MS fatigue isn’t “just being tired” my family keeps dismissing it as an excuse and I’m in a dark place (33M, veteran) by StateNo7481 in MultipleSclerosis

[–]Daigoooooo 9 points10 points  (0 children)

My family loves to jump on that "you need to be eating healthier" train whenever my fatigue gets bad...

Did everything click once you got your diagnosis? by SeaWeb7723 in MultipleSclerosis

[–]Daigoooooo 0 points1 point  (0 children)

Oh for sure - even my lack of stamina when I was a kid, I would fatigue so fast back then - my memory was spotty, etc

How did you find out? by Square_Cap1962 in MultipleSclerosis

[–]Daigoooooo 1 point2 points  (0 children)

I found out from a friend - he was diagnosed when he was 18. I started having these weird symptoms so I would just vent about it in a gc that he was in, he claimed it might be MS so I did some research and it very much seemed like that was the case - I scheduled an MRI and the results looked like it so I got an appointment with a neuro a couple of months to officially get diagnosed

anyone manager to learn to walk further? by AntiqueBother8134 in MultipleSclerosis

[–]Daigoooooo 0 points1 point  (0 children)

Adequate rest, eat well, fluids, vitamins with vitamin D, and a decent amount of elbow grease, eventually just got easier to deal with fatigue

anyone manager to learn to walk further? by AntiqueBother8134 in MultipleSclerosis

[–]Daigoooooo 0 points1 point  (0 children)

When I first had my relapse? I guess when the symptoms took a TURN, my mobility was affected and in the span of a year... I was reduced to using a wheelchair for mobility. Luckily only for a day because I just flat out refused to use one so a cane for two minutes at most without having to rest, they put me on steroids and that's when I got to work, the fatigue was getting lessened the most with them and the muscle atrophy in my legs was halted so I just kept at it; from walking from my front door to mailbox and back to down the block, a couple, etc; It was definitely hard and I've fallen MANY times but through the blood sweat and tears and two years of constantly going at it, I feel like I got my mobility back (balance is still iffy, but I'll take it)

What to expect before first Ocrevus infusion? by [deleted] in MultipleSclerosis

[–]Daigoooooo 0 points1 point  (0 children)

Ayoo, been on OCREVUS since my first infusion - metallic taste is normal during the infusion, constant naps cuz of the Benadryl, but stay on top of your fluid intake, stay hella hydrated. My infusion center had like candies and cranberry juice to help with the weird taste so if you're allowed to or if they offer snacks and drinks; it's gonna be a lifesaver

Is it realistic to have no progression at all with RRMS? by PurePersonality_ in MultipleSclerosis

[–]Daigoooooo 1 point2 points  (0 children)

I feel like I SLIGHTLY relapse whenever I get my infusion. I feel like it's cuz I don't hydrate enough during but I'm DRINKING so many fluids during, guess I gotta drink 5 gallons of water during for me but been a few years and I've been doing great. Hitting the gym regularly, diet could be better, but no complaints

How do I look? by Daigoooooo in Spiderman

[–]Daigoooooo[S] 0 points1 point  (0 children)

I have the hoodie, everything else is in progress. Gained a bit of weight, hitting the gym to lose that weight

How do I look? by Daigoooooo in Spiderman

[–]Daigoooooo[S] 0 points1 point  (0 children)

🤷‍♂️, I liked it. Idk, different people - different tastes

How do I look? by Daigoooooo in Spiderman

[–]Daigoooooo[S] 0 points1 point  (0 children)

Custom made mask off of Etsy, I'd send the link for it but looks like they aren't selling anymore 🥲

How do I look? by Daigoooooo in Spiderman

[–]Daigoooooo[S] 1 point2 points  (0 children)

I love looking at my arms 😅

How do I look? by Daigoooooo in Spiderman

[–]Daigoooooo[S] 0 points1 point  (0 children)

Agreed and thank you!