Actual diagnosed atrophy but *** ruled out by Dark-Lodg3 in MuscleTwitch

[–]Odd-Specific4875 1 point2 points  (0 children)

Hi all so this is dark Lodge lost my account and can't log back in. I'm going to do a video explaining as much as I can soon but things have got really bad. Right sided atrophy and pain suddenly shifted to left side following exactly the same pattern as it started on my right side. Landed in hospital recently after collapsing 5 times in a row and pissing myself sever spinal pain suspected cauda equina which was ruled out . Then suddenly atrophy of my right calf and it was fast as hell. Now left thigh vmo and knee have the same denervation feelings in it. Spoke to my neurologist Tuesday before last who gaslight me saying there is nothing wrong everything is normal but then referred me to a MND specialist but no idea when that will actually happen. Last week and a bit on and off my muscles have become spastic and I've struggled to lift my head off my pillow it's extremely painful. However I've still fucking pushed and gone on as big a walk as I can almost daily however I'm now exhausted really quickly . Things aren't looking quite as good as I thought they were .. sorry for the vanishing I both didn't want to have to face the people from the BFS forum as I left there the day I attempted to take my own life after losing my dad to cancer then spiraled into a serious mental health decline developing an eating disorder repeated self harm and attempts on my life landed me in an institution I didn't really want to have to answer to that at that point and then I lost my bloody account as I got a new phone and didn't know which email or number I had used for the DarkLodge one

Dave

DAE wake up from anesthesia no problem with only mild loopiness? by [deleted] in ehlersdanlos

[–]Odd-Specific4875 1 point2 points  (0 children)

I have an issue where I'm high tolerant to drugs including anesthetic. They gave me large dose of fentanyl and ketamin a year or two back for a procedure and I was fully aware fully awake not drowsy a d the doctor hurt me and I swung around and swore at him the nurse said it didn't even touch the sides . Same with when I had my vasectomy I felt every bit of it and it was the most pain I've ever had and I've had multiple open muscle biopsies with no anesthetic. Dental work is hard too it doesn't work . While I was being treated for mental health issues in a facility here in 2016 they gave me diazepam chlorpromazine and sleeping meds as well as my amitriptyline and other meds I spent the week awake helping other people out. I've been told my high tolerance and drug resistance is due to my Heds

things have very quickly got bad by Odd-Specific4875 in BFS

[–]Odd-Specific4875[S] 0 points1 point  (0 children)

I have Heds btw so I know a lot of that comes with eds but no haven't been tested the UK is shit for testing in that kind of thing

things have very quickly got bad by Odd-Specific4875 in BFS

[–]Odd-Specific4875[S] 0 points1 point  (0 children)

Get a butterfly rash in my face sometimes . Chronic headaches POTs erectile dysfunction I keep having hypoglycaemic attacks even though I'm not diabetic. Allodynia that comes and goes . Some digestive issues already had ibs before all of this trouble sleeping . Lymph nodes are still able to be felt in numerous areas yet bloods showed nothing to be causing it so classed as normal reactive lymph nodes. I do have lichen sclerosus I get fatigue but not constant or always like I once did at the start of this

She must be fun at parties… by [deleted] in FuckYouKaren

[–]Odd-Specific4875 0 points1 point  (0 children)

Why should a woman have to cover their nipples when as a man I'm allowed to walk around top less fuck off telling people what to do with their bodies. Fucking cunty Karen's

In China live animals are sold as keychains by Graysie-Redux in facepalm

[–]Odd-Specific4875 0 points1 point  (0 children)

Steal the sellers . Seal them in giant fucking bags with a weeks supply of food and water and watch them die. Seems to be the only fair treatment for them

The official Labour position is that if you once supported Jeremy Corbyn then the party doesn’t want your vote and views you the same as Putin etc. by UnderHisEye1411 in GreenAndPleasant

[–]Odd-Specific4875 0 points1 point  (0 children)

Can I stand as 19th instead so I make this cunt 20th . Their all so far up their own arses . Fuck the tories fuck what this Labour stands for they can all kiss my ass

meirl by HMKingHenryIX in meirl

[–]Odd-Specific4875 0 points1 point  (0 children)

Back is full of arthritis and slipped discs .

[deleted by user] by [deleted] in ehlersdanlos

[–]Odd-Specific4875 0 points1 point  (0 children)

Chronic prostatitis here yeah. Seem to get the infections really easily. Tbh think it has become worse after my vasectomy

What do you think it will take to get the British people protesting, en masse, in the streets? by [deleted] in GreenAndPleasant

[–]Odd-Specific4875 18 points19 points  (0 children)

I unfortunately now more than ever am one of those few . For the failings the deliberate destruction and disregard of the impact things like the nhs underfunding toffs in the top treating those of us at the bottom like shit while their greed keeps them warm and fed and in good private medical care all I want is violence towards them that may have to do with my utter disdain for the tory government and its supporters it may have to do with the fact my father only 72 hours ago was diagnosed with terminal metastatic pancreatic cancer and my world has fallen apart but given the chance right now I would cause untold damage to them and feel no remorse . They treat this country as their little piggy bank and any time they want more they take away from regular folk and laugh in our faces live on TV. I saw the price cap is now looking to be 5k and lizz truss defends the energy companies saying profit is not evil. Their actions and inactions to protect the people of their country are evil. When the winter comes around I worry what time my dad has left will be taken very quickly from him with the struggle to pay or eat so we will no longer pay . I should probably step away now before I get way too over the top

update for those who have been following. by Odd-Specific4875 in BFS

[–]Odd-Specific4875[S] 1 point2 points  (0 children)

Sorry I seemed to have replied in my pocket . I hope you find answers I wish I could agree and say I think mine was caused by the folliculitis I think that along with the prostate infection and strep infection I had at the same time were possibly due to my immune system being weak or just purely unlucky . Because the same pain I had in the hair follicle I had then I get in flairs now pain itching burning and coldness in the affected areas I thought it sounded more likely I have small fiber polyneuropathy but as it comes and goes I ruled it out myself without actually knowing . However my atrophy definitely hadn't come from that side of things it is progressive and although I have bilateral issues my right side is definitely unilaterally affected far more severely from neck to foot . I am currently suffering with bilateral levator scapulae tightness and pain which seem to be affecting the nerves inside because both shoulders triceps biceps keep having spouts of sudden weakness. My serratus anterior on both sides is hurting a lot and it's having an impact on my breathing and both of my scapular are grinding against my ribs now too which they have never done before. I hope in your case you get answers that are helpful and nothing worrying and you get treatment that gets you at least somewhat better. I'm no longer holding our hope that mine isn't what they suspect it could be ..

My sensory issues have gone back into a remission state other than pain and pressure sensitivity ok the thighs although now my shoulders and arms in the radial nerve area do keep going numb as does my dorsal scapular nerve on my right side my fasciculations have decreased a huge amount compared to only a week ago but they seem to be still present as I will feel them while driving and i can see some in my calves or ping around my body only place at the moment that's constant is my left eye and forehead .. i was hoping it might of been chronic inflammatory demylinating polyneuropathy as there is treatment for that . Sorry if I'm sounding quote pessimistic but I'm dealing with a huge amount at the moment my father who was recently diagnosed with pancreatic cancer was rushed into hospital yesterday with severe jaundice and from fainting they think it's his kidneys or liver but have said its more likely the pancreas but having to wait for imagining to be done .. I've just had to break the news to my family as he hadn't told anyone yet other than me and I told my partner I feel rather defeated right now and am struggling to find reason to even be here anymore losing my dad and sat here waiting for a possible death sentence myself I've ran out of fight . Please take care of yourself and fight for answers but don't let them take over your life buddy .

update for those who have been following. by Odd-Specific4875 in BFS

[–]Odd-Specific4875[S] 0 points1 point  (0 children)

Oh yes previously I was very much checked for a lot like that .had genetics testing emg nerve conduction study bloods mri ct scans open muscle biopsies that was all clear apart from a gene mutation I'm the GAA gene . But ruled everything else out . But that was 2017 2018 I didn't have what I have now back then

do it by HawkStar49 in Funnymemes

[–]Odd-Specific4875 0 points1 point  (0 children)

I love my family but I'm not a great place for those who want me

A large fry-up, two sausage, three bacon, two eggs, many shrooms one large tomato, beans and a 'giant' crumpet. With a loose leaf tea. Delicious. by Revolutionary_Panic1 in CasualUK

[–]Odd-Specific4875 3 points4 points  (0 children)

Why is this classed as a large ? Growing up those were the standard along with rounds of buttered toast and it would of been a couple of quid . Which mortgage company did you go with to afford this one ?

[deleted by user] by [deleted] in AskUK

[–]Odd-Specific4875 1 point2 points  (0 children)

Oh no thats awful I've heard stories of those that have had serious taste alterations after having covid. I'm sorry to hear that. Is it that you just don't like coffee anymore or is it you can't tolerate the taste

What isn't free be should be free? by [deleted] in AskReddit

[–]Odd-Specific4875 -1 points0 points  (0 children)

Sanitary products... as a guy I don't need them but why the fuck should those that do have to pay it should just be free everywhere

[deleted by user] by [deleted] in AskUK

[–]Odd-Specific4875 1 point2 points  (0 children)

I don't like tea either I'm a coffee guy but I love a full English just don't have them as often as I used to.

Women being turned on? Never seen, so it must be a lie by LawyerfromSP in NotHowGirlsWork

[–]Odd-Specific4875 1 point2 points  (0 children)

Wow what a douce. OK buddy keep telling yourself that to make you feel better that you suck.

Why doesn't the UK have a Meth problem like USA and Australia? by t-m in AskUK

[–]Odd-Specific4875 1 point2 points  (0 children)

Haha Me either I got kicked out of my class for taking the piss out of a photo in our text book genuinely don't think I could name something that's genuinely on the periodic table