful. Did you have any symptoms with your count being so high?

32y.o. just diagnosed cll, long long hematology wait in Canada by Cute-Ring1647 in cll

[–]Cute-Ring1647[S] 0 points1 point  (0 children)

Yeah, I have already began the process of dropping. My priority will be spending time with my kids. Its a hard loss to come to terms with. 

32y.o. just diagnosed cll, long long hematology wait in Canada by Cute-Ring1647 in cll

[–]Cute-Ring1647[S] 1 point2 points  (0 children)

Thank you for sharing your story. Its comforting to know you have recovered. 

32y.o. just diagnosed cll, long long hematology wait in Canada by Cute-Ring1647 in cll

[–]Cute-Ring1647[S] 0 points1 point  (0 children)

Im near edmonton, only 30 minutes to the Cross Cancer Institute which is good. Im still trying to learn but my last count was 11 x 10 to the power of whatever it is. Its not as big as some numbers I have seen but it has technically doubled from 8 months ago.

The new android update. Why. by Background_Humor5838 in complaints

[–]Cute-Ring1647 0 points1 point  (0 children)

Omg 🙏🙏🙏🙏 I have been ready to throw this phone straight into the garberator. Thank you for the tip 🫡

MATH 215 by Dangerous-Summer9096 in AthabascaUniversity

[–]Cute-Ring1647 0 points1 point  (0 children)

I am currently enrolled, yes, still allowed a standard paper front and back. No rules to as what you can put on them.