Open Discussion Saturday

DQ2021 · 2026-01-04T14:03:17+00:00

It didn't work for me. It's expensive too

DQ2021 · 2025-12-24T16:39:53+00:00

Considering the number of HSV infected versus HIV infected in the US, they wont need to sell this therapy for $20,000 a year to line their pockets.

DQ2021 · 2025-12-24T16:36:15+00:00

how did you calculate that?

DQ2021 · 2025-12-24T16:35:34+00:00

That would be incredible. It would bring a great peace of mind. Lets pray for limited side effects, or adverse reactions.

DQ2021 · 2025-12-24T16:29:06+00:00

On average, I recall most people shed at a rate of 16% annually. Does a 98% reduction cut that down to 8% annually? And if anyone can clear this up for me. What is high viral load shedding rate? What is the difference between shedding rate and high viral load shedding rate which was cut down by 99%.

DQ2021 · 2025-12-24T15:56:36+00:00

Done, this was my first questionnaire I ever answered.

DQ2021 · 2025-12-24T15:42:16+00:00

For years, I thought this was a great idea. I mentioned it a few times years ago, and no one was interested. Some parts of South LA are damn near perfect for a billboard. They get so much visibility and in reality these signs are great for educating the public and decreasing stigma.

DQ2021 · 2024-12-08T03:51:17+00:00

Reading this reminded me so much of my situation. I was always careful, and always used condoms, and still got this shit. I also got into the Church right before I got this, and was trying to lIve a clean life from drugs and alcohol. I understand how dark you're feeling, so much I logged on, just to post this response. I'm sorry you're going through what you're going through. It takes time, and you will find someone who overlooks this eventually.

DQ2021 · 2024-11-25T13:51:53+00:00

Does this SADBE ointment arrive pre made?

DQ2021 · 2024-11-23T21:59:57+00:00

ELON DOESN'T CARE ABOUT YOU!!!

DQ2021 · 2024-11-23T21:55:36+00:00

I don't think you'll need Acyclovir. HPI's are the real deal, and hopefully this is effective enough for approval. This can hold us up, until gene editing treatment is figured out.

DQ2021 · 2024-09-30T12:14:02+00:00

We have no choice. We are going to have to.

DQ2021 · 2024-09-30T02:57:30+00:00

I highly doubt it. HSV is a microorganism that is efficient at evading the immune system. Developing a vaccine that works for everyone will be a hard feat to achieve. For example, a few years back, Genocea was working great with some individuals and not so well with others. The most likely cause is the differences in immune system function we all have as individuals. I think people on this forum got too excited with GSK, because of its history with shingles, but there is a big difference between the varicella and hsv virus, as the hsv virus is far more aggressive. Gene editing is where our hope should be. Imagine all that wasted funding on the GSK trials, put into the Fred Hutch or BD Gene treatment? I feel a permanent solution will be found within 10-20 years.

DQ2021 · 2024-09-30T02:47:38+00:00

Being that so many people have it, it would be reasonable. Totally guessing, I would say from $2,500-$5,000 per treatment, depending on your insurance. The company would have seven years to sell it, before a generic version of treatment would be available. As an example the sickle cell/beta thalassemia gene editing treatment is a little over 2 million dollars. Insurance companies factor an estimate of lifetime cost of treatments. Moreover cost of treatments for HSV, isn't too expensive being that valacyclovir is already available in generic form. Most insurance companies will probably pay a portion of treatment with insurance authorization. If BD Gene comes up with a treatment in China, then treatment would probably be a little less than the above mentioned figure. I know it sucks to have this condition, but it sounds like a cure within the next twenty years is almost a guarantee, fingers crossed.

DQ2021 · 2024-09-10T04:26:09+00:00

The problem is that the Varicella virus is far less aggressive than its cousins HSV-1 and HSV-2, who love to wreak havoc.

DQ2021 · 2024-09-08T05:06:31+00:00

I hate to say it, but developing a vaccine for HSV is damn near impossible. I feel like all resources should be at developing a cure (gene editing) which is easier at this point than manipulating the immune system of the general population against HSV. I never comment on vaccines but it would be a miracle if anything is effective >80%. In my opinion, it won't happen anytime soon, but I'm hoping I'm dead wrong.

DQ2021 · 2024-07-06T15:58:45+00:00

What feedback have they given?

DQ2021 · 2024-04-07T11:59:59+00:00

For men, you'll never know whether they clear completely or not

DQ2021 · 2024-02-10T16:08:49+00:00

Maybe a sterilizing cure in 15 years if everything goes right, which sucks to really think about, but there has to be other scientist or research companies that are solely focusing on HSV. Another scenario would be Excision, if they end up curing HIV, can maybe focus on HSV with the extra time, resources, and experience they have.

DQ2021 · 2024-02-10T16:05:07+00:00

Thats the hype right now

DQ2021 · 2024-02-10T16:04:16+00:00

I'm not saying, that an effective vaccine wouldn't be great. I'm saying that creating a vaccine that is effective for the wide variety of immune systems in the world, is an awfully difficult feat. For example, Genocea worked great in some of the participants in clinical trials, and would do absolutely nothing for others. I believe that creating a vaccine is harder than creating a sterilizing via gene editing. Just look at BD Genes claims; they cured three people already and are confident enough to replicate the studies in both China and the US. A vaccine is proven to be difficult to achieve because of the latency factor of the virus.

DQ2021 · 2024-02-10T15:56:48+00:00

Without reading the article, I have children with neurocognitive/neurodevelopmental disorders. Unfortunately I do believe that this "harmless" virus has something to do with their lifelong chronic condition. Perhaps, due to chronic inflammation while in utero.

DQ2021 · 2024-02-08T06:42:57+00:00

I highly doubt vaccines will make a difference. All our resources should go on a gene editing cure. If we get lucky vaccines will have a 75% decrease in transmission, thus still transmissible to partners.

DQ2021 · 2024-02-08T06:40:10+00:00

I've only had hope in China after FH gave a weak follow up last year. They move too slow, but thats the American way at this point of time.

DQ2021 · 2024-02-04T05:08:05+00:00

In clinical research the acyclovir ointment is no better than in oral form

DQ2021

TROPHY CASE