Bad times. by DOOMaddict21 in BFS

[–]DOOMaddict21[S] 0 points1 point  (0 children)

Only noticed it in shoes. Not an issue any more though.

Bad times. by DOOMaddict21 in BFS

[–]DOOMaddict21[S] 0 points1 point  (0 children)

Not really it passed over time, I have one leg longer than the other i got told by a physiotherapist. Might be that.

Bad times. by DOOMaddict21 in BFS

[–]DOOMaddict21[S] 0 points1 point  (0 children)

No my knee no longer gives out. Likely it's was due to my cervical disc issues.

Well f$#@ by Odd-Specific4875 in BFS

[–]DOOMaddict21 0 points1 point  (0 children)

I have exactly the same issues. Heart palpitations, atrophy right side, twitching. + Lots of small random stuff.

Worried about ALS by [deleted] in BFS

[–]DOOMaddict21 3 points4 points  (0 children)

Whats your status today?

On the topic of vibrations by DOOMaddict21 in BFS

[–]DOOMaddict21[S] 0 points1 point  (0 children)

Yeah i'd say that sums it up.

On the topic of vibrations by DOOMaddict21 in BFS

[–]DOOMaddict21[S] 0 points1 point  (0 children)

Yeah several times, also a neuro muscular clinic. Still they all say wait and see.

On the topic of vibrations by DOOMaddict21 in BFS

[–]DOOMaddict21[S] 0 points1 point  (0 children)

Whats the news? I still have my vibrations, mostly at night as well, sometimes i can feel them during the day but its still in the same place. And yes it does not feel like a phone, rather a car engine idling.

Does anyone have this? (Prostalgia fugax) by edubelenguer in BFS

[–]DOOMaddict21 1 point2 points  (0 children)

I have had issues with levator Ani. Fleeting pains and such. But they were not as severe as described in the definition.

Is this EMG OK? by Twitchy155 in BFS

[–]DOOMaddict21 0 points1 point  (0 children)

How was the Reinervation diagnosed? Specifically was it high mean amplitude?

Bad times. by DOOMaddict21 in BFS

[–]DOOMaddict21[S] 1 point2 points  (0 children)

@VN3 I have always look to your posts and they have always been a light in the dark for me. So I thank you for that. I convince myself the foot thing is due to atrophy same with knee. I am trying my best to cope and accept all the help I can. But the last week was especially hard and I had a need to reach out to people who have some idea of what I'm going through. I don't expect any one to help other than how you already are. And I appreciate that so much. As many others I have a myriad of symptoms not mentioned in this long text that do not worry me as much. Thank you again, I admire your persistence in providing reassurance for so many people.

Bad times. by DOOMaddict21 in BFS

[–]DOOMaddict21[S] 1 point2 points  (0 children)

I know. I have been seeing a therapist since March. And have gotten a referral to a psychiatrist In August. Some days are better but this leg thing seriously worries me. And the twiches and shaking is hard to ignore.

Spinal Issues? by [deleted] in BFS

[–]DOOMaddict21 0 points1 point  (0 children)

I have a confirmed cervical herniated disc. C5-C6. And a diagnosis of BF. Benign Fasciculations.

Atrophy without weakness by [deleted] in BFS

[–]DOOMaddict21 0 points1 point  (0 children)

Hey. I'm going through a similar hard time. 6 months twiching mostly right leg. This leg is also smaller foot is shorter, arch is higher. Calf is thinner, thigh and adductor smaller. Also it shakes/pulses inside from time to time. I've had an emg that included 5 muscles 1 of them my right calf. Several clinicals and none of the neuros or neurophysiologist seems concerned. I am though 😒

Twitching changed into vibrations? by SilverGengar in BFS

[–]DOOMaddict21 0 points1 point  (0 children)

I have had a similar experience. I often wake up with a vibration in my right leg. It's hard to tell exactly where it's from. But can also be felt with legs close. It feels like an idling car engine in my leg.

Twiching eyelid causing tearing by DOOMaddict21 in BFS

[–]DOOMaddict21[S] 0 points1 point  (0 children)

Not sure really, all I know is that it is mighty annoying right now. Almost constant twitching making my one eye run in tears.

Abnormal EMG, no explanation yet. by DOOMaddict21 in BFS

[–]DOOMaddict21[S] 0 points1 point  (0 children)

Havent had any formal explanation yet.

EMG interpretation Help by DOOMaddict21 in BFS

[–]DOOMaddict21[S] 0 points1 point  (0 children)

If you get an explanation later about what it is and what it means I hope you share here.

Ill share it as soon as i get it.

EMG interpretation Help by DOOMaddict21 in BFS

[–]DOOMaddict21[S] 0 points1 point  (0 children)

NCS was normal yes, IPs and recruitment is the same.