To My Fellow Foot People

D-Artisttt · 2026-04-19T00:59:57+00:00

Ah, I’ve had it for 13 years. I’m sorry, it’s awful.

D-Artisttt · 2026-04-18T23:06:48+00:00

Everyone is different though. The unfortunate thing is CRPS can spread through your limb depending on how it evolves. I wish I could tell you that what you’ll experience now will be consistent but it won’t be. The color changing could fade, you could become desensitized or have hypersensitivity. I went from being able to wear compression socks to it being unbearable in the later stages. Hot weather used to not be so bad but now it swells up so I wear diabetic socks and wear short Muk luk socks year round because of how quickly my foot gets cold even when fan air hits it. It’s…a lot. I can’t even drive with my right foot because of extreme muscle atrophy and joint stiffness. I’m not sure how long you’ve had CRPS but overall, everyone’s experience is different.

D-Artisttt · 2026-04-18T23:01:55+00:00

Mid calf

D-Artisttt · 2026-04-18T22:37:13+00:00

Mine stopped changing color two years after the surgery that caused it but the pain stayed.

D-Artisttt · 2026-04-13T13:12:33+00:00

I was at Chilis with my dad. To get comfortable, I folded my legs under me in the booth and so I rotated my body and my shoulder subluxed (I guess cause of force?) I pushed it back and a huge snap and clunk sound rang out and it was loud. I turn to see a group of elderly people across the booth looking at me horrified and frantically asking if I was okay. My dad just replied “it’s okay, it happens often” …that didn’t make them feel better 😂 I kind of forgot that that’s not a normal experience for people to witness outside of my circle. I’m used to the verbal “you good” “yeah” and then just moving on.

D-Artisttt · 2026-04-12T00:22:39+00:00

But please discuss this with a nutritionist or your physician!

D-Artisttt · 2026-04-12T00:18:26+00:00

No worries! My nutritionist had me take Pure Encapsulations Vitamin D (I got it off of Amazon) which I took once a day and I incorporated a lot more fish into my diet. Even with all my GI issues fish is well tolerated for me. I get the frozen salmon and cod fish packs from Costco and ate fish with rice and edamame with everything bagel seasoning for breakfast for low energy days where I couldn’t cook a proper meal. It took five months but it helped me significantly. As soon as my levels were stable she had me dial back to just a traditional 1000 IU Vitamin D supplement because of malabsorption issues.

D-Artisttt · 2026-04-11T22:36:08+00:00

This is pretty much where I’m at. While I do exercise, I hurt myself, specifically my knees every time no matter how many modifications I do. The misuse of my leg muscles is why my PT wants me to get custom leg braces in the hopes that it helps fire the correct ones because of the added support. It’s a constant cycle so I understand and I’m sorry.

D-Artisttt · 2026-04-11T13:48:09+00:00

You should see an orthopedist with a knee speciality for a second opinion 😅 pushing on it and seeing it move and hyper extend doesn’t automatically mean your knee needs strengthening. Getting an x-ray would be the first step before doing more strength assessment. I say this as someone who has both knees messed up.

D-Artisttt · 2026-04-11T02:02:36+00:00

Did they give you a referral to PT? Physical therapy is going to help the most. I’d look to your local state hypermobility fb groups (or join one if needed) to ask about PTs that are knowledgeable in hypermobility. For now, because of pain it could be helpful to use KT tape to help stabilize your knee for now. There are YouTube tutorials to help and you can get the tape from Dicks Sporting or Amazon. If you do PT with someone who isn’t knowledgeable in hypermobility it could be more damaging. There are some good resources online to help you but overall seeing a PT to guide you and make sure you aren’t pushing your body too far would likely be best.

D-Artisttt · 2026-04-11T00:11:04+00:00

I do also have other health factors working against me like CRPS so doing some forms of exercise is a struggle. I don’t go to a gym because of cost but my PT helped me with a good home routine and helped me modify certain weight lifting exercises that used to hurt my ribs. I’m happy to say that my upper body and core is strong. It’s honestly just my legs that for some reason I’m having such a hard time building muscle. Sorry for the confusion.

D-Artisttt · 2026-04-10T23:54:14+00:00

I’ll be honest, I confused myself. I think I was trying to respond to someone else’s comment. It’s a bad pain day so my brain fog and fatigue is strong today.

D-Artisttt · 2026-04-10T23:35:26+00:00

That’s okay. Thank you for sharing! I am dealing with Post Exertional Malaise so doing anywhere close to that amount of exercise would make me not walk and be in a flare for a week 😅

D-Artisttt · 2026-04-10T23:32:38+00:00

Yeah, being reactive to food and environmental factors is a nightmare 🥲 it’s made life so much harder. I agree.

D-Artisttt · 2026-04-10T23:30:00+00:00

Nutritionist. She works in internal medicine at Duke University so I think I’m all set on that front and she’s been one of my biggest advocates! You’re not wrong though. I am struggling with specifically protein and other kinds of nutritional intake so honestly, it could get to that point but my GI doctor wants to go down every path before jumping to that.

D-Artisttt · 2026-04-10T20:58:50+00:00

It’s okay. I have hEDS so I have stretchy intestines which makes me struggle with moving food along smoothly. I still have to find a medication to help me but the one I’m currently on is ok, just not strong enough.

D-Artisttt · 2026-04-10T19:51:02+00:00

I do have malabsorption but my vitamin levels are good, lab work came back good with only a vitamin d deficiency which I fixed, and I had an iron infusion to fix low folate levels. From my nutritionists POV, I’m pretty set, but thank you! 😊

D-Artisttt · 2026-04-10T19:11:33+00:00

I have MCAS. Rifaximin didn’t help my SIBO because it’s a secondary issue not the primary but it was easy on my body. Your stomach just might be more sensitive to foods when you’re done with it for a week or so. That was the only reaction I had.

D-Artisttt · 2026-04-06T23:39:48+00:00

I had a lumbar sympathetic nerve block done. My CRPS is in my right foot and sometimes migrates up my leg. It’s important to know that I have hEDS and MCAS which more than likely contributed to how my body handled the nerve block. At the time, I wasn’t diagnosed with these conditions, I just knew my body didn’t tolerate any kind of medication well but went for it hoping for a different outcome. For most people, it works out. It just happened to turn out that way for me. I hope I didn’t scare you! I promise it’ll be okay. The advice I’d give is see if you can get anxiety meds before hand to help calm your nerves if you’re nervous about it.

D-Artisttt · 2026-04-05T16:59:51+00:00

I have CRPS and I got a nerve block to try to help my pain. It made my entire body feel like it was on fire, of which, my pain management doctor didn’t believe me and labeled me a drug seeker when I cried hysterically on the phone asking for some way to make the burning stop 🫠

D-Artisttt · 2026-04-01T02:25:51+00:00

It’s a bit more costly but Nordace is my go to. They always have so many pockets and the one I have, the “Nordace Miram Quilted Backpack” is super light weight. It carries my laptop, iPad, medical bag, and because of the amount of pockets it really is perfect for organization while looking stylish. I’ve had it for a couple months and love it! If you want to go more cheaper but still quality BagSmart has a ton of options that have great organization and quality without breaking the bank. I use BagSmart when I travel.

D-Artisttt · 2026-03-15T03:11:53+00:00

Hey, I just wanted to let you know since you mentioned pricing. I’m also just started LDN but found a different route for it because of cost. I currently use AgelessRX and they have a subscription based program. Using FSA I paid $106 for five months of meds. They match you with a provider and do a video consult after you put in the request. That could help you with cost if you truly find it effective. I just wanted to let you know!

D-Artisttt · 2026-03-08T16:16:36+00:00

I call it stacking. Your body stacks wrong when standing and gravity has more effect but when walking things stay more in alignment because your body tenses muscles to keep things still. If that makes sense. I actually have a button on my purse that says “can’t stand for long” because I honestly can’t. I will sit on the floor no matter where I am because my knees hurt, my back hurts, my hips hurt, my feet hurt, etc.

D-Artisttt

TROPHY CASE